• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
fancyface

sclerosis of hands

11 posts in this topic

hey guys,

It has been a long time since I have talked to you guys! I am sorry for that and I have missed you all. I recently lost my mom to lung cancer. I have obviously had to put my symptoms and feelings aside to be with my mom during this time. It has been very hard........

 

Just recently I have noticed a change in my hands. I have noticed that from my "mid forearm" down to my hands that I seem to be sclerosing. my hands and mid forearms seem to be "condensing" and "getting hard". Is there anyone else that has experienced this. It is obvious from the mid forearm the difference in my skin and muscle. From the mid forearm and up my skin is still soft. From there down my skin is "hard" to the touch. This is very disturbing and makes this new diagnosis seem more real. I have been somewhat in denial all this time but the visible changes are becoming alarming.

 

Mel

Share this post


Link to post
Share on other sites

Hi fancyface:

 

That was my first clue to admit I did have the disease. From mid forearm down to hand, my right arm became condensed. It also became red, swollen and hurt from mid forearm up to elbow. My orthopedist, not knowing I have CREST put my arm in a soft cast for three weeks (not a bright idea thinking back). To no avail.....I went to a rheumatologist who automatically announced that I had CREST. That's how it stayed for a year, until the last couple of months and it's the same on the left side without the redness pain and swelling. My wrists up to mid arm probably measure 1 1/2 inched across, while the rest of my arm is normal. My right arm is hard to turn outward (as if to receive change from a cashier).

 

I do notice my ankles appearing the same as well. I'm not freaking out over it, because after everything else I been through lately, this is small potatoes as long as it doesn't bother me or interfere to greatly at this point.


Tru

 

It is what it is...........

Share this post


Link to post
Share on other sites

Mel,

I'm so sorry to read about your mother. The stress that you have been through may be the cause of your recent symptoms. Stress can do all sorts of nasty things to us, especially since we are already predisposed to just about anything.

 

Please make a doctor's appointment and have your rheumatologist check out the changes. Maybe once your start shedding some of the stress, things will settle down.

 

Big, big hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Janey,

 

I've noticed the same thing. It was brought to my attention at my endoscopy when the nurse tried to insert the IV in my wrist. I don't have an actual diagnosis yet, but it does make this thing rear it's ugly head like nothing else has, at least for me.

 

I also have been trying to ignore this for about a year and half now. I guess it is time to get busy.

 

I called the rheumatologist office. I couldn't get an appointment until July 25. I asked if there wasn't some way I could get in earlier for blood tests and a referral to a sclero. specialist. I'm waiting to hear back. HMO's are the biggest pain. They are great if you don't actually have to see anyone. Not so good when you begin having problems and need to see people in a timely manner.

 

I feel for those of you in managed health care of anykind.

 

Mando

Share this post


Link to post
Share on other sites

Hi Mel

 

I'm really sorry to hear about your mother. I can only imagine how difficult that must have been and still is for you. I agree with the others, try to see the doctor and have things looked at soon.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Hi Mel ,

 

I wish to offer my sympathies about your Mom. That has to be so hard and I agree with the others, that stress may be playing a part in your sclero. I will keep you in my thoughts.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

I to am sorry your mother passed away. I hope you can grieve and still keep your disease at bay. We can be a shoulder for you to lean on it needed. Keep us updated on how you are doing and any new developements in your disease. You must have Diffuse if you are sclerosing. We have to get used to every new issue as they develop. Maybe your doctor can put you on something to help soften the skin a bit. I don't know what is used to do this except stem cell transplantation. I hope it stops so you don't have another issue to deal with. We are here for you.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Fancyface,

 

I am so sorry to hear about the passing of your mom. I can only imagine how hard that must be to go through. I agree with Janey about symptoms and stress.

 

I too have very recently been having some 'weird' symptoms in my forearms and puffier hands than usual. I have a sensation in my mid left forearm like a

numbness or tightness - I really can't tell which - when I move a certain way. Don't know if that's like what you are feeling too? I'll be keeping an eye on mine - you should mention yours to your doctor.

 

Hang in there kiddo,


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi, Mel. I am so sorry to hear about your mom, sweetie. It will be rough for awhile, but try not to let it stress you out too much. As for your tightening arms, do mention it to your rheumatologist as you should for any significant changes. Keep us posted.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

my arms are solid from elbows to finger tips,my legs are the same,toes etc,its been that way since sept. im on medication for that. he said it will take two years to get back to anywhere normal as it was very aggresive.linda im not worried as my legs are feeling alot better than 6 mts ago..talk to your Doctor just in case. getting splits for arms and hands, not sure if it going to help.try anything once. linda

Share this post


Link to post
Share on other sites

Hi Mel,

 

First of all, I am so very sorry to read of your mom passing. My sincere condolences to you.

 

I agree with Janey, in that the stress you've been under for some time, would have alot of bearing

on your symptoms.

 

Please, take care and hope that things level out for you.

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now