Jump to content
Sclero Forums
Peggy

Curling Fingers

Recommended Posts

Does anyone else have their tips of their fingers curling in. My right index and pincky fingers are really curling in and is quite noticeable. Am I to assume that the rest of my fingers will to and my hands will be those curved cupped like you see in pictures? When I hold my hands up sideways and look it seems that all of them are looking to "curl in" but not as bad as the right hand index and pinky. I was just curious if anyone else has this. I am assuming there's nothing I can do about it. Thanks.

 

Warm hugs,

 

Peggy

Share this post


Link to post
Share on other sites

Hi Peggy,

 

I dont have the curling (yet), but my Rhumetologist told me to have physical therapy on my hands to avoid the curling. I was given a script to go twice a week for 6 weeks. Then I suppose after they show you what to do, you can do it at home yourself. You should ask your doctor about it, as it may help avoid the curling from progressing.

 

Karen

Share this post


Link to post
Share on other sites

I do have some curling but mine were curled before I even realized it. My right hand is worse than the left and they are not nearly contracted as some others' are, but I can no longer lay my hands flat on a table anymore. I try not to sleep with them curled up, but it is a habit and hard to break. I also, was prescribed some physical and occupational therapy and went for 6 weeks with exercise given to do at home. I'm not deligent with them, but should be.


Much love,

 

Kim

 

 

Be yourself...everyone else is taken.

Share this post


Link to post
Share on other sites

Peggy:

 

Oddly enough, it's not my fingers, but I beginning to see one of my toes turn downward. Go figure.


Tru

 

It is what it is...........

Share this post


Link to post
Share on other sites

Kaycee, I have a question for you. What is the difference between physical therapy and occupational therapy? And which one would you reccomend over the other for our symptoms? B)

 

Thanks.

Karen

Share this post


Link to post
Share on other sites

My autistic son has had both physical and occupational therapy. For him at age 2, the physical was like climbing up stairs types of things, the occupational was putting coins in a piggybank type of stuff, fine motor skill things with his hands.

Share this post


Link to post
Share on other sites

Karenlee,

 

ez described the difference exactly. Occupational Therapy is more to help you do every day things in an easier of different way. So I learned different ways to for example open a carton of milk or grasp a door handle or even take a shower. For people like us, both are actually needed and work well together.


Much love,

 

Kim

 

 

Be yourself...everyone else is taken.

Share this post


Link to post
Share on other sites

Hi, Peggy,

My middle finger on my right hand curled without my even noticing it. This was several years ago. None of the others have doe it, although several of them seem a little bent.

I asked my doctor about PT and OT and she said the patients she had sent in the past had found the therapists didn't seem to know what to do about sclero and that it hadn't done much good for them. She did offer to write me a prescription anyway, but I didn't see the point if it hadn't helped others.

So, I'm interested to see that some of you think it did help.

 

Mary in Texas

Share this post


Link to post
Share on other sites

I was sent to both kinds of therapist in early days when only the inflammatory arthritis was present. The occupational therapist was most helpful, giving me an assortment of wrist and thumb supports, jar opening things and some little scissors for opening plastic bags, handles for the taps. Later, she even hand-delivered to my house a grabber tool which she didn't have in stock on the day. The physical therapist gave me a bit of paper with some exercises, didn't show them to me at all. Had me walk up and down, wrote something down without comment and gave me a container children's modelling dough to take home. The paper explained how to do a bunch of things with the dough which were supposed to increase flexibility. I still do the other hand exercises, but found the dough was too smelly to cope with. :(

 

My two index fingers are not curling exactly, but they seem to be twisting sideways.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

When my rheumatologist gave me the script for the PT, he was asking me what areas I would like them to work on. So I said, hands, knees and back. I have no idea what to expect. Yet another adventure around the corner. Maybe/hopefully it will help with my flexibility. I'm wondering about the OT if I should reqeust a script for that? I guess I'll see what the PT does first and take it from there. My joints are sooooo inflamed I can barely move so until the plaquenil kicks in maybe the PT will help.

 

Jefa, sounds like you found a great OT. She took the time too hand deliver a tool to your house! Very cool of her. :)

Share this post


Link to post
Share on other sites

I go to both OT and PT. I go 2x's a week for each and have been for about 3 years. OT works mainly with the hands. I start out with a parafin dip and heat, then do excersizes with putty. Then I work on upper body machines. After I am through with my routine my therapist stretches my hands. That hurts because he makes them go beyond what they are used to doing. When I am done it feels really good, though. In PT she works mainly wit my arms and legs. I do some stretching exercizes with the ball. There are some things I do on machines. She spends a lot of time stretching me. I am fortunate that I have such caring therapists who spend so much time with me individually.

 

It is my understanding that OT works mainly with the hands and sometimes the elbows and the PT takes care of the rest of the body.


ISN Artist

Share this post


Link to post
Share on other sites

My fingers are knobby at the joints, so as a result... if I go to point at something, my husband looks where my fingers "pointing" not where I intended it to point!

 

It sounds like we all have different things happening here.

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Peggy,

 

My name is Leslie and I am a newbie, I personally have experience curling in my hands and feet. It is very painful and scary, having no control of what is going on. My hands most of the time curl inwards by itself, it look deform and I have to pull it back to it's position. I heard that hand therapy works but most of the time I use a palm support band to help support my hands.

Share this post


Link to post
Share on other sites

Leslie R. wecome to our forums.

I am happy to see that you jumped right in and started communicating with us. I'm sorry that you are starting to have some hand and finger involvement. Keep stretching your fingers and hands flat on a counter or table. When you are resting or sleeping and you awaken to closed fists, then open them and be aware of trying to keep them flat. I look forward to hearing more from you and how scleroderma is affecting you.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×