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zeigh

Face Rash

7 posts in this topic

Hi! Is this thread still alive? If so, I'd like to say that about six weeks ago, my face broke out into raised, red bumps. It's not acne and it's not talengiectasia (as confirmed by my dermatologist and my rheumatologist). We don't know what it is. The bumps are slightly raised, red, and they come and go quickly, changing by the day. They appear all over my face where the skin is hardening, as well as a bit on my neck. I have looked everywhere for something or someone to associate this condition with scleroderma. Has anyone else had this experience?

 

(By the way, I have diffuse scleroderma. Symptoms started a year ago and the disease has progressed quickly).

 

So has anyone heard of a scleroderma face rash or red face?

 

Thanks!

zeigh

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Welcome Zeigh,

This post may be moved and started as a new post. People who have been having your problem will respond and hopefully answer your question to the best of their abilities. Keep asking questions and reading and you will learn most of us quickly.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Periodically I get that red rash on my face. It's mostly on my checks, but a few dots on the chin as well. My hubby uses it as a sign that I'm not doing too well. It turns out he's right! When I get stressed or something physical happening like digestive problems or a few days of heavy fatigue and weakness, I break out with the rash. When I start feeling better it goes away. I do have a couple of talengiectasia lines on my right check that are permanent and we won't even talk about the ones on my legs. No more shorts for me. :(

 

Zeigh- Just wanted to join the others in say Welcome! Hope to learn more about you.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi, Zeigh. Welcome to the Forums. I see you joined some time ago - glad you finally decided to post. I hope you can find an answer to your problems. Have you and your doctors considered whether lupus might be a factor in this rash?


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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I have linear scleroderma on my upper leg, thigh, and across my hip. When it first appeared, I also had some red bumps on my face. They have now spread, and are there daily...never go away. They are small, slightly raised, and dry....like patches. They are on my cheeks, nose, upper lip, eyebrow, and forehead. They don't itch. Washing my face makes them redder, and so does wine. I've had shallow biopsies, scrapings and nothing shows up. Help!!

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Hi Mary,

 

Have you seen your scleroderma expert for your face, yet? 

 

Some people do get a linear/morphea combination.  But, I have never heard of washing or wine drinking as making morphea spots redder, so that does sound more like rosacea. UVA1 phototherapy seems to be the frontline treatment for linear and morphea now, so at least there are treatment options for you if it does turn out to be morphea.

 

Please stay in touch and let us know what you find out.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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