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LisaBulman

Had my bronchoscopy today...

11 posts in this topic

This morning I had my bronchoscopy, which is required for the study I'm enrolled in. This was not very fun at all. I could handle it, I always do. Now it is 8 hrs after I had the test and my nose and throat are still sore and I have a screaming headache! Everything went well except when they were in there they said I had erosion above my voice box, in my bronchial tubs and in my lungs from acid reflux. YUCK! I have an appointment with my GI doctor anyway but not for another month. I'm going to give him a call tomorrow. My rheumatologist advised me to take another pill(for reflux) before bed every night. Hope I can get some of the damage reversed. :huh:

 

Off to bed!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi Lisa,

 

Yeowsers. The erosions can heal, they just take time. Just read up on everything on our site for reflux prevention and management. But at least you have that test over with, at least part of the battle. And maybe your GI doctor will move the appointment up a bit, you think? It's worth a try.

 

I hope tomorrow is a better day for you!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Lisa, which study is this that they needed the bronchoscopy? How long will the study last? I hope you have healing with the reflux. I would get relief from my meds for reflux but never felt they were healing anything. I now after 2 years have hardly any esophageal reflux compared to before. So the meds do help. Keep us informed on what is happening.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Lisa,

 

Sorry about your having to go thru that test, I don't know if I'd have been able to do it. You are so brave.

Hopefully the erosion will heal quickly. Did the Dr's say they will check you again to check the healing progress?

 

Karen

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I know the erosion can heal, but I already have Barret's Esophogus on the lower half and I have been on meds for this for about 10 years or so. sad.gif Hopefully they will be able to get it under control soon. I do need to go back in June for another bronchoscopy for the study.

Sheryl, I am in the Pulmonary Fibrosis with Systemic Sclerosis
I will have 2 brochcosopies, 2 skin biopsies, 10 pft's, tons of labs as well as three infusions. It is a total of 31 weeks. Yesterday I received my schedule booked out until November.

I'm going to call my gastro...


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hey Lisa....

 

I got a diagnosis of Barrett's Esophagus several years ago, but oddly enough... with greater heartburn pain, I asked if I could double the meds treating my reflux. Upon doing so, my next endoscopy showed the Barrett's was gone, oddly enough :huh: Never thought that would happen, but am grateful!

 

 

I'm keeping you in my thoughts and hoping all of this helps.

 

Big Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Lisa, I also have bad reflux. I quite often will reflu in my sleep and aspirate...it's not fun ;) ( I've had aspiration pneumonia several times) I have not had a bronchospy as they say I only have very minimal ILD. I go for my bi-annual upper endo next week. When I saw my gastro last month, he increased my Prevacid to twice daily too. My insurance company at first refused to cover it at twice a day, but he fought them and won :) if only it was that easy for some of you fighting for treatments!! I commend you for taking part in this study!!!!


Peace :)

Barbara aka relicmom1

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Hey Lisa

 

I'm glad that part at least is over for you! Now, hopefully, you'll get around to feeling better in no time! Thinking about you, try to get lots of rest.


Sending good wishes your way!

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Lisa Darlin',

I hope by the time you read this your headache has subsided. Sounds like you had a really tough day both physically and emotionally. I hope tomorrow is a better today. Just when we think we're doing everything we can to stop that reflux, we find out different. Hope you get that appointment earlier with your GI.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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