Posted April 14, 2008 Today I got the REAL hug I have always wanted from one of my dear sweet sclero friends. Acutally, I got 3 hugs! :) I got to meet Cheri in person at the park in the town where she lives. We had a wonderful hour long talk sitting in "Betsy Big Rig" (to stay warm!) while the kids played on the playground. Since we have the same rheumatologist we're going to try to schedule our next appointments back to back and make a day of it in the big city. It would be nice to share the 2 1/2 hour ride and the ga$ and treat ourselves to lunch. I am looking forward to spending more time with her and getting to know her better. She is a beautiful person inside and out! Now if I could only hug the rest of you.......for now you're gonna have to settle for the old standby cyber hug. (((((((((((((((I love you guys too!)))))))))))))))))))))))))))))) Wish I could meet you all in person!!! Oh and Cheri gave me some good books to lose myself in. See what a sweetie she is? All for now, Take care, Barefut Serena Justis ISN Blogger International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Posted April 15, 2008 How wonderful for you, Barefut!!! Warm Hugs, Shelley Ensz Founder and President International Scleroderma Network (ISN) Hotline and Donations: 1-800-564-7099 The most important thing in the world to know about scleroderma is sclero.org. Share this post Link to post Share on other sites
Posted April 15, 2008 Barefut, That is so cool! You are so lucky! I would love to meet others from this board! Sadie Share this post Link to post Share on other sites
Posted April 16, 2008 Barefut, it is good that you finally were able to meet Cheri in person. Vee and I try to make our appointments on the same days so that we can spend extra time together. It makes the long waits between appointments fun. You have someone to laugh with while everyone else is sitting and starring at each other. You have enough in common you will find things to talk about. Enjoy you new friend. Enjoy your children. They are grown and gone before you realize it. Take pleasure in all the special moments. Let them know they are special and which moments you have enjoyed most with them. They will seek out new ways to please you. Each day is a gift. Cherish it my friend. Strength and Warmth, Sheryl Sheryl Doom ISN Support Specialist (Retired) ISN Chat Moderator International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Posted April 17, 2008 Barefut, It's wonderful that you got to meet Cheri! It would be great if more of us could meet each other. Heather is coming to my town in a couple of weeks and we plan to meet up and spend some time together. I can't wait! She eventually wants to move here which would be awesome. Big Hugs, Janey Willis ISN Support Specialist (Retired) ISN Assistant Webmaster (Retired) ISN News Director (Retired) ISN Technical Writer for Training Manuals International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Posted April 17, 2008 Hi Barefut and Hi to everybody else too, That is so funny that you posted. I got on here to do just that. I wanted everybody to know how lucky they are to have such a wonderful person on their team. Barefut is such a nice, warm person and it was so great to meet her. She is an example of what people say when they say everybody on the forum is so "warm, friendly, and supportive." We had such a nice visit and it was so great to spend time with her. I hope we can make our appts. together because then I'll get more chances to visit with her. :) The only thing good about this disease is getting to know the wonderful people who have it! Warm Hugs, Cheri Share this post Link to post Share on other sites
Posted April 17, 2008 It's great that you were able to get together. I don't know anyone in my area with Sclero. Have tried to find a meeting nearby by the closest one is on the East coast. I may have Scleroderma, but Scleroderma doesn't have me! Share this post Link to post Share on other sites
Posted April 20, 2008 I think it's great too...glad you both had a good time and are going to have many more 'good times' together!! Sending good wishes your way! Share this post Link to post Share on other sites
Posted April 20, 2008 Yes, Cheri and barefut... I'm so excited for you both! It would be nice... to be able to meet folks from this forum... I live in MT and the closest ones to me... are in WA state. The NEXT-best thing though... is PMing each other, which I do with friends here. Chat is also another way to get to know each other a bit better. Hugs Everybody! Susie :wub: Special Hugs, Susie Kraft ISN Support Specialist ISN Chat Host International Scleroderma Network (ISN) Share this post Link to post Share on other sites
