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Shelley Ensz

In Loving Memory of Sherrill Knaggs

35 posts in this topic

The nonprofit International Scleroderma Network thanks the following people for their donation in loving memory of Sherrill Knaggs, longtime ISN volunteer whose inspirational story was the centerpiece of the Voices of Scleroderma Volume 2 book, who passed away on 02-27-08. (Also see: Donate in Memory) Posted 02/27/08.

 

Gene & Shelley Ensz

Judith Devlin

Carrie Maddoux

Pamela Roland

Joanne Wertz

Janey Willis


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Mere words cannot express how devasted I am to hear that Sherrill has passed away. Sherrill had a tremendously positive influence on our nonprofit ISN. I have never known anyone who gave so much, so selflessly. In defiance of all her pain and suffering, she continued to help people all throughout the world, in every way she could.

 

Sherrill served as ISN News Guide, ISN Guide to Collagen, ISN Dialysis Guide, ISN History of Scleroderma Guide, ISN Senior Artist, and ISN Thyroid Guide. She is also past Manager of Sclero MSN (now Sclero Forums) and she continued to serve as a behind-the-scenes Support Specialist for Sclero Forums, as well.

 

Her mother's inspiring artwork glorifies our site and our books, as does Sherrill's photographs, and will always be a comfort to us. Sherrill's inspirational story was the centerpiece for the ISN's book, Voices of Scleroderma Volume 2. The book series was illustrated by her mother, Ione Bridgman, who painted the book covers when she was in her very late 80's. Sherrill is survived by her husband, David Knaggs, and her mother, Ione Bridgman, both of New Zealand. (Also see: Sherrill Knaggs)


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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..........oh Nooooooooooooooo

 

Tears are streaming down my face as I type this. I had been worried about her a few weeks back because I hadn't heard from her, so I emailed her. She wrote me this lengthy email giving me the details of how sick she was. After reading it, I couldn't believe she was so selfless to put the energy into even attempting to email me when she was so sick - it really touched my heart...

 

I will miss her terribly...

 

I haven't looked at the link yet, but I hope there is an address or something to send a card to her family?

I was so hoping to meet her when I visited my kids in New Zealand later this fall.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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The very first post I made was answered by Sherrill. I will never forget the wonderful and uplifting words she had for me. She was truly a special woman. She will be deeply missed. -Ann

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I am also fighting back tears. From the beginning I have been inspired by Sherrill's posts. Sometimes when I got to feeling down I would think about something she said and it would pick me up. I loved her sense of humour and her wicked perspective on life. When I look at the work she and people like her have done, and what they have to cope with doing even simple things, it makes me almost embarrassed to moan about my piddling little problems.

 

Interesting to note that Sherrill approved many of the posts to the thread on her recent promotion to Senior Artist. Something special about that. She must have really cared a lot about the place to keep coming back even when she is so ill. I will miss the evidence of her midnight presence. We will all miss her.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Oh Shelley...

 

I am SO SAD to read of Sherrill's passing... I wish I could have met her in person because I've felt a real kinship withher since my joining this forum. The loss is great, not only to this community because of her generous time unselfishly given and the warmth she emanated... but also her family, who lovingly stood by and shared a life of trials and difficulty, due to her health, yet selflessly complimented her daily offerings.

 

May they and all who knew Sherrill... feel the peace and comfort she now has. May her husband and mom feel warmth, for all they did... to support her determined abilities, albeit most difficult on the days she suffered more than usual.

Please know, dear family... that I appreciate all of your contributions... via Sherrill... to this forum. May your days ahead be filled with the love of knowing you were such an important part of her life.

 

My Sincere Condolences to her family.

Gentle Hugs,

 

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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I also want to echo what has already been mentioned here about Sherrill....I am so sorry to here of her passing. Her talents, gift of hope, and loving presence will be remembered here forever.


*WestCoast*

 

********

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sad... hugs... tears...

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Shelley ,

 

This is so sad. I, too, remember so many of her posts......so encouraging to everyone. I will keep her family in my thoughts.

 

Take care, Everyone.

Margaret

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Oh My! I am so sorry to hear such sad news. My thoughts are with her family. Sherrill has always been here it seems and was very special to each and every one of us.

Gentle Hugs, Piper

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Shelley, I am so sorry to hear this news. I never got to meet her, but I loved her sense of humour, her posts would always make me laugh. This is a very sad day, if there's anything I can do please let me know.

 

Jackie S.

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I don't know how to express my feelings except by talking to Sherrill.

 

Thank you Sherrill for your inspiration and for your will to educate and help others even when the task of doing so was so difficult for you. You dealt with so much more than any one of us will ever imagine. What many of us perceive as battles, you considered just another bump in the road.

 

Thanks to your husband for always being there for you. He always made sure you got out to smell the roses.

 

You will be missed.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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My sincere condolences to Sherrill's friends and family. I am sorry I didn't get to know her better while she was here. I know she was a kind, devoted and inspirational person to all of us. She will be sorely missed.

 

My thoughts are with her friends and family at this difficult time. May your memories of her comfort you in your sorrow.

 

Take Care,

Love,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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I am coming in late on this and agree with everything that's been said. She was so special and will be missed.

 

Mary in Texas

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I'm so sorry to hear about Sherrill's passing, my thoughts are with her husband and family. I feel a deep sense of loss, she will be missed by everyone!

 

Take care

Celia

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I just heard about Sherrill's death. Sherrill was such an inspiration and a dear friend. We both came on board with ISN in the very early days and worked together on many early projects especially the Voices of Scleroderma book series.

 

I have so many huge emails from her as we gabbed often from New Zealand to New Hampshire.

She will be dearly missed.

I am glad, however, that she is finally at peace and off all those machines.

 

Sherrill, give my best regards to Julie and Jill. I miss all of you so much!

 

Judy Devlin


There are over 1,000 patient and caregiver stories on the main Sclero.org site.

Warm regards,

 

Judy Devlin

ISN Archive Committee Chair

International Scleroderma Network

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There are no tears being held back here, I am now drenched in them. She was so thoughtful, helpful, knowledgeable and a fighter. She always had a kind word to say and was there to help everyone even though she was sufferring herself.

 

Sherrill, I will miss you!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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I can't find the words to express what I want to say. When I read that I just couldn't believe it, I didn't know she wasn't doing well as of late. The truth is I always get her and Shelley mixed up for some odd reason. I know we are going to miss this extradinary woman Sherill Knaggs. Her family will be in my thoughts. And everyone here who she had touched. Sam


Sam

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I too sit here speechless. My heartfelt condolences to Sherrills' family and friends. She gave so much to all who entered this board and made this bumpy road a much smoother ride. She'll always be alive in those who love her. Keep talking about her and keep her memory alive. She'll not be forgotten, not here.

 

Blessed thoughts


Happy people don't have the best of everything, they just make the best of everything they have!

 

Warm and Happy to you! Vee

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I was very sad and shocked to hear of Sherrills passing. I never spoke to her or emailed, but for me, just the fact that she was a fellow New Zealander meant alot, this disease seems so rare in this county ( I could be wrong, I just dont hear of anyone!). I was particularly encouraged to read her story and hear that some of her symptoms had lifted. Her hard work and dedication to this website are clearly seen and we all get to enjoy the benefits of that commitment - Thank you Sherrill and to her husband for his support - we are eternally grateful!

My thoughts are with her family right now at this most difficult time.

Susannah x

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I can only echo what everyone else has already said. Sherrill was extremely helpful to me when I first joined the board. She wrote to me at length about kidney failure and made me feel less alone. I was dismayed to hear about her death. She was such an inspiration and so full of spirit. We will all miss her.


ISN Artist

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I have not been online for a while, so imagine my surprise when one of the first posts I read is about Sherrill's passing.

 

I am so saddened by this news. I loved reading her posts and looking at the pictures she posted. She had a wonderful heart.

 

My condolences to her family and friends around the globe.

 

Kathi

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The nonprofit International Scleroderma Network thanks the following people for their donation in loving memory of Sherrill Knaggs, longtime ISN volunteer whose inspirational story was the centerpiece of the Voices of Scleroderma Volume 2 book, who passed away on 02-27-08. (Also see: Donations in Memory) Reposted 03/03/08.

 

 

 

Anonymous (1)

 

Gene & Shelley Ensz

 

Judith Devlin

 

Stephen Dickson

 

Carrie Maddoux

 

Pamela Roland

 

Joanne Wertz

 

Janey Willis


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Sherrill was a person to be admired. This disease ravaged her body, but she never let it ravage her spirit. My condolences to her family and friends.

 

Here's to Sherrill,

 

emmie

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