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coffee elimination

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Hi Sharon,

 

That why my Rhumetologist that told me about the coffee. He also said no more salt or sugar. I don't eat much sugar so that didn't bother me but giving up salt is gonna be tough.

 

Karen

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I was told that coffee upsets the stomach and exacerbates heartburn.

 

I had NOT noticed when I went a couple weeks without coffee, that my heartburn changed for the better. I was told I could still have coffee, but to drink it in moderation. Two or three cups daily suits me. Instead, of the two or three pots that I once drank on a daily basis.

Coffee is one of the densest antioxidants, I have been told more so than blue berries or broccoli. Dark chocolate and dried beans and dried fruits have more. Myself, I believe anything in moderation is always adviseable.

It’s the cream and sugar that can be the problem. Especially, around the waistline.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Sheryl,

 

I sneak a cup or so in every now and then. I just love it so much it's so hard to go cold turkey. As long as you keep your heartburn in check, I think like you said, it's ok to indulge just a bit.

 

Karen

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Aahhh yuk, cut back on salt!! I love salt too, that's bad news :o ...is that because of what it does to the arteries B) ? What about the sugar, other than sugar turns to fat? What does that do to us?

 

Thanks


Sending good wishes your way!

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Hi snowbird,

 

I would imagine the salt has inflamitory effects like water retention which can aggravate the joints as my hands are super puffy and swolen. As for the sugar, I'm not really sure why. I don't eat sugar so I didn't press the issue with my doctor for a reason.

I am a salt lover and over season everything so it's gonna be a challenge. Everyone keeps mentioning alternative seasonings :( I doubt that's gonna help much but it will be interesting to try different seasonings to make up for the lack of salt.

 

Karen

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Oh that is interesting. I can tell when I have had enough coffee cause I get jittery and also I can feel the acid. So I can't drink as much as I used to 3-4 cups is enough for me now to. Wow salt! that will be hard. thanks, Sharon

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Well - like everything else, it looks like coffee has its pros and cons. Sheryl, I knew it had antioxidants, but WOW - I didn't realize how much. Did a little research and found out it's HUGE. Unfortunately, for those of us with heart involvement, I found this little jewel.

 

Chronic coffee consumption has a detrimental effect on aortic stiffness and wave reflections.

 

Any type of caffeine can cause our blood vessels to constrict so my infusion nurse tells me NOT to drink coffee, tea or any caffeinated drinks prior to my infusions. Not sure how much it helps because he still has problems at times. Added to blood vessel constriction doesn't help our Raynaud's either. UGH!


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Ok so either I have a dr that is not good or not asking me the right questions-LOL

 

All these things Im reading about coffee, sugar, salt and the sun, I've never been told to stay away from any of these things, I will not ever give up coffee I only drink 1 cup in the morning and I do not have heartburn or reflux, I gave up cigs but will not give up coffee..

 

As far as the sun goes I asked my dr. about it b/c I love the sun especially going to the islands, someone told methat the sun is not good for sclero patients, anway when I asked my dr b/c I was leaving on a trip to aruba she told me to enjoy and have fun not to worry anout the sun.....

 

KellyA

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Caffeine is also a vasoconstrictor, as is the theobromine in chocolate. Thus both will exacerbate Raynaud's. A strong dose of chocolate will cause terrible Raynaud's for me, but smaller quantities don't seem to bother me.

 

Craig

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The rheumatologist I had (getting a new one next visit) told me to keep doing whatever I was doing....which is all of those things, humnnn B) ??


Sending good wishes your way!

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My dermatologist told me no sun also. He warned me not to try to "tan away" my Telangiectasia. But he never said anything about tan in a can :P

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Hi Everybody!

 

Like Snowbird... my rheumatologist (since 1991) told me the same thing. IMHO, I really think it boils down to one thing... we know our bodies better than anyone... what we can and cannot tolerate. If something exacerbates a condition, it's good to eliminate it.

 

I LOVE chocolate, but it doesn't love me... like Craig, on occasion, I'll eat small amounts. Because the antioxidants are good for us, I try to get as much of that as I can. I LOVE tomatoes and eat them, but in some "forms" they can really cause problems for me... it can really be frustrating!

 

Tanning... I LOVE to be outside when it's nice, but I don't sunbathe. Again, my rheumatologist leaves it up to me, as I not only have Scleroderma... I also have Psoriasis, so spending time in the sunshine is good... for that. To have Sclero and Psoriasis in the same body doesn't work so great, but I've found ways to cope with both! As I mentioned (in the DEN, I believe...) I did just fine... in the sun, but I kept it in small doses. After all, Waikiki Beach is a great place to be able to enjoy the sun! :rolleyes:

 

Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Susie-

 

As a side note my Father has psoriasis and sun and some ocean water ALWAYS makes his soo much better. He used to even bring ocean water back from the beach and soak his hands and elbows in it to help.

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