Jump to content
Sclero Forums
gemini26

Painful ulcers on fingers

Recommended Posts

Hi, I hope I'm not bothering anyone, but I don't have anyone else to talk to. I have such painful ulcers under my fingers. They throb and ache all the time. I know it's the raynaud's/scleroderma, but not one doctor will tell me for sure what's going on.

 

My aunt has the exact same thing and I saw her fingers up close 2 days ago and I almost passed out. I know this is what is wrong. Why won't these doctors want to tell me what it is or what to do. I have no support whatsoever...not at home....not at work...not in the medical community...

 

This is just the tip of the iceberg. I have raynauds, diffuse esophageal spasms, trouble swallowing, scleroderma, broken blood vessels on my lips, face and neck, gastro problems, swelling of hands and feet all the time, hiatal hernia, gall bladder sludge, lung involvement, constipation...also fibromyaglia (which is now being debated) and sleep apnea. I'm sure there's a ton of stuff that I forgot. I am 41 years old, married (if you would call it that) with 3 teenage sons. My Rheumatologist keeps telling me it's in my head

 

My aunt (my mother's sister) has lupus (sle??), raynaud's rheumatoid arthritis, scleroderma, esophagus involvement.

 

I DON'T KNOW WHAT TO DO ANYMORE! CAN SOMEONE HELP ME??

 

pHYLLIS

Share this post


Link to post
Share on other sites

Phyllis,

 

You are not bothering anyone. It sounds like to me you need to fire your rheumatologist if you are not getting what you need out of the relationship. Call telephone information on "goggle" the American Medical Association to get a referral in your area. It is not all in your head. Even the best story teller could not make up what we experience on a daily basis. Good luck! And remember it can take 3-6 doctors before we get a clear diagnosis. I'm only on my first (lol)

 

Loren

Share this post


Link to post
Share on other sites

Hi Phyllis,

 

I really sympathise with your ulcers, they are so horrible and people who've never had one just cannot imagine how something so small (in size) can bring you to your knees with pain. Have you tried trinitroglycerine which you apply topically to the base of the finger to increase the blood flow? It won't take the pain away, but it should help them clear up faster.

 

I'm no doctor, but it seems incredible that your rheumatologist is telling you it's all in your head. Get a new one! What country are you from?


Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

Share this post


Link to post
Share on other sites

Hi Phyllis...wow, how could anyone, least of all a doctor say this is in your head? Get a new doctor --TODAY!! Search the site here and find someone who is knowledgable. Those ulcers are serious and can result in digit loss! Do not put this off. Ask for a prescription of Nitro-bid ointment and apply it to the base of the affected finger. Good luck, you are in a frustrating position.

Karen

Share this post


Link to post
Share on other sites

Hi Phyllis,

 

Welcome to the Sclero Forums. I'm so very glad that you've found us. You are now among people that truly understand what you are going through. Have you seen a sclero specialist? I think that needs to be your first move. See someone that is very familiar, and understand what this disease is about. I'm not sure where you live, but if you tell us we can find one for you.

 

Post often, and we'll be here for you!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I'm with everyone else here who said "fire" your doctor and find a new one. I can't imagine any health care professional, even if they don't specialize in sclero to say "it's all in your head" ..................Wow!

 

I have Raynaud's also but have never had the ulcers but I have seen others post that they take viagra to help with them. If that's true you should check it out. It sounds like it really works and it's something I will explore if I ever get them.

 

Welcome to the site.

 

Warm hugs and blessings.

 

Peggy

Share this post


Link to post
Share on other sites

PHyllis,
Welcome Darlin'. You are not bothering us at all. On the contrary, we are all so glad that you have joined and are seeking help. You have a lot going on and it appears that your doctors aren't listening! I agree - it's time to get a second or even third opinion. Here is our page on scleroderma specialists. I don't know where you are from, but it list specialist worldwide. If there isn't a specialist in your area, you can search for another rheumatologist by going to the Find a Rheumatologist.

Please make a phone call today. Make an appointment and take in a written list of all your symptoms.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Phyllis,

I'm late piping in. Hopefully by now you're in line to see a scleroderma specialist. All the specialists in my area have waiting lines, but if you call around 4pm or when they do their reminder calls you might be able to sneak in to a canceled appointment.

 

Please do ask about nitro bid cream, Revatio aka Viagra and a Calcium Channel Blocker medication such as Norvasc. You know about nitro bid from everyone. Revatio is great for ulcers. Revatio increases the supply of blood to the lungs and reduces the workload of the heart. Calcium Channel Blockers are similar - they relax blood vessels and increase the supply of blood and oxygen to the heart while reducing its workload.

 

Ask lots of questions so we can figure out the answers together.

 

take care,

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Hi Phyllis, Ive had ulcers on my fingers the last 2 winters now and last winter I experienced the worst pain ever ( Id rather have 10 more babies lol). They became infected due to the fact my general practitioner put the wrong products on them causing too much moisture for them to heal. I ended up being seen by our district nurses whom are the most wonderful people on earth and know exactly what they are doing, they deal with ulcers of all kinds ever day. What a huge difference using the right products makes. I also went on a 7 day course of intravenous antibiotics and new pain relief. I was taking a heavy pain killer and panadol during the worst part of the pain which only gave maybe an hour, 2 at the most of releif, now im on different prescription drugs. I have found these new drugs help the general pain I endure everyday too, making living alot easier esp whilst being a wife and mother and wanting to participate in their lives as much as possible. I see many here have mentioned Nitro Bid Cream, Ive asked for this here in New Zealand, but is no longer available, so have no experience with it. If there is another product like it that anyone knows about, id love to know. So, anyway, for me, the biggest issues concerning my ulcers was, to make sure they are dressed properly with the right products (I can find out the names of these if you like) and to get onto the right pain relief. The fact is, they unfortunately just take a while to heal, but I have found, they do eventually go away. Being in a warm house, environment, town, country etc is paramount. Anyway Phyllis, Ive gabbled on and on. Would definitely love to hear how you get on. Relax and Rest, it will be ok! Susannah

Share this post


Link to post
Share on other sites

Thank you everyone who responded to me. For those who have asked, I live in Pennsylvania. I did find another Rheumatologist at Thomas Jefferson. I'm going to give him a call tomorrow AM. It feels so good to finally talk to people who understand me. You have given me hope, which I have been lacking for a very long time.

 

I will let everyone know how things turn out. Also, I'm going to ask about that Nitro-Bid Cream.

 

Thank you all. I will keep in touch as I hope you will still be there for me. Also, if I can help anyone, just let me know. Help goes both ways!

 

Talk to everyone tomorrow.

 

Phyllis

Share this post


Link to post
Share on other sites

Dear Phyllis,

 

Hanging there, it easy said than done, believe me I know how you feel. I had ulcers on top of all my fingers for couple years and I know how painful that is. One day they just desappear and instead I got calcium deposit infections and a lot of them. Most of all I have wonderful friends and that really has helpe me, having someone to talk to helps so much

Your in my thoughts,

 

 

 

Alice02

Share this post


Link to post
Share on other sites

Oh Phyllis, I feel for ALL of you who have the painful ulcers!

 

As far as being a bother? No way are you even close... we are glad you posted and I know that

there are many who will continue toshare helpful information with you.

 

Take care of yourself.

 

Soft Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×