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barefut

Finger tips splitting

22 posts in this topic

Yea, ouch! Especially when I use my hands all day counting dirty money and poking keys on the computer keyboard.

 

I've had worse dry skin before yet this has never happened. They take forever to heal too.

 

I am on my third split, this time on my left middle finger. They start at the tip of my fingernail and run perpendicular to it and go deep under the nail.

 

My once tough as nails nails are now thin and brittle and splitting too - what gives? Meds? Don't get me started on my hair! It's getting whacked off tomorrow - oops I mean today as I've been up all night again! :P

 

Thanks,

B


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hey Barefut

 

2 of my fingers split too (but not very often)...they go down from the edge of the nail but they don't go around the underneath part....and take time to heal as well...I load polysporin ointment on mine when it happens and after a few days they seem to get better. My nails have been brittle and splitting for many years (all I have to do it hit them on anything)...mine will also break off always up in the pink area, ouch ohmy.gif ....the only thing that stops that for me is when I load nail hardener on them. Not sure if med's cause it or not but that wouldn't be the case with mine?


Sending good wishes your way!

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Count me in too on this problem!! I have always been a terrible nail biter and my rheumatologist would fuss at me and say at least let them grow to the fingertip to help protect the tip. Since I have always been a biter, I don't know if my nails are any thinner or brittle. My finger tips get so thick and then they will crack and split and oooh boy, it is painful. I now have my nails done with acrylic fake ones. For one they are too hard to bite and the other is now that I have dentures I can't bite them !!! laugh.gif My new rheumatologist said it's ok for me to get the acrylic ones, just make sure they are super careful with the cuticles. Oh I guess I should say I now have dentures because this wonderful disease caused me to lose my teeth tongue.gif Anyway, now that I have longer nails, that does seem to help a bit with the splitting skin.


Peace :)

Barbara aka relicmom1

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Hi Barefut ,

 

I have to say that I have always had horrible nails....two that are permanently split down the center....and brittle hair. BUT........I do not have sclero!!! YET

 

Take care, Everyone.

Margaret

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Oh B,

 

This sounds painful! I am one of the lucky ones I guess, my nails are like NAILS. Long, hard and won't ever break, but my fingers and hand are dry, dry dry! Just bought some new lotion yesterday hoping to help them out.

 

Give yourself a good hand treatment, soak them in lotion, and put some gloves on.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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I seem to recall a special hand lotion for people who work with money and that sort of thing - some of the girls in the accounting office at my company used it. It was a non-greasy formula but kept your hands from drying out. I'll see if I can find something on it.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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I too have always had very thin and brittle nails....this past year they get crevises in them that go the length of the nail and under the cuticle. Then the tips start to split. If anyone has anything that will help, please let us know. I find using the hardners and other stuff just makes them more brittle. I've been thinking about getting the acrylic nails as well so was glad to see the post about that here. Thankyou! I use alot of hand cream for my skin and nails but doesn't help the nails any. - Lisa


Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

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This may sound terrible... but I've used Bag Balm for my split fingers (at night, w/cotton gloves... when I didn't "throw" the gloves off during the night)! lol

 

Hope you are successful in getting rid of the splits on your fingers... it sure is painful!

 

 

Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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barefut,

 

I've noticed lately that my nails are just worse than ever... I've always had thin nails. I used to bite my nails for years and years and years... but this winter they are horrible. And my hair. I don't know if it's all the meds or the cytoxan. I totally chopped it all off really short, and am lovin it now. The texture is so totally different than it used to be, more frizzy than ever... really odd...

 

I'm happy to see I'm not the only one out there. Wish I had found you guys years ago. Maybe I wasn't going insane when all these different things were happening to me.

 

I've also done the bag balm with the gloves, and socks... my heals get horrible!

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My thumb and one index finger are doing this now. It's a really deep split on the thumb, and my hands tend to swell when I sleep, which makes the split open wider and sometimes bleed. I have been putting an antibiotic ointment and a bandage over the tip of the thumb, which helps keep it moist, but it's still swelling and splitting and bleeding. I can see the crevice beneath my nail growing darker. I've had one nail split in the past, and it looks like this one is about to follow suit.

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Hi Punydeb,

 

Ooh, I can sympathise with the splits in your fingers; they are so painful and take ages to heal.

 

Thankfully, I've never actually had ulcers but I've many times had splits in my finger tips, particularly in the winter when the weather is damp and cold. They've not been so bad these past couple of years, but I put that down to no longer having to look after my horses and my hands being constantly in the wet and getting chapped. Ironically, due to my having Scleroderma, my nails have actually improved as I take a Vitamin D and Calcium supplement and Alendronic acid to ward off the bone thinning effect of the steroids I have to take. There's always a bonus!! ;)

 

I used to use Udder cream on my hands (and on the horses' heels for the same reason) and found it to be very soothing.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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I'm in. I get those painful splits too. You can also try Fucidin (fusidic acid cream), prescription strength. It is known to be stronger than regular over the counter antibiotics although for us it may not be any better for healing unfortunately :( but worth the try depending on how long it takes you to heal. I also cover mine with a band-aid. I agree, nail hardener is the only thing I've found as well that stops my nails from breaking in the pink...as long as I remember to apply it of course :lol:


Sending good wishes your way!

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Once we start getting splits/sores/ulcers/calcnosis, I think the best long term remedy is to avoid all harsh soaps and cleaning products.

 

If we simply cannot avoid the actual cleaning, then using gloves (and lots of lotions) is a good approach to try. I even keep a good supply of surgical gloves (and surgical masks) readily at hand to use for projects, such as painting or spray painting or glueing. We don't want to be using very hot or very cold water, no matter what, and if it's going to take a lot of scrubbing to get whatever-it-is off our hands, we are opening ourselves up for trouble, too (harsh soaps or chemicals, hot water).

 

Surgical gloves (and masks) are surprisingly easy to work with, and very cheap too, so I prefer them over the heavy-duty plastic cleaning gloves. I've found that with scleroderma, even the tiniest little ding or paper cut can lead to all sorts of trouble, so for me, prevention is always easier than cure.

 

I read this thread with great interest though as I learned some ideas for what to do, for those times when all the prevention tips fail, thanks to all of you!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Punydeb, it's been a few weeks now. Are your finger splits getting any better?

 

If not, you are seeing your doctor about this wound, aren't you?

 

Sometimes we don't heal well with scleroderma and circulation issues or infection can prolong healing. So I'm sending warm healing hugs your way, and hope that your fingers are doing better now. I'm hoping that you have it all cleared up, so that we can throw a Sclero Happy Dance for you!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi!

Well, I'm new in this forum and I'm very happy to find you all.

 

I am 30 years old and have had Crest scleroderma since I was 24.

 

My finger tips always split, and I had digital ulcers for a year. I have perceived that splitting diminishes if I don't use detergents (I have to use procedure gloves without powder to work) and take care to not let my skin get thick and I always hydrate.

 

As I live in a hot city in Brasil, people think I'm strange because I have to protect myself from cold when its not cold...

Now that I found this forum, I don't feel alone anymore.

 

Hugs

Ro

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Hello Ro

 

Welcome to the forums, I have just replied to your other post about Raynaud's. As I live in a cold place, the UK, protection from the cold is rarely out of place but in Brasil I can see how it would be!

 

We're glad you've found us so keep posting and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Ro,

 

Welcome to these forums!

 

Sorry to hear you've been diagnosed with CREST and have been suffering Raynaud's symptoms. I can empathise as I have Limited Scleroderma and Raynaud's and I know how painful those splits in your fingers can be. Thankfully I haven't experienced digital ulcers and hope that pleasure will be postponed indefinately!! ;)

 

I'm very pleased you've joined our community and look forward to reading more of your posts.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Ro,

 

Welcome to Sclero Forums! I'm so glad you found us and look forward to hearing more from you.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I'm not sure I understand what you mean by splitting. Is the skin splitting from your nails? I'm having a problem with my nails cracking, changing colors and the skin around them becoming irritated and painful. I get a lot of sores on my fingers, too, and don't recall injuring them. Is that the sort of thing you mean?

 

Regardless, I hope you find some solutions and the problem eases up!

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Hi Ro,

 

I am so happy to meet you and really pleased you have posted as a member of our Scleroderma family.

 

Yes, finger splitting can be a constant problem for some of us here, yet for me, it is MORE of a problem

during colder weather, or as you say, during much use of detergents/water. I TRY to keep my hands well moisturized with a good lotion or cream, yet I'm not as good about that as I should be.

Your use of the gloves for such things can really be a good way of helping out!

 

We sure do hope that you post often; after all, you may make fast friends and never want to leave... like ME, for instance! :emoticons-group-hug:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi, everybody!

 

Your replies made me so glad!

Sometimes it's hard to have a rare disease, most of people don't understand; my husband is the only person who really knows what I'm passing through, but sometimes I don't like to talk so much of what I'm feeling because I know he suffers too.

Here I feel so comfortable, I love to read all your stories.

 

Thank you all!

 

Hugs

 

Ro

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Hello Ro

 

Maybe you might want to submit your story to our collection of over 1000 stories from people, caregivers and survivors about their experience of scleroderma and related illnesses. Not only is it cathartic to write your story but uplifting and inspiring to those that read it. Your husband could submit his story as well as a way of release.

That's how I got involved with ISN really, reading the stories and then submitting mine, the forums came after that.

 

Of course you don't have to do any such thing!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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