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summer

Oxygen levels?

5 posts in this topic

In my other post I mentioned that I had a Gastroscopy the other day, I noticed the nurse taking my oxygen levels before I had the scope.

My oxygen levels sitting down was 99%, which is good. Many of you may remember that my PFT DLCO levels has steadily been declining in the last year.

 

I have been told that I either have PH or ILD, wouldn't that mean then that my oxygen levels in my blood would be going down?

 

Many thanks

Celia

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Celia,

I have mild ILD and PH and my O2 level when sitting is in the high 90's, but walking and exertion, exercise causes it to drop. If I don't have my oxygen on, it will drop into the 80's and even 70's. My O2 helps to keep it in the high 80's and low 90's when walking. Has your doctor walked you with the oximeter? Some lung problems become more apparent with exercise. You might ask about that.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Celia

I have either PH or ILD also and when I am sitting, my oxygen level is good also. Like Janey, it's when I exercise or walk that the levels drop.

:-)

Annie

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I was told if you 02 levels drop when you exercise it's typical of ILD.

I think PH is a result of ILD... I think?

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Peanut,

PH can occur with or without ILD. When it does occur it's not necessarily a result of ILD, but can be associated with under certain circumstances, one being "having a connective tissue disease" (like us). I found the following statements in an article in our Correlation of pulmonary fibrosis with pulmonary hypertension section.

 

Pulmonary Hypertension in Patients With Interstitial Lung Diseases.

 

"Pulmonary hypertension (PH) in patients with interstitial lung diseases (ILDs) is not well recognized and can occur in the absence of advanced pulmonary dysfunction or hypoxemia...Connective tissue disease-related ILD, sarcoidosis, idiopathic pulmonary fibrosis, and pulmonary Langerhans cell histiocytosis are the ILDs most commonly associated with PH."

 

It's always good to see you posting from Chicago! :)

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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