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LisaBulman

Earl Manns is Running for SCLERO.ORG!

27 posts in this topic

Running for SCLERO.ORG: Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. Posted 05-07-08. (Also see Donate Now, Earl Manns, and Sherrill Knaggs)

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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All of us can share in the excitement, as Earl Manns runs the Green Bay marathon in support of SCLERO.ORG -- and in honor of his daughter Mya (she has linear morphea scleroderma, and is 8 years old) and in memory of Sherrill Knaggs.

 

Donations are pouring in even though it just launched this morning. All proceeds go to the nonprofit International Scleroderma Network (home of Sclero Forums!) for stellar research, support, education and awareness for scleroderma and related illnesses.

 

It's easy to share in the excitement. Just donate to Sponsor Earl Manns in Green Bay Marathon and then start shouting here, GO EARL GO!

 

Also, please feel free to forward this message to all your friends and relatives, asking for their support.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Running for SCLERO.ORG: Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. Posted 05-07-08. (Also see Donate Now, Earl Manns, and Sherrill Knaggs)

 

Gold Sponsors: $ 500

Joe Eberle

Silver Sponsors: $100

Anonymous (1)

Cordy Mack

William Iannessa

Matt Kerekes

Jesse Otzen

David Woodburn

Boosters: up to $99

Clarice Boehmer

Alan Emahiser

Gene and Shelley Ensz

Mary Lally

Carrie Maddoux

Fred Nelson

Mary Ann Zabel

Donors updated 05-09-08, 11:20 PM CT


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Running for SCLERO.ORG: Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs)

Platinum Sponsors: $1,000

Anonymous (1)

Gold Sponsors: $ 500

Joe Eberle

Silver Sponsors: $100

Ed Donnelly

Cordy Mack

Neil O'Rourke

Deborah Quazzo

Boosters: up to $99

Maria Brumback

Alan Emahiser

Vietta Fuller

Brian Kennedy

Marcia Matson

Valerie Nomura

Janet Pantschoschka

Julie Stephens

Steffanie Younger

 

Donors updated 05-14-08, 2:00 PM CT


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Running for SCLERO.ORG: Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs)

 

Silver Sponsors: $100

William Iannessa

Frank Miller

Boosters: up to $99

Mark Genovise

Jere and Jana Miller

Amanda Nadolski

Donors updated 05-14-08, 9:00 AM CT


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Running for SCLERO.ORG: Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs)

 

Platinum Sponsors: $1,000

Anonymous (1)

Gold Sponsors: $ 500

Joe Eberle

Chris Sonetz

Silver Sponsors: $100

Anonymous (1)

Ed Donnelly

Cordy Mack

William Iannessa

Matt Kerekes

Frank Miller

Amy Narot

Neil O'Rourke

Jesse Otzen

Chris Palermo

Deborah Quazzo

David Woodburn

Boosters: up to $99

Clarice Boehmer

Maria Brumback

Alan Emahiser

Gene and Shelley Ensz

Mark Genovise

Tina Gibbons

Vietta Fuller

Brian Kennedy

Patty Kyle

Mary Lally

Carrie Maddoux

Marcia Matson

Jere and Jana Miller

Amanda Nadolski

Fred Nelson

Valerie Nomura

Janet Pantschoschka

Paul Sandilla

James Scalise

Julie Stephens

Stefanie Younger

Mary Ann Zabel

Donors updated 05-21-08, 10:00 AM CT

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Running for SCLERO.ORG: Sponsor Earl Manns in Missoula Marathon, July 13, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs)

Platinum Sponsors: $5,000

Gold Sponsors: $ 2,500

Silver Sponsors: $100

Boosters: up to $99

Kathy Brock

Gene and Shelley Ensz

Carol Kizior

Paul & Babbetta Scott

Norbert Solarz

Donors updated 06-20-08, 10:00 PM CT

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Go Get 'Em Earl!!

 

Thank you for all you do! Your dedication is amazing. Can't wait until you come to part of the country. I'll be there to cheer you on! (weather permitting of course.. you know with the raynaud's and all..)

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Running for SCLERO.ORG: Sponsor Earl Manns in Missoula Marathon, July 13, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs)

Platinum Sponsors: $5,000

Gold Sponsors: $ 2,500

Silver Sponsors: $100

Boosters: up to $99

Kathy Brock

Gene and Shelley Ensz

Carol Kizior

Paul & Babbetta Scott

Norbert Solarz

Donors updated 06-20-08, 10:00 PM CT

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Go Get 'Em Earl!!!

 

Thank for your help, support and determination! I really appreciate what you are doing.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Running for SCLERO.ORG: Sponsor Earl Manns in Missoula Marathon, July 13, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs)

Platinum Sponsors: $5,000

Gold Sponsors: $ 2,500

Silver Sponsors: $100

Sid & Sandy Strong

Boosters: up to $99

Kathy Brock

Gene and Shelley Ensz

Carol Kizior

Paul & Babbetta Scott

Norbert Solarz

Donors updated 07-02-08, 5 PM CT

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Running for SCLERO.ORG: Sponsor Earl Manns in Chicago Marathon, October 12, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs )

Platinum Sponsors: $5,000

Gold Sponsors: $ 2,500

Silver Sponsors: $100

Richard Friedman

Boosters: up to $99

Gene and Shelley Ensz

Donors updated 08-18-08.

 

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Running for SCLERO.ORG: Sponsor Earl Manns in Chicago Marathon, October 12, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs ) Reposted 09/02/08.

Platinum Sponsors: $5,000

Gold Sponsors: $ 2,500

Silver Sponsors: $100

Richard Friedman

Boosters: up to $99

Gene and Shelley Ensz

Donors updated 08-18-08.

 

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Running for SCLERO.ORG: Sponsor Earl Manns in Chicago Marathon, October 12, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Earl Manns, and Sherrill Knaggs ) Reposted 10/01/08.

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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The nonprofit International Scleroderma Network thanks Earl and Delana Manns for their comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. Posted 12/19/08. (Also see: Earl Manns and Donate)

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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The nonprofit International Scleroderma Network thanks Debra Barrales for her Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. Posted 01/02/09. (Also see: Donate and Earl Manns)

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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The nonprofit International Scleroderma Network thanks Silver Sponsor R. Hugh Fitzpatrick and Booster Sponsors Thomas and Gail Rhodes for their support for upcoming Earl Manns Marathons. These comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. Posted 03-09-09. (Also see: Donate and Earl Manns)

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Earl Manns is going to be running several marathons for scleroderma in the next month, with the slogan, “I’m running for those who can’t, SCLERO.ORG”. He is running in honor of his daughter, Mya, and in loving memory of Judy Tarro.

 

Judy Tarro, aka Jude The Grouch, was founder of SD World website and email list and was a loyal volunteer for the ISN, as well, serving as an ISN News Guide and ISN Artist up to the very end. She lived with systemic scleroderma for over 50 years, despite being on oxygen and caring for her aging mother for a very long time. Jude had diffuse scleroderma, Sjogren’s syndrome, pulmonary hypertension, and pulmonary fibrosis.

 

All the funds raised will tackle scleroderma with stellar and absolutely vital research, support, education and awareness by the nonprofit International Scleroderma Network at sclero.org.

 

We invite you to have your name written on the virtual wall of supporters by sponsoring one or both marathons. Here are the donor levels:

 

Ruby: Up to $99: Your name/company listed on sclero.org

Silver: $100-$499: Your name/company individually publicized on sclero.org

Emerald: $500-999: Your name/company highlighted in our newsletter

Gold: $1,000-2,499: Personalized 8.5x11 frameable certificate from sclero.org

Diamond: $2,500-4,999: Your name/company plus link listed on sclero.org.

Platinum: $5,000: Your name and logo on my marathon uniform and inclusion in all promotional materials.

 

Earl will be running two fundraising marathons for us. Since the first is such short notice, any donor this week will get sponsorship level credit for both this marathon and the next one as well; sort of a two-for-one special. He is running Sept 17-19 USAF Marathon, Ohio and October 17 in Kansas City, Missouri.

 

To sponsor Earl in both marathons, click here to donate online. We truly need and deeply appreciate your enthusiastic support as these times are especially challenging for nonprofits, yet the need for our services is higher than ever. Please join the excitement and lend your support today!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello!! Haven't been to the site for awhile as my sister (diagnosed with systemic a few years ago) is doing wonderful! Awhile back I read something about running for scleroderma and was wondering if it is a type of fundraiser, and when and where it is. Anybody with any answers? Would love to hear from you.

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Hello Pokey,

 

I'm glad to hear your sister is doing wonderful, despite scleroderma. Here's hoping her luck holds out!

 

We have had several "Running for Scleroderma" fundraisers, where Earl Manns was sponsored for running marathons on behalf of us, the nonprofit International Scleroderma Network. He's on a hiatus from running marathons for us, right now.

 

Our next big fundraiser will be Lisa Bulman's Scoring for Scleroderma Soccer Tournament, in Massachusetts, this fall. Meanwhile we need all the donations and fundraising we can get to tackle scleroderma, so if you want to donate or hold a small (or major!) fundraiser for us, we'd love to hear from you! You (or anyone) can just PM me or call our hotline at 1-800-564-7099 for more information.

 

An easy way to get involved is to simply donate and/or purchase items from our Sclero Shop.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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