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omaeva

flesh loss?

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My doctor told me I was losing flesh from my fingertips, especially those that get affected by raynauds the most. They are just really flat on the tips and I always thought it was from pressing too hard on my pens and pencils :unsure: . Can anyone explain how that actually happens? I haven't been able to find anything on this site, maybe I'm not looking well enough?

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Hi there,

 

I don't know the actual mechanics, but it's happening to me too. I can see where the skin is kind of pulling away from the nail on some fingers. Ask your doctor, he/she should be able to explain. I think it's the loss of blood flow, after awhile the vessels actually shut down and no blood gets delivered. Usually it results in gangrene, but maybe this is a lesser (thankfully) form? Maybe it's LESS blood flow instead of NO flow? Maybe someone else will know..mine are also tender and sometimes numb. Hope you're well today.

Peace,

Karen

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Skin actually pulling away from the nail? As painful as that sounds that's interesting. Mine is more like the finger pads are disapearing

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Hi Omaeva, I have lost the fat pads from some but not all of my fingers, It was one of the criteria on which I was diagnosed with SSc. I actually think they had been like it for a long time , but I never really gave any though to why some fingers were elegantly tapered at the end! I had noticed though that I was having difficulty opening the thin palstic bags that you put veggies etc in at the supermarket - I assume that was why. I think that it is just lack of blood supply to the fingertips that causes it.

They don't really seem to have got any worse over the last 2 years since I was diagnosed, but do tend to get a bit sore.

Lizzie

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Hi Omaeva,

 

My fingers still have the pads, but I've lost the ones from my feet. Sometimes it feels like I'm walking directly on bone. I now chose my shoes by the amount of cushioning the soles give, then add a sheepskin liner for a bit more softness under foot.

 

They seem to call this 'pulp loss' and I've done a Google search looking for cause, but didn't have any luck either. Curious~

 

JJ

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