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Karenlee

Quick (temporary) fixes for what ails us

25 posts in this topic

Hi everyone. I thought I'd start a thread for any hints, tips, tricks we have for CREST/Sclero symptoms. Nothing official or medical, just a quick go-to guide for releif. I have 2 that I'll share. And if you already know or do these, I'm sorry ahead of time Lol

 

For a Raynauds attack: Swing your arms around like propellers but not over your head, to the side, more like a windmill. It forces the blood back into your fingers if you are somewhere that you can't get warm or releif. I used to do it at my job (when no one was in the room lol) and it definitely worked. Plus it's a good little workout.

 

Acid reflx: Even though I take Prylosec, I sometimes have an acid attack at night in bed. I'll dash to the kitchen and chug a glass of milk. What a releif and it's instant and coats the esophogus so you don't have to wait for another ant-acid kick in.

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What a great idea!

 

My quick fix for my mild Raynauds--if I can't get into a hot shower-- I'll jump in my car and turn the heat up high, and take a 10 minute break in the parking lot, or use it to run a few errands for work, like Post Office or bank. I also bought a pair of gloves with the tips of the fingers removed, so I can work on the computer, but still keep my hands warm.

 

Tums are my mainstay for quick reflux relief, but I use milk, too.

 

Bunky

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Bunky I like the gloves idea. The tips still stay warm though? I'll have to give that a try.

Thanks

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Is it Raynauds that I'm starting to experience with my fingers and toes? I had a colonoscopy today and when I came to almost all of my fingers were numb (8 out of 10). I have been experiencing numbness of one or two at a time but never all of them. It must have been the coldness of the hospital. I massaged and rubbed my fingers and then I put them under my "bottom" :lol: When they started warming up I was being moved into a room so I asked for a warm washcloth. That seemed to help but it took a while. I hate that feeling though.


I may have Scleroderma, but Scleroderma doesn't have me!

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Hey Karenlee:

 

When food shopping in the winter, I take those hand warmers found in the athletic departments of stores. They are small and when the packet is opened, releases heat for about 3 hours. I put them in my palms and then can handle the cold cart from outside. Also saves embarrassment when hands turn white from the frozen food aisle.

 

At work, I would take an old pair of winter gloves and snip off the finger parts. Generally only one or two fingers would get hit hard by Raynauds, and I would just slip these little jackets on those fingers involved, so I could get on with business.


Tru

 

It is what it is...........

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Milk is great for acid reflux! Put a teaspoon of baking soda in there and warm it up, it's even better.

 

For hand numbness I do the windmill/shaking thing as well.

I also tend to keep hot coffee/tea around at all times.

 

Raynauds I like to stick my hands in the opposite sleeve and just stand like that since my upper arms tend to be much warmer.

 

Then for tiredness I try to eat something every two hours (carrots, applesauce etc) to keep my energy level up. So I ALWAYS ALWAYS have snacks of some sort.

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I use the baking soda and water, Milk?? never heard of that one.. sounds like it would bubble up in the micro... But the do tor gave me something to drink instead oif doing the baking soda water..

 

when I get cold I usually use my blow dyer or jump in the tub.. When I'm getting dressed and my feet feel chilled I take and blow air from my dyer into the sock and then stick them on my feet awwwhh feels so good. Becareful not to put on sock over the whole of the dryer it might kill the dyer..


Sam

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I am laughing at the windmill idea. I can picture us all standing around doing it. I'm going to try it.

Bunky, I also get in my car when I am cold!!! How crazy is that? I have my heater on when it's warm out.

I sip on hot water all the time to warm up. When I have a GI attack in the middle of the night, I drink a huge glass of water (I don't drink milk) with an antacid (if it's really bad, I try to steer clear of antiacids) and walk around for a few minutes. It usually subsides within a few minutes. My grandma made me these all cotton slippers and they are warmer than anything I have ever owned!! I guess because they are knitted so tight? They really help my feet stay warm. I use a heating pad year round to warm me up.

One last trick of mine for getting warm...snuggle with Sadie and Maxx!

xo

Tangelo

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Oh yeah, I snuggle too. If my husband isn't around (he usually works nights) I call my 2 dogs and my cat to come snuggle with me. My husband will come in in the wee hours of the morning and make comments about the "zoo" in the bed. But, hey, I'm warm!

 

Bunky :)

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Hi, all. Karen your mention of windmills reminded me that it is one of the major Ws on our

Raynaud's Rewarming Techniques page.

Think W-W-W-W-W-Warm!

Wiggle - Windmills - Warmpits - Warm Water - Warmers - Wax

But there is a warning about windmills of which we should all be aware:

 

Windmills: Warning for Scleroderma Patients

Swirl your arms around in the air, in large circles, until circulation returns. This can be very effective ! If causing a public scene bothers you, duck into a restroom to fling 'em around. Also use this method when other ones fail. But only do windmills after your doctor has examined you and ruled out underlying problems. If you have damaged blood vessels caused by Scleroderma, for example, this type of activity can aggravate the problem, according to Dr. Wigley.(1)


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Haha! Warmpits! That's too funny. My hands find every warm crevice they can :D

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When I'm cold down to the bone, I throw my blanket and pillow in the dryer (on High) while I take a warm shower or bath. Then I quickly slip into a very cozy full length robe and warm socks, and cocoon on the couch in the nice warm blanket and pillow.

 

It's pretty near guaranteed to fix Raynaud's, joint pain, muscle aches, and lull you off into a terrific nap, too.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I love all of your ideas, wind mills are the first thing my doctor told me to try giong on 8 years ago. I'm so clumsy that everytime I try them, I hit my sore fingers on something(ouch!) So of course don't be dingy, like me, make sure there is nothing around you. I do just swing them back & forth and wiggle around to stay warm if I'm not at home near my heating pad and blanket.


Diana

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I do the windmills too. My cat just stares at me when I'm doing that.I wonder what she thinks I'm doing?

Sadie PS-Karen, one of these days, i'll have my Dad take a picture of my cat.

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Hi. I rushed upstairs to tell my husband to drink milk, and that he will feel better. But he read a book about Anti-inflamatery diet and the book says that he has to avoid Dairy products-he used to love plain yogurt, also avoid tomatoes, potatoes, bread, and peanuts. and my husband used to eat 2 tomatoes a day, and loves the peanuts...so how can I convince him to go back to millk and other food...we knew he has systimec sclerosis 3 month ago, he lost a lot of weight since then, he is loosing muscles too...does he really need to have anti inflamatory diet...

Sorry I have no ideas to share, as this is new to us, but every night I put boiled water in a pot, and let him put his hand over the steam,-Not inside the boiling water :)- and cover his hand with a towel, so the steam stays inside....if it I very hot, you can remove your hand quickly and then put it back again...and I massage every finger with olive oil and then I put his hands under the steam again for 2 mins and I massage it again..he says he feels better, and that this reduce the stifness in his fingers. thats all for now.

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Hey Sadie, can't wait to see her. :)

 

I thought of something else. for the cuticle infections...

I get them really bad, no matter how much I wash my hands and keep anti bacterial creams on them, so I find that if I keep them soft so they don't crack, I don't get as many infections. (I suppose that's pretty obious lol) so I rub a cuticle balm on them a couple times a day and that keeps them from cracking. There is a specific one I use but I'm not sure if I'm allowed to say the name brand on the board, so if anyone's interested, just message me.

 

Karen

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Here I go again, but I just remembered another little ditty I thought I'd share.

 

For Telangiectasia, I use a vitamin K cream. It seems to have made them look a bit duller and not as bright as they were. I doubt they'll dissapear completely but at least I don't have to wear 10 punds of makeup to hide them like I used to, or waste money on laser treatment only to have the re appear.

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Karenlee (and Shelly the cat),

I am interested in your vitamin K cream. Is it a prescription? I have the worst complexion, thanks to sclero.

I have tried many rounds of laser to no avail. I am so sick of wearing makeup but if I don't, I look really really sick!!!

People even ask me if I have measles, etc. Nice, huh? Would you tell me about the cream, and how often you apply?

Thanks,

Jen

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Hi Jen,

 

No, it's not prescription. You can find it in a natural heath/vitamin store. Or, I would suggest maybe buying it online if you can because I found it less expensive online.

 

Funny you mention the measles because when I first started seeing them on my face my sister thought I was drinking too much and had gin blossoms. :P

 

Let me know if you are able to find some, it takes a while to work but I do notice a difference.

 

Karen

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Hi Jen,

 

One more thing I'd like to add to the Telangiectasia, I found that using a green (yes green) tinted cover stick on the spots covers them nicely. There is something about the green tint that offsets the red pigment, just remember to apply coverup/base over it. Lol You can find it in any local drug store in the makeup aisle. They have different pigments for dark circles or blemishes, but make sure you get the green one. Then dot it on the red spots and the Telangiectasia will not show thru the makeup.

 

Karen

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Thanks for all of the tips. I will be sure to try the ones I am not already using (and I am already using quite a few of them). I especially like the vitamin K creme for the telengiatasias (sp) as I have many on my cheeks. The only good thing is when I apply my mineral foundation, I don't need blush as the red from the spots shows thru just enough to make me look like I am blushing. As for the Raynaud's, I too try to keep my kettle on low most of the day and pour myself a mug of hot water and just wrap my hands around the mug. I've even done that in restaurants where I tend to somehow always be seated under the air vents...go figure. Just my added info to this page.

 

 

 

Much love,

 

Kim


Much love,

 

Kim

 

 

Be yourself...everyone else is taken.

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Hi Kim,

 

I wanted to try mineral makeup but didn't think it would be thick enough to cover the red spots. Now that you say you use it I may give it a try.

Is there a particular brand you find works better than others?

 

Karen

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Hi Karen,

I also use mineral powder make up. I like Physicians Formula, it's talc free mineral loose powder and it covers well.


Diana

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Diana,

 

Thanks for the reccomendation. I'll be sure to try it.

 

Karen

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