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Another Raynauds Question

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Before my diagnosis I never paid attention much to my attacks (I had them several times a day, usually 5 or more. Never thought it was serious since I've had it since gradeschool). But I'm noticing now that I get different TYPES of attacks. When I'm at school in a cold room with AC I don't turn as purple, but tend to get more numb from the cold. But outside when it's slightly breezy (high 60's) I don't get the numb feeling but an overall deep, deep purple color, although my hands feel normal.


Also to warm my hands up in the AC room, running warm water over them doesn't help what so ever, just makes them go into the purple color, while with the other that's all I need.


Does anyone else experience something like this? Or what are you patterns of Raynauds attacks?

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I experience the same. I tend to think it's which coldness is causing the attack. If sitting in an air conditioned room while your body is adjusting gradually from heat to coolness, that's generally when my "numbness" comes. If reaching into a freezer or stepping out on a frigid day, the "sudden" snap in change will turn my toes and fingers the blue/black coloring and the "fireworks" display when the blood disperses back into the fingers.


In the classroom, why not use the hand warmer packets the skiers use. You can get them at Target, Walmart, etc. or via on line ordering. Just open the packet and the air keeps the little pads warm for about 4 hours. I have them for the feet too, but haven't had to use them this winter, being house bound.



It is what it is...........

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Raynauds is a puzzle to me too, omaeva.


I'm really sensitive to cooler temperatures, wind, A/C, etc. My body can be warm, but my hands and feet are cold most of the time, as a result of the raynauds.

The warm water usually doesn't work well for me, either.... It works best if I put them under my arms... eventually, they warm up. Once my hands get cold, it takes a long time to warm them.

The color changes take place and if that's going on, they will ache at times.




Special Hugs,


Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi . I find it can be amazing how little the change in temp it takes to make my hands and feet react. If I am in a moderately cool room my hands and legs can go stone cold. When working on the computer I have to keep a rug closs by. In class I wear mountaineers inner silk lining gloves which help to kep my hands warm and protect my fingers from those little cuts or bangs that take so long to heal and can go into leasions. I keep a second pair of suede fur lined gloves for when even that is not working. My pupils are so sweet they notice and ask if I want them to get my furry gloves. I especially need them for when there is a fire drill and iI have to go outside without a jacket. I find if I stay out to late in an evening It is really difficult to keep warm.

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