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Does anyone have Diffuse?

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Hugs back to you!! Remember, you can email me or message me anytime you want to talk, vent, or just shoot the breeze. We're all family here in my opinion.



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Just a little more clarification:

There are two main types of scleroderma: Localized (linear) and Systemic.
Under each type there are several subcategories.

Under systemic scleroderma you'll find limited, CREST, Diffuse and Sine.
Recent articles are starting to list CREST as limited. So it's looks like it's an on-going change in terminology and reclassifications. UGH!

You can go to this link and read a short paragraph explaining the differences between CREST, Limited and Diffuse. SINE is a form of diffuse without skin involvement. Both limited and diffuse can cause internal organ damage. Diffuse usually has more skin involvement and progresses faster than limited.

Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Sadie,


I have diffuse systemic sclero. I have interstitial lung disease as a result, which has left me with only 47% of my lungs working. I have raynaud's, of course, and I also have an overlap of Rhuematoid Arthritis.


I'm sure someone else already cleared this up for you, but I didn't read all of your responses, so here is my explaination.


With sclero, you can either limited(skin involvement of the hands, face, neck, and/or feet),or Diffuse(skin involvement all over the body).


Sysetemic means internal involvement, which you can get with either type of sclero. And CREST also can be found in either type, since it is just initials of certain symtoms.


I hope this helps some. Any questions? ask away!

Happy people don't have the best of everything, they just make the best of everything they have!


Warm and Happy to you! Vee

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