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barefut

Welcome Debra

16 posts in this topic

Hi Debra,

 

I noticed your reply to Dave's post was your first. Welcome! So glad you have joined us.

 

Tell us a bit about yourself....have you been diagnosed with scleroderma?

 

Hope you are doing well and hope to hear more from you.


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Barefut- thanks for the welcome. I was diagnosed with systemic scleroderma 8/07. At that time my biggest complaint was swollen tight fingers which eventully caused me to go out on disability from my job (I am an Operating Room Nurse). Although the severe sclerodactly remains, my biggest challenge is GERD (Watermelon stomach) causing severe anemia. Actually today was my 5th upper endo with laser. Life has become so different. I am so grateful for the message boards. Although I might not post messages frequently, I do read them and gain support and education from others who have been through the same. I take tremendous comfort in hearing stories of healing and remission. Gives one hope!

 

Deb

 

P.S where is the spell check button to make corrections ?

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Thank you Andyko- I appreciate the warm welcome and support!

 

Deb

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Welcome, Debra1

 

I was diagnosed in 2006. I too have horrible GERD and watermelon stomach. I have had two major GI bleeds. I only had to have two anticoagulation treatments last time to stop the bleeding. I am so sorry that you are having to have so many treatments and are still anemic. Feel free to private message me anytime. My GI doctor told me last Friday that scleroderma has definitely messed up my GI tract and there are no more meds he can give me. Hang in there! I hope that this last treatment will do the trick.

Nan

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Hi Nan- Sorry to hear that you also suffer from GERD. I understand it is not one of the most common symptoms of SSD (thank goodness). It can be quite debilitating as you know. Hopefully your GERD is now under control with your 2 laser treatments. I'm keeping faith that this will be the laser treatment that works for me. Looking forward to chatting with you soon.

 

 

Debra

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Debra,

I would also like to welcome you to the sclero forums. Where is the spell check button? I have been hoping someone behind the scenes has been working on that. It is nice when we have all the amenities. That is the one button I would like above all else to see on the forums. I have to write everything in another program and copy paste over to the forums if I want half of my mistakes spotted and corrected. Someone on the forums might give us a button but it might not take us to a spell checker. Hah! Please someone out there listen to our pleas. I am sorry to hear that you had to give up your operating room job and go on disability. I hope you are doing much better now that you have time to rest and don't have the added stress in your life.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Spell check is available in all the major browsers now.

 

For example, for Mozilla Firefox browsers, go to the browser menu and select TOOLS --> Options --> Advanced --> General --> Check all my spelling as I type.

 

Internet Explorer users need to download a (free) spell-check plugin, such as IE7Pro.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Debra

 

I also wanted to say hello and am glad you joined us. I sure hope your treatments kick in and start working really soon to give you some relief.


Sending good wishes your way!

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Hi Shelly & Sheryl- Thanks for the web links to spell check. I just assumed that since misspelled words were underlined in red that there was a spell check. I'm such a terrible speller and of course I want to make a good impression with my new friends. This such a wonderful website. Thank you ALL for jumping in to give me such a warm welcome. Today was a rough one for me but just by chatting tonight you took my mind off the negatives and showed me the positive side of SSD (new friends).

 

Debra

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Hi there,

 

I just wanted to welcome you. The people here are great, full of knowledge, information and a willing ear.

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Hi Debra

 

Welcome to the forum. I look forward to getting to know you. This is a wonderful place for information, support and venting.

 

Karen

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Hi Debra

 

Welcome to the site, you will find lots of useful information & tips from everyone. I f you go into the Sclero Den you will find lots of posts about where people are from.

 

I'm one of the UK friends.

 

Take Care

 

Jensue

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It is always sad and wonderful at the same time when someone new joins us. Words cannot always convey those things that we want and need to say, especially with some like you-newly diagnosed. I was diagnose 01-04-07 with very agressive systemic slcero. My first year, I spent doing research so much so that it was detrimental to my mental state. What I am trying to say is that don't rush into things, I have and ended up making some rather serious mis-steps.

 

This forum is fantastic, but it's terrible that it has to exist. We are all here for you, through all of the changes ahead, any time you need a shoulder or two or three or.................................. you know what I mean. PM me if you'd like - maybe I can be that shoulder for you.

 

Warm and soft ones for you xoxoxooxoxxooxoxxoxooxoxxoxoxoxoxooxoox - TJ

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Welcome!! We are so happy you found us! This is a great website with very caring people on here!

Sadie

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Hi Deb ,

 

I just want to say welcome to the forum, also. Good nurses are hard to come by these days.........sorry you had to go out on disability. I joined the forums because my son (18 years old at the time) was diagnosed with sine scleroderma in 11/06. It's been changed to UCTD since he went on Plaquenil last June and his symptoms seem to have subsided for the time being. We found out when he developed esophageal dismotility. Never heard of Scleroderma before then!!!

 

Take care, Everyone.

Margaret

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