Jump to content
Sclero Forums

Worrysome symptoms

Recommended Posts


The chest pain and neck pain sound slightly alarming to me. I agree with those who say it could be symptoms of a heart problem. Please be careful and call your doctor and make him/her listen.

Wishing you well ~

Annie N.

Share this post

Link to post
Share on other sites



I agree that you should have it checked right away. Heart attackes do present differently in women than men and your symptoms are frighteningly like the symptoms women should look for. In the meantime, the lightheadedness could be due to low blood sugar. I know the feeling quite well being a diabetic and know when I feel that way, to get some sugar in my system to raise my blood sugar to a more stable level. Please don't rule that out either.

Much love,





Be yourself...everyone else is taken.

Share this post

Link to post
Share on other sites

Hi Barb,


I'm trying to get caught up here and your thread popped up!

Two things came to my mind, Barbs, because I've experienced similar things.


These episodes have happened on several occasions... during physical activity.

I got instantly weak... in my legs first and then all over... I attributed it to hypoglycemia,

so I stopped what I was doing and fixed a sandwich (protein) and added Powerade,

to increase the electrolytes/minerals. I never found out what caused it, but knew that

activity was done for that day.

I also had a quick drop in BP, due to the BP med I was taking, at the time. I experienced

that while hubby and I were taking a walk. I checked my BP when I got home and it was

VERY low... for me. Dr changed my BP med and that took care of that.


Have you ever had your carotid arteries checked before, Barb? Just a curious thought, as you mentioned

your neck.


I hope you find out what has been causing all of this for you, my UK friend!


Soft Hugs,


Special Hugs,


Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post

Link to post
Share on other sites

Hi Barbara:


I have experience the same thing more than a couple of times. I was worried about it being the heart. I had the 24 hour heart monitor done twice and nothing shows. I don't have any symptoms with the monitor, just a little heart racing sometimes.

Well, I tell my doctor to explain why this happens to me and they tell me that it could be anxiety. I don't know what to think about this because, when this happens, I don't fell anxious at all. It just happens!!! Add to that the sharp pain on the left side of my chest (they say is gas) and the numbness of my left arm.

I guess what I want to tell you is that even though your test may come normal, you have to insist to your doctor and tell him everytime you have one of this episodes.



Share this post

Link to post
Share on other sites

Hi Ani,


As I understand it, you are quite right about saying "I don't feel anxious at all -- it just happens!"


There is actually a physical basis for anxiety, such as what can occur with a panic attack. Often they occur totally out of the blue, when a person is not bothered or worried about anything at all.


Panic attacks are caused by anything that initiates a jolt of adrenaline to the system, which can be from excessive worrying but can also be from many other physical triggers, such as low blood sugar, physical exertion, inner ear problems, hyperthyroidism, and even some vitamin deficiences.


Symptoms of a panic attack can be just like that of a heart attack or similar ailments (and often, even worse, with an impending sense of doom added to it, as well). It's a bit misunderstood when it is just attributed to anxiety, since worrying or anxiety is actually not necessary prior to a panic attack (although it may certainly accompany the panic attack, understandably.)


Anyway, due to the very wide variety of possible causes of heart-type symptoms, it can take a lot of time and testing to narrow down the culprit and being told they are caused just by anxiety is an over-simplification unless a person is actually also suffering from an anxiety disorder that is unrelated to any physical cause.


Also, many of us with scleroderma also have Hashimoto's thyroiditis along with it. Sometimes thyroid status can change very abruptly, either by itself or by a change in thyroid medication brand or dosage, and a hypothyroid person can become hyperthyroid -- with the hyperthyroidism then triggering a panic attack, even if an extremely well-balanced person with minimal stress of any sort is relaxing in a mud bath singing "Don't Worry Be Happy" at the time! So also be sure thyroid levels are thoroughly checked, as well, and that the doctor considers all possible causes, not only the heart issues.

Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

Share this post

Link to post
Share on other sites

Barbs my 7 year old grandaughter is having those type of symptoms and wore the holer monitor for a week and all was okay they are now using a beeper and if she has a 'spell'my daughter calls it in and they check and tell her is its okay or whatever.he dad has anxiety attacks so they're trying to figure out if its that or a problem as her little heart just 'races'.She was the one we were bringing to school while staying there to take care of her mom-my daughter.I hope you can find out what your problem it does sound like blood pressure though.Mary

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...