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Karenlee

Test results, consultation questions

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Karen,

 

Well, that's a lot to swallow. It's always so good to have the diagnosis, but it's never an easy one. We're all here for you. Let us know how you are doing.

 

Take Care,

Bunky

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Hi Karen,

 

I am sorry that the sclero diagnosis has been confirmed, but at the same time happy that you finally know and can move forward from here. It must be a lot to take in at the moment :unsure:

 

You are in my thoughts, take care.

 

Karen

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Karen, I am happy you were able to get your questions answered. For some reason we get a bit of relief when we have a true diagnosis and then can explain to others what it is that we have. Some of our friends here say it can take 4 to 6 months to feel a difference with the Plaquenil. I hope it starts to help you feel a difference quickly. Now you can start your next set of questions. Changing them and putting them in order of importance. That is something that most of us do. I leave several lines between questions and as new questions come alone I put them in the empty areas by importance. Then, a few days before my appointment I go through them and mark off the ones that I no longer need answered because someone here was able to answer it for me. Then I rewrite my questions once again leaving space for any answers. Have a nice day. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Thanks everyone. Your input really helped with me taking notes and asking tons of questions. It's a great feeling to have you all to turn to :)

 

I'll keep you updated as to how the meds are working.

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Karenlee:

 

I'm usually quiet at the Doctor's office because I'm still in that "I don't want to know" mode.

 

Since I know I "have to know", I usually bring a bold friend who flat out has a million questions and no problem asking them. Apparently according to HIPPA laws, I have the right to have a friend or relative in the room and they can be part of the conversation and procedure observances if I so which, so that's what I do.

 

I have a lot of bold friends, so I take different onces each time and the doctor and nurses are now on a first name basis with them too!

 

Linda


Tru

 

It is what it is...........

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