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americanmike

Anybody Taking Prilosec? I Need Advice.

26 posts in this topic

Hi everyone--

 

My heart burn and reflux is getting worse, even though I've gotten used to sleeping in my recliner.

 

I'm taking Prilosec, and it helps although not completely. Sometimes I take 2 per day, and noted that this is done frequently by others.

 

Should I take 2 at the same time, or take them every 12 hours???

I thought 2 at the same time would be better since it's already timed released, and it would be good to have 2x the meds exerting a stronger anti acid effect.

 

Or is the reason to take 2 per day because, the 1 dose wears off before the full 24 hours.

 

And to be honest, 2 pills hasn't changed the relief level too much either way I take it.

 

Just hoping someone can elaborate a little?

 

Michael in Florida

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Michael,

I went thru several different meds for heartburn, indigestion, and reflux. The whole secret is to take them at least 45 minutes before a meal. They are suppose to get the acids in your stomach working to prepare for a meal to follow. These acids help break down the food and dispose of it quicker than not taking anything. The medicine continues to work for about 5 hours. If people say opps! I forgot to take my Pill then eat a spaghetti dinner or other spicy type meal then look out. You will pay the price. You can't eat that meal and then during or after the meal take that pill and expect it to work. I don't know how you are taking those pills but, if you aren't using them correctly they can't preform their job. It may be time to add something else to help in your digestion process. This information I learned from working at a pharmacy years ago. My doctor proscribed Reglan to take in addition. I also takeseveral daily in addition to Nexium. One just before going to bed at night. I have been doing quite well. No more nocturnal problems of pacing the floors, or reflux. I have written about this in the past. It is very important to have in your system while your system is empty with nothing but water and your pill, for at least 30 to 45 minutes. Good luck. Try it. It should work for you. It may take a couple days for you to feel it is working for you. I'm on my way to Florida in a few weeks. Can't wait to enjoy some sunshine and walking and being out with people. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Michael,

Sheryl gave some great advice, so all I'll add is Ditto. I take 2 Prilosec a day, one when I get up which is about an hour before breakfast and then one an hour before supper. That system works for me. Good luck! I hope you find something to relieve the heartburn. I hate that stuff!

Big Hugs,

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Michael,

 

I'm on protonix and have found that helpful for me. The pulmonary doctor I just saw said in his opinion Nexium is the best med for GERD. He said prilosec has 2 ions in the capsule, an active one and an inert one. He said at times the inert one binds where the active one needs to and this makes the med less effective. Nexium just has the active ion (the same as in prilosec) and this way there is no problem and you get more effective relief.

 

The down side is that he said Nexium is more expensive, and so insurance companies won't pay for it. I hope you find something to make you feel better.

 

Take care,

 

Laura

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Hi Mike,

 

As others have said, some of this is just trial and error and the meds don't always work the same for everyone. For me, Prilosec, Nexium, and Prevacid did not work and I had horrible headaches as they left my system (the wash out period every day....I could tell because I always took the medicine about 30 minutes before breakfast the same time each day and then I would get a headache around 2-3 pm every day!). I am now taking Aciphex and it is working fairly well with no side effects. But, I still have to watch my diet and can not eat spicy or acidic foods.

 

Good luck,

Heidi

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I’m no doctor, but read somewhere that maybe eating a bigger meal at lunch and a smaller meal for dinner helps and not eating late, like past 6 or 7. Also avoid certain foods: fatty foods, chocolate, onions, tomatoes, citrus and mint; and beverages: Decaffeinated coffee, juices, alcohol, soda. And relax. Stress can aggravate acid reflux.

 

I've been taking Nexium and it's worked great but now I find it runs out during the afternoon. Should I take another one 45 mins before I eat, like Sheryl said. I've been supplementing it with Zantac but the Zantac doesn't seem to work as well.


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Hello MIke,

I just went through an episode similar to this, and recieved so much great advice! So far it seemes to be working. I take Aciphex at night and Prilosec in the morning. Sometimes once in the afternoon. I have been drinking lots more water and avoiding super spicy foods.

 

It still feels like I am swallowing fire on the first few bites of food, but I guess I am used to it and it doesn't seem to be as bad as before.

 

All these things that the board suggested (and the Dr. approved), worked great! I hope you find a routine that works for you and gives you QUICK relief!


*WestCoast*

 

********

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thanks everybody!!!!

I'm gonna try the nexium, as I've heard it is superior although very similar to prilosec. Interesting stuff about the binding effect of different Ions, at least that gives me a little hope it'll work better (I'm always a skeptic and figured it was the same thing with a few tweaks in order to keep a patent and make more $ for the drug companies).

 

Has anybody heard about "stretta procedure" it's supposed to be a non-invasive alternative to surgery where they use radiation to narrow or tighten your esophogus so it doesn't allow acid to flow freely up. I've read its like 60-80% effective in "normal" people with GERD, anybody ever discuss it with their DR's for Sclero?

 

Michael in Florida

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I have an RX for 40 MG of it. I take it 2x a day( 80 mg total) and so far ( knock on wood) its helping.

 

Hugs


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Mike,

I have horrible acid reflux! My GI doctor has me on Protonix in the a.m. and 1 Prilosec in the p.m. I also take Ranitidine for breakthrough up to 2 a day. I think you might want to see a GI doctor if you don't already have one. Maybe you need something stronger than Prilosec.

Nan

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Actually Sheryl, proton pump inhibitors (all of the drugs mentioned here in this thread) do not get the acid working--they actually work by completely blocking the production of stomach acid. They do this by shutting down a system in the stomach known as the proton pump.

 

Yes, it is important to have nothing in your system before you take it and not to eat for at least thirty minutes after. I get frustrated in the morning because I have to take the omeprazole then wait until I have had my breakfast before I can take my anti-inflammatories which themselves take a while to kick in. These means I am stumbling around in pain for a couple of hours before I can finally get myself in gear.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Jefa, can't you take your anti-inflamatories first with a glass of water a maybe a cracker or cookie. Wait about 10 minutes then take your Proton pump inhibitors? That is how I use to take mine. When I was having severe carpal tunnel syndrome and even after surgery I took my pain meds first then other meds. I have heard of no pain no gain. But, I prefer the no pain anytime and relief as soon as possible, if possible. :-) Sometimes our insurance compainies have our doctors prescribe mild things like tagament to go along with other drugs. Sometimes them may work if the persons problems aren't real severe. Or they have better dietary type meals. That is usually a step the insurances companies have the doctors do before upping dosages or adding stronger medicines, that's how mine worked. My doctor told me protocal was see if the mild stuff works then go for the gold. Adding Reglan to my regimen was what finally worked for me. Especially, the last one just before crawling into bed. Though I have heard others say it didn't work for them. I am one of the lucky ones I guess. No ticks, jerking feelings or strange side effects.

Michael, I haven't heard of the "Stretta procedure" I will have to see if I can find some information on it. It isn't a band or something like what they do to peoples stomachs to make them eat less is it? Send me some infor on it if you get a chance. A web link, anything. Thanks! Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Michael,

 

I found this article on Reflux treatment here on ISN:

 

A New Treatment for Acid Reflux (the link has since expired)

 

Here's an exert from it the article:

Medication didn't work for jimmy, so Dr. Haines performed a non-surgical out-patient procedure at Sacred Heart Hospital in Pensacola, Florida. It's called Stretta.

 

"By putting a medical probe into the muscle of the esophagus using radio frequency waves, we generate a current, a heat which then causes scar tissue to form and it then thickens the sphincter," said Haines.

Over time the sphincter closes normally.

"Of the five thousand patients who have had the procedure, up to 75% have no reflux symptoms," said Hines. "Ten to fifteen percent require less medication, and have fewer symptoms."

 

I found this study on our favorite little place - PubMed:

The Stretta procedure for the treatment of GERD: a registry of 558 patients.

CONCLUSIONS: The Stretta procedure results in significant GERD symptom control and patient satisfaction, superior to that derived from drug therapy in this study group. The treatment effect is durable beyond 1 year, and most patients were off all antisecretory drugs at follow-up. Dec 2002

 

Very, very interesting. Thanks for mentioning it.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Thanks for the artical Janey.

Go for it Michael. You can be the first one from our group to try it. Sounds like a good idea if it is a perfected technic. My luck the sclero would send so much collagen to that area I would end up with a golf ball size splinter. Then I just plain would be able to get food past the golf ball. I think I will continue with what appears to be working for me at the moment. Might be tempting if I thought I was a good candidate. I'm not :-) Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Just thought of something. Some people eat more than two meals day. If you are still having problems then for the people who take the Nexium or Prilosec early in the morning before eating, lets say cereal or a real light breakfast. Try not taking the medicine with that meal. Start it with a meal at lunch time when you may be eating something that might bother you. From Onions to something oily. Then take the next one before what ever evening meal you have in the evening. Some doctors will prescribe 3 or 4 daily. For a couple months to get things in better control. I usually don't take one at breakfast anymore. After I have taken my Thyroid and Norvasc and waited to eat, I don't wan't to wait to longer. I'm hungry. So I eat something small. I can always have a bigger breakfast later if I wish. Though I only eat 2 meals daily and have a fruit or snack like popcorn sometimes in the evenings. Have a wonderful day. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Mike,

 

I take one Prilosec in morning and one at night just because rheumatologist told me to take it that way and it works for me. I have no heartburn but I still do occasionally have night time reflux - maybe 3 x in the past 3 months? I think it's because I either ate something I shouldn't have, didn't have a totally empty stomach before I went to sleep, or I had the nerve to actually want to sleep lying down for a change! :o

 

Take Care,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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In reading this thread I realized that I may be able to get my insurance to pay for part of my Prilosec - couldn't I? As long as it is prescribed by my doctor right? I never thought to ask about coverage for prescribed meds off the shelf.

 

Then again is it considered a "prescription" if it comes off the shelf? Or is it only a "prescription" if it comes through the pharmacist? No matter where it comes from, doc says take it - you need it, so what's the difference?

 

I'm sure my insurance company will find a difference!

 

It's late and I'm rambling here I know - okay :blink:

 

Good night.


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Barefut,

There is a slight difference in the prescribed and the over the counter prilosec. I don't know exactly what the ingredient is or if it is just slightly stronger. It might just be a higher milligram. There is a difference. If you get a prescription from your doctor your insurance should cover it, if it usually covers your prescriptions.

You could just switch to Nexium and get a lower prescription. Get 20 mgs instead of 40 milligrams. Just a thought. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Barefut,

 

Years ago my friend used to get an OTC antacid by prescription, but you know how insurance can chance through the years. She was on Medicaid, and they still might do that, but most of the other insurances won't pay for an OTC now if the copay would be about the same amount anyway. Go ahead and ask though since you might be able to get it with your insurance. And a good morning to you, and hope that the day is merciful to you!

 

Warm wishes and a hug,

Elehos

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I checked with my insurance last year about covering Prilosec and it was a big NO. Absolutely no OTC's. But then every insurance company is different. Any prescription substitute had to be justified by the doctor, but even then the cost my co-payment was equal to what I was spending on Prilosec. So go figure.

Because I do have a written prescription for Prilosec, I do deduct the cost as a medical expense on my taxes along with all my many other expenses. I just keep the prescription tucked away in my file just in case I get audited.

Big Hugs,

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Janey,

 

What MG is the prescription written for? I take 40 mg 2x a day and because the RX kind comes in 40 mg its covered. I would try again and appeal the insurance saying no to this much needed med! This is a big monthly experience for people and unless you don't have insurance I do not see why they fight it when it is also an RX.

 

Let me know what happens on this.


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Hi again Barefut,

 

I was just reading a post (Patty's?), and it's true that you can argue with the insurance company! At one point a few years ago I needed a particular narcotic pain killer and found that the time release pills were limited to 2 per day regardless of the mg. I preferred to get 4/day in the smallest mg. strength so I could adjust the dosage by need instead of being stuck with 2 stronger ones which couldn't be chopped, and the pharmacist told me to call my ins. co. At that point they gave me an override without the doctor's paperwork, probably because I was arguing for being able to take less when needed. They probably never got a call like that before. If there is a reason for needing a particular prescription, like the difference between OTC and Rx Prilosec, you can get a doctor's override, or just badger the ins. co. like my husband did for me (lol). I do hope it works out for you!

 

Best wishes to you,

Elehos

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Hi, hope this helps, looks like you have a lot of advice already but I have sclero and the esoph problems everything from swallowing difficulty to the acid reflux/gerd, I do sleep at slight elevation but not too much. I have tried prilosec, prevacid, protonix (bad side effects from that one) and now I have been on aciphex for a long time and it's awesome, I take it one time a day, in the am with my morning meds and it lasts all day and night, other than the problems that nothing will help anyway, no pill does it all I guess, but this one definitely did the trick. I take the 20mg pill. Just to share what worked for me, hopefully you can find some relief. Lori

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Okay, so I just found out there is a generic of Prilosec so I called my general practitioner to have him call in a prescription for it.

 

My insurance has a $10 co pay for generic meds, a big difference from paying $45.00/mo for 30 days of Prilosec 2x/day.

 

Why didn't I look into this sooner? Mush brain. :blink:


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Ya Gotta love Generic Meds! When your taking lots of meds, like I am it adds up quickly!


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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