Guest SADIE

Question about bowel issues

8 posts in this topic

I was wondering if theres others who deal with bowel issues? like gas, bloating and diarhrea on a regular basis? I have this alot of the time. The good thing is now days its this way and not the oppisite. I had the oppisite when I first got Scleroderma.

Sadie

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Hi Sadie,

 

I had ulcerative colitis 16 years ago and they took out my colon. I also have celiac disease. I always have gas, bloating and diarreah. Are they related to scleroderma, it seems so. I know that since I've been on the celiac diet, I'm a little tiny bit better. But ANY carbs, cause the symptoms to be worse.

Karen

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Sadie,

I also deal with bowel issues. Mine have now changed also. I think because of the medicines we take it changes what happens in our digestive system. I still have gastritis and diverticular disease but take medicines to control this. Then I also have medications if I have a flare-up. So far my system is working, but it is slow at times. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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My mom also has had significant intestinal problems that you described as well as related to her esophagus. Last year she had diarreah and vomiting so bad she dropped to 87 pounds. For the past few years they have been treating her with prilosec and other stuff but last year it stopped working.

Her new rheumetolist started her on a therapy of on again, off again antibiotics because he said her colon was just so full of bad bacteria. So continues to eat a lot of yogurt now and then when the diarreah flares up she goes on the 10-day antibiotic regimen. The doctor also found the vitamin D and I'm pretty sure vitamin K, deficiency which he said was affecting her digestive system so the takes heavy does of that, calcium and the prilosec.

At one point a couple years again I suggested she take a digestive enzyme that I used to use for my own bloating and gas. It didn't work all that well for her but didn't seem to hurt. The doctors have told her that she needs the acidophalis so not sure you're doing that but might talk to your doctor about it and the enzymes.

Glenwood

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Sadie,

 

You can count me in too. However, I have noticed an improvement in the past year. Used to be I didn't want to even leave the house. Had my most clean and convienent restrooms around town mapped out in case of emergency. I don't need my map anymore - knock wood.

 

Hang in there,


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Sadie,

 

Oh boy yes. This is one of my biggest problems. I have to take action daily in order to make sure things work OK. Such as drinking a lot of water, eating enough fiber and most of the time taking Miralax nightly. I have to also be very careful about how badly I really want to take that pain pill or sleep medications as they constipate me horribly. Here is a link to bowel involvement that may help you out.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Sadie,

 

I just recently started having issues since my rheumatologist told me no more coffee. Now things aren't quite moving along like they used to. I used to be very regular when I had my morning java but now not so good.

I started having bran cereal every morning and drinking more water. Hope it helps. :(

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Very interesting. I have problems as well. Mostly with constipation and gas. I often times feel full for long periods of time after I eat. I just had an endoscopy and all was well. I am having a colonoscopy soon, but it sounds like it just may be par for the course. I too try to keep fiber in my diet but also have to take an OTC gas reliever and colace sometimes.


I may have Scleroderma, but Scleroderma doesn't have me!

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