Alice02

Calcinosis Cutis

3 posts in this topic

Hello everyone, I have Systemic Scleroderma for many years. In additional to that I also have Calcinosis Cutis. I had many surgeries over the years due to infections I get from this calcinosis cutis. They kind of spread all over my body, my hips, knee, index finger and thump. I need help from anyone who suffered from the same painful calcinosis to please give some advises on what has help them to cope with?

 

 

Much love, Alice

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Alice I have caluim depostis too , I dont really do anything for them but keep an eye on them. The only time I had sugery to remove them when they were on my right knee and I couldn't keep the infection out. Sam


Sam

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Dear Sam,

 

Thank you for your respond, I appreciate. I have so much calcinosis cutis and get infections most the time. I have a big one on my hips and it just keep on growing. I have been on so many medications, nothing has worked. How is your appealing with SSDI went?

 

Warm regards

 

Alice

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