kelowna52

Stomach Huge, Bloating, and Pain.

24 posts in this topic

Wow, I can't believe everyone here has this....I have it too! I look like I'm carrying a basketball under my shirt. Feel awful sometimes. I find the less I eat the better and am trying not to eat much at all. If I eat like normal I pay big time and gain weight easily. Not eating I just stay where I am as far as the weight goes. I take a gastro cocktail of Pantaloc/zantac and domeperidine......it helps but not a whole lot. Let us know what your gastroguy says.

 

Lisa


Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

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I think I figured Reglan out... take half doses 4x/day then gradually work your way up to full doses. I did this after my stomach and guts acted up after my first day of reglan, and haven't had any problems since. Actually it's been pretty great - I'm regular now and don't have to take Miralax.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Hi everybody,

 

I have the same problem with the bloating and discomfort that goes with it. My GI doctor told me that it can actually cause you to go up a full size in clothing! (Isn't that special?!)

 

Mine is also related to bacterial overgrowth which the doctor attributes to slow motility. She prescribed antibiotics which I have yet to start. I was very sick a couple of weeks ago, and just got the clearance to start them. She also has me taking probiotics to encourage the growth of good bacteria.

 

From another member of the bloated belly club,

 

emmie

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Good morning everyone, wow, it's amazing how this bloating affects alot of us. I've been on the Antibiotics since Monday, no change yet, I'm still bloated. Plus I have a rectal fissure, the last one, I had to have surgery for. I'm just getting very tired of this. I have my brother coming from Canada for a visit next Tues. and I have so much to do, I just don't have time for all of these health issues. This just get's old. Well, have a good day.

 

Take Care

 

Jackie S.

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Jackie,

 

I'm sorry the antibiotics aren't working for you yet. Beings that it's been 5 days it doesn't hold much hope, but finish them out. I feel what you are saying about being tired of all of this and how it gets in the way of everything and anything we want to do. I hope you are able to enjoy your visit with your brother.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Thank you Pamela, I surely will try to have a nice visit with my brother. It sure is tough to try and keep up with my daily routine, not to mention get ready for company. Thank heavens it's my brother, he's not too fussy. Take care and thanks again.

 

Jackie s.

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I'm sorry to hear that so many of us have this extreme bloating, however it is nice to know others who also have this problem.   

 

I've had scleroderma and have been taking Prednisone since 1997.  I never had this "huge" stomach until  last January.  I saw my GI doctor.  He has tried putting me on rifaximin and has given me a diet that is low in compounds (which are mainly carbohydrates).  Neither seems to have worked. I've asked him to give me x-rays to see what's causing the "9-month pregnancy stomach".  His nurse told me he is going to call me tomorrow morning and talk to me before ordering any tests.  I have learned so much from reading your blogs. I'm going to tell my doctor about how "Reglan" has helped some.  I appreciate the suggestion that it should be taken in small doses at first for I do react to some drugs.  

 

Scleroderma has created scar tissue in my lungs, so I use oxygen when I went to the gym.  For the last two months, I haven't gone to the gym because of extreme weariness and shortness of breath.  At 68, I have always been an active person, however lately I've felt like 100 years old.  I would love to hear from anyone.    

 

Lucia.

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Hi Lucia,

 

Welcome to these forums!

 

I'm sorry to hear that you have been suffering with bloating and stomach pain and I've included a link to our medical pages on Gastrointestinal Involvement and Gastric Antral Vascular Ectasia (Watermelon Stomach), which I hope you'll find interesting and informative.

 

I can sympathise with the lung involvement you're suffering; like you, I've always been an active person and I enjoy going to the gym, but thankfully, I'm able to work out successfully without oxygen.

 

Please keep posting and let us know how you're faring.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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I've had the bloated stomach for many years and was diagnosed with IBS, but I feel sure it is Scleroderma related. I have found eating smaller meals more frequently helps.

 

Can often be food or other substance problems such as alcohol, nicotine, gluten, lactose or dairy products.  Try eliminating all of these for 4 weeks, then reintroduce one at a time to see if one of these is the cause.

 

Plenty of exercise is also good for the digestive system, so try to do as much you can (good for your circulation, heart and respiratory system too).

 

Hope this helps.

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