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smac0719

Fibromyalgia

13 posts in this topic

Good evening all. I suffer from fibromyalgia and my son (bless his heart) just massaged my shoulders for me. The massaging helps but hurts so bad I want to cry when he massages them. It seems to be getting worse as even the strap from my purse iritates my shoulder. Any suggestions on relieving the pain? I really hate to take another med.


I may have Scleroderma, but Scleroderma doesn't have me!

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Smac,

Sorry to read how much pain you are having to deal with. We do have a page on fibro treatmemts, most being alternative or non-drug therapies. Here's the link if you'd like to look at some of the studies. Fibro treatments.

 

I hope you find something that helps. The mud bath sounds interesting. :)


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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I sure wish I could give you some helpful advise but I'm afraid I don't have much. I also suffer from fibro and when I get a flair nothing seems to help me. I know you said you prefer not to take more meds and there are not many that help fibro pain. There is one that has been recently approved for fibro. I'm not sure we can give the name here. I'm sure your doctor knows what it is or pm me and I'll tell you. Sometimes a nice warm shower with the water hitting my shoulders and back give temporary relief. Hope you feel better soon.

 

Sherion

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I'm sorry you are going through this pain. I hope you can find some relief soon. For me, like Sherion said, when my fibro is acting up I find heat can be the most comforting. Massage can hurt so much, but it can be relieving after its over. I use a heating pad, or rice bag, and drink hot tea. When my fibro was the most severe, the dr. prescribed a seratonin reuptake inhibitor, and it helped with overall pain management. I only took it for a short time, but I haven't had a relapse of that constant severe pain, only flares, since I went off of it, and it's been four years.

 

Take care,

Bunky

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Hi Smac and all who suffer from Fibromyalgia.

 

I'm hoping you can find a purse that you don't have to wear across your shoulder. I'm not a candidzate for a fanny pack, becacuse I carry everything but the kitchen sink in MY purse :D . However, even carrying a purse in your hand can take a toll on your shoulder(s).

 

Heat definitely feels good, especially moist heat, the shower as so many find relieving.

I, personally ... like to stretch when the dog does, as she has a great regimen going on :lol: It seems to allevaite the tension that can build up in the body without our even realizing it!

 

My hubby got me a gift certificate for a body massage, but before doing so, asked if it could be gently done, as I have Fibro. He's surprised I haven't gone over to get the massage yet, but I want to have the entire day free so I can make a real day of it!! Also, I'm pretty sure I read this here... plus I know my stepson told me... that after the massage, drink alot of fluids, or a person can get really sore.

 

Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Thanks. I practically slept with the hot water bottle (the old fashion one) all night and it did help some. I will purchase a heating pad over the weekend and try that as well.


I may have Scleroderma, but Scleroderma doesn't have me!

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Hi

Let me first introduce myself. My name is Choice and I am a guy with Scleroderma. Briefly, I've been thru the chemotherapy and a heart attack and all of the other stuff but I'm still standing. I ski and snowshoe in the winter and hike and ride a bike in the summer. I am 52 and have had Scleroderma and lupus for 26 years. My wife of 10 wonderful years also has SD. We have been invited talk about living with the disease. I know I'm not the norm in SD.

 

Having said that, I am a massage therapist. Smac, if you'll take a rice bag or herbal bag.....I have one that folds over both shoulders and the neck....and microwave it according to instructions. Lay it on your shoulders prior to your son doing the massage. It will warm and soften the muscles. Then have him do lite strokes and gradually get a little deeper. This might not happen at first. Get your muscles accustomed to the touch. Sometimes just a firm grasp of the muscle will do more than a deep grab. I have shown massage techniques to other scleroderma sufferers and this one is a fave....as is hand massage.

 

I had some serious pain point issues in my scapula (shoulderblade) area and down my right arm. My doctor prescribed Lyrica which I take at nite. It not only lets me sleep, it relieves that pain so that I can work and garden and play with my grandsons.

 

I hope the massage advice helps.


~ You have to think anyway.....you might as well think big

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Thank you so much for the advice Choice! I will look for the herbal bag this week. I used to see them at a kiosk in the mall. My sons have been such troopers through this and it's my baby (he's actually 14) who treats me to the massages even though his fingers get cramped from my tightness. It worries him though because I am often in tears some times during the massage, but through the pain I do feel some relief if only for the moment.


I may have Scleroderma, but Scleroderma doesn't have me!

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All really great advice for pain relief - hope you find something that works for you smac. I have not been diagnosed with fibro. but I do have tender places everywhere - some that surprise me.

 

Wanted also to say welcome to the forums Choice. You have been living with sclero for a long time. What took you so long to find us? ;) I am glad to hear about how active you are. You are an inspiration.

 

Looking forward to learning more about you and your wife!


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Oh sweetness, my sons deserted me up the diagnosis of my illness. blessings your son and his help with what you need. What a blessing. What love. :)


Tru

 

It is what it is...........

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Smac, it sounds like you got some good advice...I also have fibromyalgia (but I'm lucky because it's not to severe)...I get massages and I also like the heat.

 

Choice, I would like to welcome you and your wife too! It sounds like you are doing quite well now, I'm happy to hear that! Is your wife doing as well as you are, if I may ask?


Sending good wishes your way!

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Hi, Choice. A big welcome to you and your wife.

 

My daughter gave me one of those long shawl-like wheat bags and it gets used constantly, switching back and forth betwen hubby and me. We should probably invest in a second one. As you say, it is good for pre-massage warming, but it is also good for removing that inner chill that comes along with Raynaud's. When I can't seem to warm up, I find putting the warm bag across my thighs, just above my knees helps break the chill.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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