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How did the GI involvment start?

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Mine was subtle and slow, eating more and more and more chalky antacids till it was ridiculous. Then I moved to Zantac, Nexium and now I've added Reglan.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Mine was subtle and slow as well. I felt like food wasn't being digested and started having a lot of bloating. I then started taking digestive enzymes which in my opinion do much. Then I began having a hard time having bowel movements which is still a problem. I take Miralax on a regular basis.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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I also had a slow, subtle onset, was only in hindsight that I realised how long I had had GI problems (over 30 years before diagnosis with SSC!). In my late teens reflux-barium studies showed I had a very slowly emptying stomach, but I had no other symptoms. The problem disappaered after a year or two All through my twenties I had chronic constipation despite good diet, plenty of fluids and laxatives- even needed hospital treatment for anal fissure due the this. Also had frequent bloating (not related to premenstrual) that would make me look six months pregnant - that has continued ever since. I had no futher upper gut problems until about 4 years ago when developed frequent upper abdomen pain. An endoscopy showed that I had haemorrhagic gastritis - which was a bit of a suprise as it is usually associated with alcoholics or people who are severely ill, neither of which I was!. After a few weeks on a proton pump inhibitor there were no further problems. Then I started having trouble swallowing - I first noticed it when eating apples- they made me cough to the extent that couldn't eat them. The swallowing problem wasn't present all the time, just now and then. I was diagnosed with SSc two years ago - it was only then that I realised that all the gut problems might be connected to it. Since I was diagnosed I have developed reflux again and more frequent swallowing problems, plus worsening constipation interspersed with diarrhoea and bloating. Although now I have written it down I feel sorry for myself, it really is all little more than a nuisance to me most of the time.

 

Lizzie

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I first developed Irritable bowel syndrome over a couple of months where it just kept getting worse and worse. My heartburn/reflux just appeared overnight. I'd never had heartburn before in my life then one day it started and wouldn't go away until the doctor put me on medication.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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My heartburn came on slowly. I was prescribed Prilosec for a short course but found out I could not be without it.

 

My IBS/bowel issues cropped up just before my gallbladder was removed 3 years ago and aparently are here to stay.

 

The surgeon who removed my gallbladder told me that proton pump inhibitors have side effects that mimick IBS - but so does the sclero so it's a double whammy.


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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