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isobelle44

coffee elimination

20 posts in this topic

I saw on another post that a rheumatologist recommended no more coffee. Why would that be? Sharon

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Caffeine is one of the substances that tend to relax the lower esophageal sphincter (les) which makes it more likely for you to suffer reflux. Also chocolate and peppermint.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Sharon,

 

That why my Rhumetologist that told me about the coffee. He also said no more salt or sugar. I don't eat much sugar so that didn't bother me but giving up salt is gonna be tough.

 

Karen

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I was told that coffee upsets the stomach and exacerbates heartburn.

 

I had NOT noticed when I went a couple weeks without coffee, that my heartburn changed for the better. I was told I could still have coffee, but to drink it in moderation. Two or three cups daily suits me. Instead, of the two or three pots that I once drank on a daily basis.

Coffee is one of the densest antioxidants, I have been told more so than blue berries or broccoli. Dark chocolate and dried beans and dried fruits have more. Myself, I believe anything in moderation is always adviseable.

It’s the cream and sugar that can be the problem. Especially, around the waistline.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Sheryl,

 

I sneak a cup or so in every now and then. I just love it so much it's so hard to go cold turkey. As long as you keep your heartburn in check, I think like you said, it's ok to indulge just a bit.

 

Karen

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Aahhh yuk, cut back on salt!! I love salt too, that's bad news :o ...is that because of what it does to the arteries B) ? What about the sugar, other than sugar turns to fat? What does that do to us?

 

Thanks


Sending good wishes your way!

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Hi snowbird,

 

I would imagine the salt has inflamitory effects like water retention which can aggravate the joints as my hands are super puffy and swolen. As for the sugar, I'm not really sure why. I don't eat sugar so I didn't press the issue with my doctor for a reason.

I am a salt lover and over season everything so it's gonna be a challenge. Everyone keeps mentioning alternative seasonings :( I doubt that's gonna help much but it will be interesting to try different seasonings to make up for the lack of salt.

 

Karen

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Oh that is interesting. I can tell when I have had enough coffee cause I get jittery and also I can feel the acid. So I can't drink as much as I used to 3-4 cups is enough for me now to. Wow salt! that will be hard. thanks, Sharon

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Well - like everything else, it looks like coffee has its pros and cons. Sheryl, I knew it had antioxidants, but WOW - I didn't realize how much. Did a little research and found out it's HUGE. Unfortunately, for those of us with heart involvement, I found this little jewel.

 

Chronic coffee consumption has a detrimental effect on aortic stiffness and wave reflections.

 

Any type of caffeine can cause our blood vessels to constrict so my infusion nurse tells me NOT to drink coffee, tea or any caffeinated drinks prior to my infusions. Not sure how much it helps because he still has problems at times. Added to blood vessel constriction doesn't help our Raynaud's either. UGH!


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Ok so either I have a dr that is not good or not asking me the right questions-LOL

 

All these things Im reading about coffee, sugar, salt and the sun, I've never been told to stay away from any of these things, I will not ever give up coffee I only drink 1 cup in the morning and I do not have heartburn or reflux, I gave up cigs but will not give up coffee..

 

As far as the sun goes I asked my dr. about it b/c I love the sun especially going to the islands, someone told methat the sun is not good for sclero patients, anway when I asked my dr b/c I was leaving on a trip to aruba she told me to enjoy and have fun not to worry anout the sun.....

 

KellyA

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Caffeine is also a vasoconstrictor, as is the theobromine in chocolate. Thus both will exacerbate Raynaud's. A strong dose of chocolate will cause terrible Raynaud's for me, but smaller quantities don't seem to bother me.

 

Craig

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The rheumatologist I had (getting a new one next visit) told me to keep doing whatever I was doing....which is all of those things, humnnn B) ??


Sending good wishes your way!

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My dermatologist told me no sun also. He warned me not to try to "tan away" my Telangiectasia. But he never said anything about tan in a can :P

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Hi Everybody!

 

Like Snowbird... my rheumatologist (since 1991) told me the same thing. IMHO, I really think it boils down to one thing... we know our bodies better than anyone... what we can and cannot tolerate. If something exacerbates a condition, it's good to eliminate it.

 

I LOVE chocolate, but it doesn't love me... like Craig, on occasion, I'll eat small amounts. Because the antioxidants are good for us, I try to get as much of that as I can. I LOVE tomatoes and eat them, but in some "forms" they can really cause problems for me... it can really be frustrating!

 

Tanning... I LOVE to be outside when it's nice, but I don't sunbathe. Again, my rheumatologist leaves it up to me, as I not only have Scleroderma... I also have Psoriasis, so spending time in the sunshine is good... for that. To have Sclero and Psoriasis in the same body doesn't work so great, but I've found ways to cope with both! As I mentioned (in the DEN, I believe...) I did just fine... in the sun, but I kept it in small doses. After all, Waikiki Beach is a great place to be able to enjoy the sun! :rolleyes:

 

Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Susie-

 

As a side note my Father has psoriasis and sun and some ocean water ALWAYS makes his soo much better. He used to even bring ocean water back from the beach and soak his hands and elbows in it to help.

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I agree, ocean water definitely has healing effects. When my cuticles get infected I would go down to the beach and soak my hands in the salt water and it was very helpful with the infections.

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Wow I haven't posted for a long time, I really need to get on here more often. I read where a few people listed the sun as being one of the things we need to give up with scleroderma. My rheumatologist has always told me that the sun is good for me because of vitamin D as long as I wear sunscreen. I did read a bit about it after I read that post, I'm wondering if he says it's ok because I have no skin tightning. My sister in law even had a question on her state boards for nursing about the sun and sclero, the answer was that it is good for sclero patient. I hope I don't have to give up sun too! That's the one thing that always makes me feel better when I can get it.


Diana

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I have always been told by the rheumatologist that I should avoid the sun. I have minimal skin involvement. I have a beautiful inground pool and I don't get to use it as much as I would like <_< because of that. I tan very easily, I have all of my life, and one summer I had onbly been in it a few time when I had my regular visit with the rheumatologist and he was not happy with me :rolleyes:


Peace :)

Barbara aka relicmom1

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omaeva,

I really appreciate that information in regard to your dad. No wonder I loved it in Hawaii :rolleyes:

 

Karen,

WOW... that is GREAT! Further reinforces how wonderful the ocean really is!

This is very thought provoking!

 

 

beaty71,

Vitamin D IS good for us... My situation is just a bit "different", in that I have both Psoriasis and Sclero... they happen to be "arch enemies" of one another. You brought up some interesting points... about Sclero and the sun, though. I'm thinking that this is an individual thing... What may work for one... may not for another.

On a good note, I am so glad you don't have skin tightening!

 

Hugs to all of you,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Just want to point out that it was my Dermatolgist that said to stay out of the sun. My Rhumetologist never mentioned the sun, just the coffee, sugar and salt. I imagine it's internal vs. external. So, the more doctors you see, the more confused you'll be. :P You just have to remember to mention what one doctor says to the other and see what works best for you.

 

I live in New York on an Island surrounded by beaches with brutally cold winters. Seems a bit cruel to me to stay away from the sun/beach when the summer finally rolls around. I guess a good strong sunblock, big floppy had and an umbrella would do the trick. :D

 

Karen

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