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Jerrine

burning skin

7 posts in this topic

I'm new and have been searching the archives for info on my number one complaint at the moment--burning, itchy skin. I went to bed Monday (the day the dermatologist called and said my punch biopsy came back with scleroderma. But no other details.) and went to sleep fine but woke up 2 hrs later with severe, burning skin, my entire head felt burned. I got up to see if I had blisters but there was no visible signs. My arms burn, and my ears feel like they may split. There is a little itch to the burn. I can barely stand to comb my hair because it causes more irritation. Is this scleroderma related or something else? Could the biopsy be wrong?

 

Here's my history- sicca syndrome since age 18, weird spot on elbow and back- NO thickened skin, interstitial nephritis, high blood pressure since age 23, decreased renal perfusion right kidney-resolved, teleangiasis (sp?), raynauds since age 19 and my eye doctor said in 2005 that the ligaments in my eyes were "getting very tight and had I been diagnosed with scleroderma yet?" I'm 42

 

thanks, Jerrine (in Texas with a tornado warning)

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Hi, Jerrine. I'd like to welcome you to the ISN Sclero Forums. Sorry to hear about your recent diagnosis of scleroderma, although you must be somewhat relieved to have a name to put to your difficult symptoms. Burning and itching skin can certainly be part of the process. On our page for Xerosis (Dry Skin) I quote the following:

 

In a Diffuse Scleroderma, itching may precede skin tightening, and is a temporary phase. The prescription drug Atarax (generic name: Hydroxyzine Hydrochloride) may help in this situation.

 

Consult your doctor if you develop sudden or severe itching, as this may be a symptom of other things, such as a kidney failure or a liver disease.

 

There are quite a few useful suggestions on the page. I am sure others will jump in with comments and also to welcome you to our group. Hugs to you.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Jerrine, welcome to our fourms. I have never had the burning only the severe itching. That comes and goes with no rhyme or reason. The spots you are talking about, are they morphea? Keep asking questions and give more details about your spots and others may be able to help you out. I hope you get the information you are searching for here. Best wishes for less pain.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Jerrine,

I am currently being worked up for Scleroderma. I haven't gotten a firm diagnosis yet, but my rheumatologist says the signs are pointing in that direction. I am also experiencing the burning sensation on the skin of my hands and face. The burning sensation is really pronounced when my hands are swollen, which is often. Because of the burning on my face I only wash my face one time a day instead of two. I just wanted to let you know that you are not alone. Good luck.

 

Loren

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Hi Jerrine - I was diagnosed in 2001. I experienced burning of my face, hands and head, as well as the itching. I still get this off and on. I also have high blood pressure (but recently under control with meds), severe telangiectasias, raynauds, etc. It took a while to get the doctor(s) to even admit that it was part of the package that often comes with scleroderma. It was very frustrating. Now, I am coping better but I have yet to find anything to control the burning. It's so uncomfortable. Let me know if you or anyone has a solution to this problem. Hang in there! -Ann

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Hi Jerrine,

 

 

 

Welcome to the Sclero forums. I'm so happy you have joined us, but sure sorry it's due to you scleroderma.

 

 

 

I look forward to knowing you better. By the way my cousins name is Jurene. Not sure if it is pronounced the same as your's though.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Does anyone know if morphea includes the burning and itching of skin. I had that in the beginning and have been diagnosis with generalized morphea. I always wonder how they can tell it is just morphea.

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