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Toocher

Falling Down with Scleroderma

7 posts in this topic

unsure.gif My mom who is 75 years has suffered from Scleroderma mostly from her knees down and has recently been complaining of tight and stiff and hard to get moving days....alot lately. She had fallen a week ago and could not get up. Last night she fell and my husband and my dad had to help pick her up as her arms and legs were too weak. She also has systemic Lupus, Raynauds, CREST syndrome, Luekopenia and Hashimoto's. Only to name a few of these terrible Autoimmune diseases, my question is : can anyone offer information on her falling?, and if this is because of her legs shrinking, hardening, and just plain getting worse? Will we have to provide medical equipment for her to walk and not fall? She also has bouts of nausea, diareah, throwing up and then she is fine. She is constantly clearing her throat too. She has also experienced huge leg ulcers that have had to have skin grafts but are now healed since seeing a scleroderma expert. I would appreciate anyone's help, stories or information on the above issues. Thank you!

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Hello, Toocher. Let me welcome you to the ISN Sclero Forums. I am sorry to hear that you found us as a result of your mother's illness, but you have found the right place for information and support. Sounds like she has been suffering for some time now. It's hard to say definitively what causes the falls, but it could be a number of things including medication which you have not mentioned. I am not a medical professional and as always, her doctor would be the best person to ask. As for aid with walking, canes and walkers are not expensive and may be useful. There are many stories. Perhaps you will find some that will be helpful on our Patient and Caregiver Stories page.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Toocher, welcome to out forums. Your mother is going to one of the best, Scleroderma Doctors around and he should be able to help your family out on your mothers needs. Sorry to hear of her maladies. I don't suffer from her problems so I can't help you in that capacity. It may be time for a walker to help her if her strength doesn't come back. She is under great care. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Welcome Toocher!

I'm so sorry to read about your mother and all the problems she's having. She is lucky that she has you to help her out in so very many ways. In reference to her falling, it probably is that she is getting weaker. My mother is running into the same problems, but for different reasons. You might see if her scleroderma doctor could refer her to a physical therapist (PT). I'm sure your mother isn't ready for immobility (none of us are), so a PT would probably be able to help her out with various exercises that she could do at home to help build strength in both the legs and arms. In just 3 weeks my mother has gone from having 3 people get her out of bed to being able to raise up by herself onto her walker. She's in a rehab center right now and is getting PT twice a day.

 

Hopefully, something like this would work for your mom as well.

 

Please keep us informed on how your mom's doing.

 

Big hugs to you both,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Thank you so much for you suggestion. I will let her know and I think that we will try to attempt this PT. :) I guess this is how it all starts...I am not sure.

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Howdy Toocher!

 

I also have trouble with falling down. Recently I have been having mobility problems and falling is part of it. Maybe it's weakness, or simply the disease running it's course. I need a pretty high chair/sofa/whatever to enable me to get up. I use a walker/rollator everywhere, house, yard, when I'm out and about. It does help a lot and my doctor approves.

 

I also decided to start using an office chair in the dining room. I can adjust it and it also rotates so I can sit and then turn to be under the table without having to move the chair. Those chairs were so heavy I just couldn't sit and scoot myself under the table normally, like the rest of the world. I have to be careful as the chair will roll when sitting or rising, but that's easily fixed by backing it up against another chair so it doesn't roll.

 

If I fall onto the floor it's a lot of problems, as I cannot get up by myself. We have to call for help. Yuck. What a hassle. Had to call the fire department a couple of times, but it's not really a good option to call them all the time.

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