Jump to content
Sclero Forums
Peggy

Lung Tests

Recommended Posts

I had my 6 month PFT test done and haven't been able to find out if they are worse or the same. I have called my doctor 3 times for these and now she's out for 10 days. Does anyone know how to read these and can maybe help me decipher if they are good or bad. I know we're not doctors but I know that there are a lot of you that are so on top of these things and know exactly what you're looking at and can tell if it's good or bad.

 

Thanks.

 

Peggy

Share this post


Link to post
Share on other sites

Peggy,

Here's a great site that I refer to all of the time.

 

Interpretation of Pulmonary Function Tests.

 

This link and other can be found on our Pulmonary Involvement page.

 

Hope this helps.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Peggy,

Do you have your previous PFT test. If you look at the previous test you can tell if the numbers went down or slightly up. Even if they went down, don't worry as there is a certain spread of "error" based on difference equipment or Technician. One pulmonologist told me there can be a 12 point swing and it still mean the PFT was the same as the previous one. Good Luck. Gidget

Share this post


Link to post
Share on other sites

I can tell the numbers went down and I did go that site that was referred to. Which one do you look at and what does it have to be in order to tell if you have lung involvement and just how bad that lung involvement is. I just had the lung tests and didn't have the outgoing appointment with my lung doctor. Should I be calling her office to read the results and get back to me? When I call my rheumatologist doctor she hasn't given me any results. The heart tests came back ok which was good. I just think that my lungs are getting worse and am just wondering what I'm looking at here.

 

Thanks and warm hugs.

 

Peggy

Share this post


Link to post
Share on other sites

Peggy,

It is good to expect your doctor to review your results with you, or call your doctor and say can you help me understand these numbers and how my present treatment is either stablizing or bettering them.

 

I don't think there's much we can tell you cause your doctor should know you best and knows how to respond best to any kind of significant change good or bad. My doctor thinks DLCO and Lung volume in my pft cross referenced with a CT scan are important for me cause I have interstitial lung disease. DLCO is diffusion and relates to the build up of scar tissue in my lugs.

 

If you doctor isn't responding to you or meeting your needs you might consider seeing someone else.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

You gave a link to "Interpretation of Pulmonary Function Tests" in this posting that is no longer functioning. Do you know the website? I am very interested in this topic and would love to see what the link said. Thank you.

Share this post


Link to post
Share on other sites

MilleFleur,

Thanks for bringing this up. We've added a couple of new links to our pulmonary tests section.

 

Please check out Pulmonary Function Testing at the Cleveland clinic and An Approach to Interpreting Spirometry.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×