barefut

Finger tips splitting

22 posts in this topic

Hello Ro

 

Welcome to the forums, I have just replied to your other post about Raynaud's. As I live in a cold place, the UK, protection from the cold is rarely out of place but in Brasil I can see how it would be!

 

We're glad you've found us so keep posting and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Ro,

 

Welcome to these forums!

 

Sorry to hear you've been diagnosed with CREST and have been suffering Raynaud's symptoms. I can empathise as I have Limited Scleroderma and Raynaud's and I know how painful those splits in your fingers can be. Thankfully I haven't experienced digital ulcers and hope that pleasure will be postponed indefinately!! ;)

 

I'm very pleased you've joined our community and look forward to reading more of your posts.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Ro,

 

Welcome to Sclero Forums! I'm so glad you found us and look forward to hearing more from you.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

I'm not sure I understand what you mean by splitting. Is the skin splitting from your nails? I'm having a problem with my nails cracking, changing colors and the skin around them becoming irritated and painful. I get a lot of sores on my fingers, too, and don't recall injuring them. Is that the sort of thing you mean?

 

Regardless, I hope you find some solutions and the problem eases up!

Share this post


Link to post
Share on other sites

Hi Ro,

 

I am so happy to meet you and really pleased you have posted as a member of our Scleroderma family.

 

Yes, finger splitting can be a constant problem for some of us here, yet for me, it is MORE of a problem

during colder weather, or as you say, during much use of detergents/water. I TRY to keep my hands well moisturized with a good lotion or cream, yet I'm not as good about that as I should be.

Your use of the gloves for such things can really be a good way of helping out!

 

We sure do hope that you post often; after all, you may make fast friends and never want to leave... like ME, for instance! :emoticons-group-hug:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi, everybody!

 

Your replies made me so glad!

Sometimes it's hard to have a rare disease, most of people don't understand; my husband is the only person who really knows what I'm passing through, but sometimes I don't like to talk so much of what I'm feeling because I know he suffers too.

Here I feel so comfortable, I love to read all your stories.

 

Thank you all!

 

Hugs

 

Ro

Share this post


Link to post
Share on other sites

Hello Ro

 

Maybe you might want to submit your story to our collection of over 1000 stories from people, caregivers and survivors about their experience of scleroderma and related illnesses. Not only is it cathartic to write your story but uplifting and inspiring to those that read it. Your husband could submit his story as well as a way of release.

That's how I got involved with ISN really, reading the stories and then submitting mine, the forums came after that.

 

Of course you don't have to do any such thing!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now