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Clementine

We are moving

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My husband got a different job and we are moving to the United Kingdom. I am really excited for the adventure. I am so grateful to be getting out of Colorado, although I will miss it deeply. I cannot wait to live at 90 degrees elevation. Much different than at 5280 and I am hoping I will feel much better.

I think for the last week I've been having an "episode" because I feel awful....

so tired that it's not fair to even call it "tired". I have a message gift card and I am too tired to the message!!!

I went to the mall for some exercise but ended up stopping at every sofa/chair I walked past to rest. UGH!!! I hate this.

xoxo

Tangelo

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Jen,

How VERY EXCITING! What a great adventure you are about to embark on. Have you ever been to the UK? I hear it's a gorgeous place and yes, much lower in altitude compared to where you are now. The altitude and cold has been awful this year!

 

Well I sincerely hope that things work out for you two in every way. I hope the move isn't too much of a strain on you physically. Just take your time and let everyone else do the work. A great time to learn the art of delegation. :)

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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i also live in colorado and I am thinking of moving to nevada. i have heard lower altitude can really help is this true? i feel awful as you know you have been so nice to me. what have you heard on lower altitude? also do you know anyone else out there with interstitial cystitis that are having horrible autoimmune symtoms? also I am scared over something, my legs started really hurting lately even to walk but really really bad at night and I cannot understand why. what do you thing this could be a sign of? they seem to be getting worse really fast. thankyou so much look forward to hearing from you soon. take care. ginny

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Hi Tangelo, welcome in advance to the UK. Do you know where you are going to be living? wherever it is it will be a huge contrast to Colarado. I'm sure you will also find the British health system somewhat different - some aspects better , some worse. Perhaps you will get to meet up with some of us UK forumers- because the Uk is so small , no where is that far from anywhere else (compared to the US), For example I live in the North of England but sometimes just go to London for the day as its only just over two hours on the train. It is only a short hop to the rest of Europe either - so you will be able to explore lots of other countries. I spend quite a bit of time in Paris and it is only just over an hour flight for me - and even less if you live in the South of England.

 

Lizzie

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Hi Jen

 

Pleased to hear your news and I know you will have lots to sort out but it is all exciting for you and you hubby. Hope all goes well for you both.

Do you you know when you will be making the move and where to?

I live in the east of England and like Lizzie says it is such a small place you can get to lots of places very quickly.

Do keep us informed.

 

Jensue

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Wow Tangelo, I'm very happy for you too, you seem sooooo excited!! The good news is that you can still chat with us no matter where you go!! It will be so great for you to be able to hop the train and get around Europe whenever you're up to the travels! B)


Sending good wishes your way!

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Hello everyone.

 

We'll be living somewhere near Uxbridge, a suburb of London, which is where my husband's office is located.

Due to the PETS travel scheme, I will live in Arkansas for 6 months, then my husband will come back to help me, Sadie and Max with our move. I am excited, but I am also nervous. I am not too worried about healthcare really. I plan on seeing my Colorado Dr. right before I leave and I've been stable thus far, so what's another year, right?

I will be glad to get anther doctors opinion in the UK and hopefully he/she will correspond with my Denver doctors.

The thing that concerns me the most is that dogs have to travel cargo when entering the UK from the US. No options, it's cargo hold. My smallest dog is only 6lbs. I'll be traveling in October out of Houston. He's either going to be too hot or too cold. I know the airlines claim it's temperature controlled, but when it's your "kids" in tow, it's hard to not be concerned for the worst. Sedation is not an option...it's not safe...so they are going to be so uncomfortable on the 12 hr. flight. If anyone has any experience with pets in cargo hold, please PM me.

 

Ginny, I don't know how long you've been ill, what meds you are on, etc. but I do know a lot of us have muscle fatigue. Actually, I do sometimes too, and I don't have skin involvement. I still want to talk to you about your care in Denver. I looked up the doctors at NJ hospital and I think I know which one you saw. She is new to her profession, but she does have great mentors. If you want a friend in Denver to talk to, just message me and I'm all yours.

 

Lizzie, does that mean I can meet you in Paris for the day!!!!??? I've been to France once but flew into Nice, never made it to Paris. Duh, who goes to France and doesn't see Paris? ME.

 

Jensue, we should find out more about where we'll be living once we talk to the relocation team. For the convenience of my hubby, I want to live close to his office, which is the tech area. I am hoping to find a house with a fenced yard.

 

I've been reading up on social customs in the UK so that I don't make a total arse of myself!!! The tube sounds so simple.

 

If any of you all recommend a Dr. in London, please let me know which one.

 

Thanks and wish me luck. I am going to be a freak show for the next 6 months.

 

Tangelo

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Wow that is going to be aways, my neice is living there in lakenhearth or something like that. She just had a baby. Well good luck and take some pictures and put them on myspace. When will you be leaving?

 

One thingIi had noticed, I live in Ohio and when I moved to southern California I still had the same amount of raynauds attack. Then I started having lots of sinus problems as before I didn't. Oh well good luck!!!


Sam

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Hi again Tangelo

 

Would be glad to show you the sights of Paris- You can get the Eurostar train direct from central London to Paris!

Re doctors - the system is a bit different here - you can't contact a consultant rheumatologist directly - you have to be referred via your general practitioner (primary care) provider and they decide in consultation with you who to refer you to which is usually someone at a hospital in the same area. You often don't get a lot of choice in the matter. However I think that as you have sclero you would be able to ask them to refer to the Royal Free in London ( Profs Carol Black , Christopher Denton and the team) , which is THE place for Scleroderma in the UK and probably one of the top centres in the world. I think they see patients from all over the UK - I know people here in the North who have been sent by local rheumatologist for consultaton there. I think you may find some aspects of treatment different to the US - e.g fairly routine use of iloprost infusions for raynauds. The first step when you get to the UK is to register with a local General Practitioner who will then sort the referral for you. We do have a private health sector as well - but even then you need to be referred by your general practitioner. I have health insurance through my husbands business and so can have private healthcare but although the rheumatologist I see does see private patients, but he told me that if have sclero is much better to see him within the NHS system - has a full team of doctors /physios/OTs and nurses with specialist knowledge which wouldn't get in the private sector.

 

Lizzie

 

Lizzie

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Congrats!

 

That sounds so exciting! I for one could never do it because I absolutely hate change. We are looking for a new house in the same town and I am dreading that move!!! Please keep us posted on your journey. I will live viacriously through you. :)

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Lizzie,

That information was a big help. I am sure I'll have more questions. I will have private insurance too.

Lisa, I hate big changes too. I need structure, security, etc.

I don't think I am as excited as one may think, I am just trying to see the bright side of things. I see it as

a great opportunity for wonderful experiences. Meeting interesting people and experiencing different cultures. At the same time, I would be so happy just living in my hometown near my grandma that is 94. We'll see. Things usually end up working out.

xxoo,

Jen

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Wow Jen!

 

Sounds like you are in for an adventure. I'm with Lisa, I'm not good with change either but I like to live out my adventures through others. Maybe if I was healthy and the kids were grown, I'd be up for a grand travel adventure.

 

You take care - don't stress too much about all the "stuff". Sounds like you have a great attitude (as always) about the change.

 

Love you, always thinking of you,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Jen, How exciting for you to be moving to Britain! Just a thought re your dogs. I wonder if you flew to Holland or France and then travelled by car, would you still have to put the dogs in quarentine? I know the little one can go under your seat in a carrier if you flew with Lufthansa. Your larger dog would still have to go down below tho. Sorry, I can't think of any other option for you but if you Google it there is lots of advice online about flying with your dogs.

Take care,

Hugs, Piper

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