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Disease Management Offered

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Anyone here using a disease management option from their health care plan?

 

Yesterday I was offered this option by my plan and am wondering about the experience of others. Has it been helpful? Harmful?

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I was offerred this by my plan too a few years back so I thought I would give it a try. It was a joke. A nurse would call be every so often, always at an inconvienent time, and ask me questions like: What medications are you currently on? How are you eating and sleeping habits? When was the last time you saw your dr? Are you under any stress? How is your raynauds? Then they would send me news letters about how to reduce stress and how to manage my raynauds. Overall I thought it was ridiculous because I was more educated with my disease than they were. I eventually cancelled it.

 

That's my story...

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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My experience was very similar to Lisa's. It became like an annoying third party.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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I'll have to say I had the same type of expierence with mine, just plain annoying. The nurse assigned to me didn't have a clue about sclerderma. I was teaching her more than she was helping me!!


Peace :)

Barbara aka relicmom1

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I haven't come across anything like the disease management plan you decribe here (the UK) - sounds like it is as good as useless in the way that it is being done but I think the concept is probably good- structured self-managment courses have been shown to be effective in other rheumatic diseases. In light of the evidence the Dept of Health in the UK has recently introduced, and is extending an 'expert patient' programme which is intended to teach patients with all manner of chronic diseases how to manage their illness. Don't know if it will be offered to us SSc patients.

Lizzie

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I was offered one too - but they persisted in trying to teach me about asthma, which wasn't my diagnosis at all (or I wouldn't be here, would I?)! I finally got them to stop calling, but somebody must have sold my name/address because then I started getting junk mail from drug companies - still dealing with asthma. Oh boy, frustrating? Yes.

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I don't think this is the same thing, but I was offered a "case manager" from my insurance company. It is a nurse that is very familiar with scleroderma. In fact, so familiar that she has pushed through approvals for items that are not normally approved because she understands the uniqueness of my situation. For example, she got approval for my cardiac rehab even though I've never had a heart attack which is the primary condition for approval.

 

The only time she has called was when I was hospitalized. She talked to the hubby and after asking about my condition, offered her assistance in any way. She's been priceless!

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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