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For quite some time now I've been having palpitations, in fact I think I mentioned this a while ago and gathered some useful information from you all --- as usual!

My rheumatologist appointment was last week and I've been so busy that I havent even had time to worry or even think about any kind of problem other than how to demolish a brick wall.

My rheumatologist wants me to have a 24hr heart monitor on account that I keep going quite dizzy! (My hubby thinks that's no surprise)

 

I was at the supermarket the other day and I had a funny feeling of things becoming very distant. My heart was fluttering rather than having a regular beat. My doctor thinks it's arrythmia? or something like that!

Problem is that it's doesn't always do it, in fact I've had no episodes today. I don't know if I want it to happen whilst I'm connected, but then again I hope it does -- does that make sense? I want to know what it is.

 

I guess the purpose of my post is to ask if any one of you has had the test and if so, how did it go and would they be able to diagnose a problem without the episode happening?

I'm confused and feel as though Iwould needto be strapped to it for a week to get a result.

 

I'm interested to hear your views!

 

Best wishes

Barbara xxx

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Hi Barb,

 

Sorry to hear about your flutters.....are you sure it isn't from looking at your cute hubby? hehe

 

Seriously, yes I have had those off and on for years. I had a 24 holter monitor and unfortunately I didn't have any of the episodes while being hooked up. You need to have them while you are hooked up or they have nothing to diagnose. The next step which is much better is something called a "King of hearts". You actually wear it for 2 weeks and most people will have episodes during that time. I however didn't, so they did a stress echo which still showed nothing other than having a prolapse in my mitral valve. They finally came to the conclusion that my flutters/palpitations were from stress. If you are trying to get through a brick wall, then maybe you are stressed! :)

 

Anyway, hope they can figure out something for you.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Barbara, in 2001 I had several heart palpitations episodes, I went to emergency room For three nights in row and they monitored my heart and find nothing. When I show up for third day to the emergency room the nurse looks at me like I was crazy. I read a lot medical books, just about everything I have, I learned that breading exercises does help and since then every time I’m having heart palpitations episode, I just start my breading exercises in less than minute I fell better. However, I am considering in the future taking a serious heart test.

 

 

Much love

 

 

 

 

Alice

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Hi Barbara ,

 

Gareth wore a heart monitor (last Jan for 2 weeks) when he was complaining about how hard and fast his heart was beating. Fortunately, it showed nothing out of the normal and they decided he was having esophageal spasms. I am sure you know the difference over what Gareth would 'associate' body wise, but the monitor is not hard to do at all.

 

Take care, Everyone.

Margaret

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I went through an episode this past fall where I started having palpitations and it felt to me that my heart stopped beating for a few seconds. The worst episode was when I was in a retail store and felt like I was going to faint :o . I tried to make my way to the register so someone would see me if I did. I didn't faint, but I was scared to drive home. I told my primary and she did a full work up..EKG, carotid ultrasound, echo, and 24 hr holter monitor. The monitor showed some abnormalities so they ordered a stress test. Because they could not get a vein to do the IV for the stress test (after 2 visits and 12 attempts), they sent me to the hospital for a Pet Scan. The end result was I have a premature heart beat. My cardiologist told me to stop caffeine. I did drink coffee, but not every day. I also drank diet soda, but also not daily. I didn't realize it had caffeine. I can honestly say I have seen a big change. I used to have palpitations daily, but now I only have them occasionally. He also prescribed a beta blocker, but since my blood pressure already tends to run on the low end I didn't take it. He was ok with it.

 

I hope your palpitations aren't the result of anything serious. I will keep you in my thoughts.


I may have Scleroderma, but Scleroderma doesn't have me!

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Seems like you've all had your share of heart problems, and I thank you all for sharing.

Smac! I drink coffee, lots of the stuff! and maybe that's the answer?

Margeret! I know what esophageal spasms are like, but they don't feel like that, in fact mt GI told me that the aorta can be felt beating very strongly if you are quite thin and can sometimes be mistaken for a rapid heart rate, perhaps this is what Gareth has felt?

 

Sweet! You gave me some very good information a while ago and from what I read it seems very close to how I feel when I have an episode of fluttering, dizziness and flushing.

I haven't had an episode since last week and my rheumatologist will think I'm barmy if the heart monitor doesn't pick up anything. I suppose the best outcome is to find nothing and then it will mean I'm okay!

 

Thank you all most sicerely for all you input and I'll take your advice for sure!

 

Best wishes as always

Barbara xxx

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Hi Barbara, i've been having similar symptoms for the last six months or so. As I also had pitting edema in ankles/feet , the rheumatologist immediately thought PH. Thankfully do not have it, but the palpitations continued. I suggested that they and the edema might be due to the high dose of calcium channel blocker I was on, so they reduced the dose by half. Also had ECG which showed nothing and am due to have a holter 24hr tape like you, however since reducing the CCBs ( Nicardipine) palpitations have disappeared, even though I'm as stressed as ever!

Lizzie

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Could be?. The doctor did some blood work and I heard her specificaly mention a thyroid test!

Thanks for your input!

 

Best wishes

Barbara xxx

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Hey Barbara,

 

When my 10 year old was just a baby I had a lot of the same symptoms you are describing. I wore the Holter Monitor and the only thing that showed up was a rapid heartbeat about 3am - aparently it was nothing to worry about...

 

I have been told by my gastro doctor that I have a murmur (he's the only one who hears it) and he says very nonchalantly, "probably the scleroderma going to work there." nice.

 

Anyway, I felt the same way you do - I wanted something to show up so I wouldn't look foolish - I was already a candidate for hypochondria at the time with all those early autoimmune symptoms.... ;) But at the same time I sure didn't want anything to be wrong either.

 

It's got to be even more nerve wracking and stressful when you have to deal with a doctor who doesn't take you seriously.

 

Please take it easy with your demolition!


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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I may not be as agile as I used to be be but, boy! did I move when the stone wall came crashing down -- unintentionally!

We were at a very critical point of demolition, me with a little hammer and hubby with a huge sledge hammer. One swing and the whole lot rumbeld and I shot off.

 

I have my appt for the heart monitor on the 8th. I reckon if it had been stapped to me earlier when the wall went -- they'd have had me on the cardio respiritory unit at Chorley hospital?

 

Thanks to you all for your very valued support as always.

 

Much love

Barbara xxxx

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