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Lady Deb

The doctor and tests go-around

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In March I wrote about going to a hematologist for shortness of breath and fatigue. Well, last Monday I went and he decided my iron wasn't low enough to order IV iron. I went back to my regular doctor on Tuesday and he referred me to a pulmonologist. He made a statement that maybe it wasn't psychosomatic since I had bad swelling(pitting edema) in my lower legs. And I'm taking Lasix 40mg twice a day.

This has been going on since Feb. and I feel like I've been pieced out to different doctors. I have been in the nursing field for 32 years and I believe in nurses and doctors and the entire medical field but this experience has shook some of my beliefs. I know that I'm not making this up regardless of what the test result show.

So I have seen in the past months My regular doctor, cardiologist, rheumatologist, regular doctor, hematologist, regular doctor and then now a pulmonologist. I have had blood tests, cardiac echo, pulmonary function, more blood tests & urine test. This week I am going to have a 6 minute walk test, cardio-pulmonary stress test and spiral CT done.

I did feel that my visit with the pulmonologist went well. He didn't treat me like I was psychosomatic.

I'm still working (somewhat) and going to school one night a week. Deep in my mind I hope that it's not anything that can't be treated. I trust that I can continue working. The one thing that I'm trying to do is take it one day at a time, one doctor at a time and one test at a time.

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Lady Deb,

I'm so sorry to read about the problems you're having with doctors, tests and everything else that seems to go with a chronic illness. It infuriates me when a doctor suggests that a symptom is psychosomatic or due to anxiety. Three years ago my rheumatologist said my most recent symptoms were due to anxiety. I looked him right in the eye and said "it's my heart - not anxiety!" He listened to my heart and sent me downstairs to a cardiologist. The next day I was getting a pacemaker for complete heart block! My rheumatologist takes me very seriously now!

 

Good luck on your tests next week. Please let us know how they go.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Sorry to hear about your struggles- remain positive. You sound like a very strong individual, and not at all 'mental'. It's wierd how we just know more about our bodies than our doctors - yet they don't want to listen to the person who can help us the most --'us'.

 

Good luck to you and I hope everything works out. Let us know how it all shakes out'

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Hang in there, Lady Deb.

 

Unfortunately, it's all too often easy for the doctors to say what was said to you... when an answer isn't readily available. Sad, but true.

 

I've been told... You should be depressed, with all of your diagnoses....

Hmmmmmm..... How 'bout frustrated because of feeling like a pinata, when the testss are being done... but all for naught?

 

I understand...as I'm sure most here do... what you are feeling. What is going on with you is real... not psychosomatic.

They'll get it figured out!

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Good luck Lady Deb, whatever you do, don't give up, I'm sure you will eventually find the right answers!


Sending good wishes your way!

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Lady Deb,

 

Good luck with your tests today. You will be in my thoughts. I know it is frustrating having t deal with medical professionals who don't believe us. I blame it all on all of the junkies who go from doctor to doctor looking to get drugs to feed their habits. Doctors have gotten skeptical and now it is us, the real patients, who suffer. Hang in there, we're all right here with you.

 

Much love,

 

Kim


Much love,

 

Kim

 

 

Be yourself...everyone else is taken.

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