KELLYB.

Disability Payments?

22 posts in this topic

Just putting in my input on the disability...

 

I applied November of 2003, was denied, and put in an appeal. Had the trial in March of 2005, and was granted disability in May of 2005. So yeah. that's my story...

 

I had to be re-evaluated last year. and they found that I was still disabled and could keep my ssi.

 

I hope things work for you faster. I know what a pain it can all be. my heart goes out to you!

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Dear Mary,

 

Thank you so much for your advises on disability’s topic. I appreciate your tips on hand specialist, especially that I do have calcium on my finger. Also seeing get a psychiatric and I just would like to add that love what you said about your meeting with the psychiatrist. I read a book called Disability Workbook and has some forms one of them is a list of conditions causing impairment. And this list has many conditions, is that what you meant when you wrote that you list you didn’t leave anything out? I’m going to apply by the end of this month. Where I can get initial forms?

 

 

Warm regards

 

Alice

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Hello All,

 

Yes, I've also experienced alot of confussion with social security staff getting my SSDI benefits. My story is ... I applied for SSDI (via the Internet) in May of 2007. I received word from my local social security office in November 2007 that I had been approved, but I had to apply and exhaust (one year) state disability in tandem with my SSDI. Although I had been approved as of May of 2007 there is a five month waiting period before my monthly benefits kicked in August of 2007. But because the local social security worker put in that I would receive the maximum benefit from the state --- $3800 per month - I wish!!!--- I only received $35 from SSDI. Once I got that straightened out, one day in February I received a lump sum back payment in my checking account. However, I only received $35 once again in February, so it still isn't fixed. Thank goodness I am a social worker by profession and I understand somewhat how this system works.

 

In California (not sure everywhere else), we have a program called "Ticket to Work". It allows folks on SSDI to supplement their SSDI income by making no more than $640 per month without losing their SSDI or Medicare. Social security considers the $640 to be unsustainable to live by itself. As I mentioned before, it might be different in each state. Also, the ticket to work program is administrated by an outside agency and if you work with this agency, you will not have to go thru the periodic medical reviews of your SSDI.

 

I don't know if this helps ... just keep on the folks at social security. I've read many articles how overwhelmed and short staffed they are and it is only getting worse now with us baby boomers aging.

 

Good luck to everyone out there!

Angie

Fremont, CA

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Mary and others,

 

Thanks again for this great information!! I tell ya Mary, sometimes I don't have much of a sense of Humor left when it comes to people that don't get it. I think I would have jumped down that guys throat at his stupid quesitons. :)


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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I'd like to clarify my statement in regard to (U.S.) Social Security Disability. That is, the initial qualification is permanent and total disability. After receiving benefits, many people recover a little and want to go to work, at least part time and sometimes full time. They have a special Back to Work program that Mary referred to. But nobody is eligible for that during the period of qualifying for benefits.

 

So always check with your doctors, a good disability lawyer, and with social security before doing anything drastic -- like quitting a job, taking on another job, or applying for benefits.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hey Guys,

Shelley makes a great point... I don't think everyone appreciates the seriousness of the first six month period when you CANNOT work AT ALL. I guess it's the best way to see who is really serious because most of us can't afford not to work! I know those were very dark days for me, I am a single mom and my son was in his third year of college, and another one in high school. I am tremendously lucky that New Jersey is one of only 5 or 6 states that have temporary disability, and thankfully I had AFLAC which made the difference between eating and starving.

Also if you're applying for the first time, even if you fill out the online paperwork you still have to go in person to the office to finish it. It's a long process and disheartening at times but patience and persistence will serve you well.

To answer your question Alice, yes, I put on my paperwork every way I was affected, from trouble putting shoes on to bowel problems to sitting in an air conditioned office, as well as difficulty sitting in one position for any length of time, cramping, difficulty eating, sleeping, difficulty holding a pen, constant fatigue, dealing with the emotional issues... I put it ALL in there. We manage to work around so many of the day to day problems that we don't really think about those small things which truly, when added up, make it very hard if not impossible to live any semblance of a normal life.

As I mentioned, I am making an appointment with SS to discuss trying to work again. I really don't know if I can, but I'd sure like to try. I have nothing to lose, and an employer who knows my problems and wants me anyhow. Now if only I could find a boyfriend who was so understanding!

Try to hang on to that sense of humor, especially with the SS people. Most of them really do care and want to help. If they say they've been trying to get information from one of your doctors, offer to help them out by calling, or have them fax forms to you to give to your doctor. I found there was a lot of mis-communication between my doctors and the SS people and using me as a go-between seemed to help. I also made friends with the doctor's office staff so they'd be more likely to help me, lol...!

Hope this helps everyone, just remember we've been there and came through in one piece. feel free to ask any time and lots of luck... love Mary

ps to Sweet, it makes a good dinner party story and always gets a good laugh!


Diffuse sclero; diabetes; hypertension; GERD with Barrett's

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Dear Mary,

 

Thank you so much for taking the time to answer my questions, I appreciate. I too single living alone, I’m using my saving to get by and have some financial help from friends. I believe that NY’s state have temporary disability, I’m going to try to find out how to apply for it. I bought a book called Disability Workbook; it is extremely helpful and so informative about every issue regarding SSDI. My suggested to you is to buy it, it will help you to make right decision and understands what work and what doesn’t regarding going back to work.

 

 

Much love

 

 

 

Alice

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