truman

Disability Doctor Visit

24 posts in this topic

My boyfriend told me to call SSA yesterday. My caseworker's name and phone number were listed on the doctor appointment letter. He said to call and tell them of the other two operations that they are not aware of.

 

Calling SSA here in Jersey is like placing a call to a non working number. I called and got a taped message from an individual who does not identify himself or the agency and just tells me to leave a message. I left my name, case number, phone number and the reason for my call. I received no call back. I will now call this number and leave the same message every day if necessary, until I get a call back which I do not believe I will.


Tru

 

It is what it is...........

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The caseworker from Disability called me backed today. He was very pleasant and said he was glad I called him with the new information about the second and third operations. He said he was also going to follow up with the surgical unit, as they had not supplied him with their information.

 

He seemed caring.


Tru

 

It is what it is...........

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<<The caseworker from Disability called me backed today. >>

 

Hi Tru ,

 

That is good to hear....especially since you said he actually seemed to care. Best wishes that everything goes through OK.

 

Take care, Everyone.

Margaret

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I'm glad he called you back and actually was caring and working on your case. I'm sure he'll see you really deserve to have your disability.

Sending Good luck wishes your way.

Annie N.

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I've been down and out this week so I am late in posting to you but it still comes with the same feeling. I am so sorry you have to deal with all of this. You should have been approvede right away with the diagnosis of sclero. When I applied my worker told me that it was listed as one of the diseases that should have an expedited "compassionate" hearing for approval due to the nature of the disease. I really hope that you will receive an approval and not have to go through an appeal. My thoughts are with you and you hang in there. You have a great disposition and attitude about it and that's about all you can do now.

 

Warm hugs,

 

Peggy

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Glad you're keeping us posted, tru...

 

As Shelley posted awhile back and as Peggy pointed out... Scleroderma is one of the diseases that is accepted. I'm glad you got a call back form such a nice perosn... I'm sure he will follow through and get back to you when he gets the information from the facility that was remiss... not providing the information earlier.

 

As is said... 'Good things come for those who wait'... But we all have first-hand experience in different cases... It can be pretty tough having to wait, sometimes :blink: !

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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SORRY TO HEAR OF YOUR VISIT WITH THE DOCTOR WENT SOOO

BAD. CAN I ASK, WAS IT A DOCTOR AT MUSC?? I THINK I WENT TO HER AS WELL AND THATS WHY I HAVE'NT BEEN BACK.

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Hi Phyllis:

 

No, I'm from Jersey. A friend of mine said all these disability doctors are probably screened at doing a basic visual and question and answer visit. This is probably why they are all the same.


Tru

 

It is what it is...........

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Hi Tru,

 

Sorry I am late in replying. Sorry you had such an experience with the doctor. I'm dumb founded as to why she gave you such a hard time when you clearly displayed your issues, but I suppose they are trained to be sceptical of all applicants.

 

Try not to go by her demeanor or questions/attitude. The woman I had was pretty un-compassionate and seemed to want to rush me out. She was clearly doing a job she didn't like for way too long. When I left the office I was reviewing it in my head on the way home and was thinking there's no way they are going to approve me. But low and behold within a few weeks I had my answer, so just hang in there and try not to sweat it until the letter or check comes in the mail.

 

Also, sorry you are still having those awful hives. I hope whatever the doctor prescribed works. I know the feeling of the hives and they can be maddening.

 

Karen

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