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I started having the odd bit of reflux about 6mths ago (before this journey started) and thought it was strange since I've never had a problem before. I thought that it was just the food I was eating. But more recently I am having reflux on a daily basis and it catches me unaware, like when I bend over to pick something up off the floor, or exerting more energy and then last night it happened just as I layed down to sleep. It was so quick and unexpected that I thought I was going to be sick.

 

I am wondering how slowly/quickly this appears in others that have this problem? And when does it become a concern? Also do particular food/drinks make it worse?

 

This road is certainly a long and confusing one, when you know something is not right but there are roadblocks at every turn. I appreciate all you wonderful people taking the time to answer these basic questions I have. thanks again :)

 

Karen

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Karen, now is the time to mention it to one of your doctors. It started that way for me and within 6 months I was sleeping with my bed elevated as I couldn't lay flat without the bile coming up into my throat. Some people get longer peroids of time. If you tell your doctor while it is mild it may prevent or ward off a more serious problem. Don't wait until it becomes a major problem or you get an ulcer from the bile burning your esophagus. Mild prevention now can possilby prevent major concerns in the future. No more eating or having big snacks within a couple hours of bed time. Just trying to stop that may help tremendously. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Karen,

 

I have had bad reflux for over 2 years now. Long before I was diagnosed with CREST but now that I look back it did start around the time I was getting the spotty face. Like you, I just thought I was eating/drinking too much or the wrong things. Then I noticed it happened even when I didn't eat. I was chewing on Rolaids like my plane was going down. Finally I broke down and started taking Prilosec which really helped.

 

Triggers for me are anything acidic like tomato sauce, any citrus juices, coffee. My Rhumetologist told me no more coffee which admittedly almost made my cry, but I have been weaning off of it slowly over the last 2 weeks replacing it with decaf.

 

I hope this helps in some way. Good luck to you.

 

Karen

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Karen,
Mine started very quickly as well. One day I thought it was everyone else problems, but then all of a sudden it became mine as well. I agree with Sheryl to see a doctor. It's probably time for a complete GI check if you haven't had one already.

As far as preventing it or at least reducing it, we have some information on Reflux prevention, diet and treatments. You might check it out. Keeping a log will help you to determine exactly what effect you. Unfortunately, you'll probably find you'll need to eliminate some stuff if you want to reduce it. Also, stop eating and drink a minimal amount of liquid at least two hours prior to laying down.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Thanks for that link Janey :)

 

I assume all you girls have altered your diet somewhat !!! how are we supposed to cope without CHOCOLATE and carbonated drinks !!! I love my coke and I love my chocolate and I love them even more when they're together :lol:

 

And I always take a cup of tea or hot chocolate with me when I go to bed. That and reading is my nightly routine !

 

Its not fair that we not only feel awful, but that we can't indulge either to make us feel better. Oh well...better get used to it, maybe this might help me to loose weight:)

 

Karen

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My reflux started quite suddenly. I sleep with my bed raised, but now I am on a drug which seems to be working really well. I can even have a midnight snack (which happens quite often when I can't sleep) and it doesn't affect me.

The first drug I tried didn't work very well but the new one works great.

 

Take care

Helen

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My reflux has been with me for years, and yes, I sneak chocolate but carefully.

I take medication and it has helped a lot. It's really important to take care of it because the doctors are afraid the acidic reflux can get into the lung and do a lot of damage - and that can be really harmful for anyone, much less us with scleroderma!

Ask your doctor for help, elevate your bed, don't eat for two hours before you go to bed and eat non acidic food and drink.

(I don't always do that, but then I always pay a price for it.)

Take care....

Annie N.

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