Kamlesh Posted May 23, 2008 My all Sclero friends.Just to let you know, I went through a surgical procedure Toupet Fundoplication to relieve my acid reflux problems.. This is a partial wrap. I went through the procedure at UCSF on May 20th and I am recuperating now. It took three hours of laparoscopic surgery by Dr. Compose. This surgery will not eliminate acid reflux completely, but will reduce it drastically and prevent any further damage to my lungs.At least I don't have problems with swallowing (dysphagia) after the surgery which is a major side effect of any acid reflux surgery in Scleroderma patients. Kind regards, Kamlesh Share this post Link to post Share on other sites
Sheryl Posted May 23, 2008 Kamlesh, I am so happy the surgery went so well for you. Glad to hear that you aren't having any post surgery issues. Rest and let that body heal a bit. Keep us informed on how well you are doing. Strength and Warmth, Sheryl Sheryl Doom ISN Support Specialist (Retired) ISN Chat Moderator International Scleroderma Network (ISN) Share this post Link to post Share on other sites
barefut Posted May 23, 2008 Kamlesh, Thank you for keeping us posted on you. I remember when you talked about this surgery awhile back. I'll bet you are relieved that it is over and you are doing well. I am so glad that you are! Take care, Barefut Serena Justis ISN Blogger International Scleroderma Network (ISN) Share this post Link to post Share on other sites
jefa Posted May 23, 2008 Hi, Kamlesh - glad the surgery went well. I know you have been thinking about it for a long time, so it must be something of a relief just to have it behind you. I hope it does the trick for you. Now take it easy and enjoy your rest. How long do you expect to be away from work? Warm wishes, Jefa Carrie Maddoux (Retired)ISN Sclero Forums Support Specialist (Retired)ISN Sclero Forums UK Chat Host International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Shelley Ensz Posted May 23, 2008 Dear Kamlesh, I'm delighted you had the surgery and that it went well. I hope that it lessens your reflux and hopefully brings it to a very manageable level. My husband (who does not have scleroderma) had a full Nissen Fundoplication surgery four years ago, in order to qualify to be listed as a lung transplant patient. They have found that lung transplant patients with reflux have a worse outcome. He had a really great surgeon and he has not had any heartburn since then. It's too bad that the full Nissen often has complications for scleroderma patients, like you mentioned. I hope your partial wrap works well and holds you in good stead. Warm Hugs, Shelley Ensz Founder and President International Scleroderma Network (ISN) Hotline and Donations: 1-800-564-7099 The most important thing in the world to know about scleroderma is sclero.org. Share this post Link to post Share on other sites
Sweet Posted May 23, 2008 Oh Kam, I am so glad your surgery went well. I wish you a very speedy recovery. Keep us posted. Warm and gentle hugs, Pamela ISN Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Kamlesh Posted May 24, 2008 Shelley, Jefa, Serena, Sheryl, and Pam, Thank you for kind words. I am recovering nicely. Basicall, doctor did 180 degree Fundoplication and shaped the valve correctly. Also, they fixed Hiatal hernia also. I am on liquid/soft food diet and planning to take 2 weeks off. It still hurts. I am glad I went through it and so far no regrets. In my case nothing was working and the surgery was only choice. Thanks again! Kind regards, Kamlesh Share this post Link to post Share on other sites
debonair susie Posted May 24, 2008 Kamlesh, I am SO HAPPY that your surgery went well and you have soem days of recouperation under your belt. I look forward to reading about your constant improvement, as a result. Hope you are feeling better and better each and every day! I also appreciate your post, letting us know that you are doing as well as you are. Take it easy as you continue to recoup. Soft Hugs, Susie Special Hugs, Susie Kraft ISN Support Specialist ISN Chat Host International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Snowbird Posted May 25, 2008 Kamlesh I'm really happy for you too. I hope you get lots of rest and recover quickly from your surgery! Sending good wishes your way! Share this post Link to post Share on other sites
nan Posted May 25, 2008 Kamlesh, I know that you are relieved that the surgery is over. I am so glad that you aren't feeling too badly. Take care of yourself and REST!!!!!!! Nan Share this post Link to post Share on other sites
LisaBulman Posted May 25, 2008 Kamlesh, I'm glad to hear everything went well. Rest up and let us know how the recovery is going! Hugs, Lisa Lisa Bulman (Retired) ISN/SCTC List Coordinator (Retired) ISN Sclero Forums Assistant Manager (Retired) ISN Assistant News Guide (Retired) ISN Fundraiser International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Shelley Ensz Posted July 12, 2014 Kamlesh, there is a current thread by Brianala asking about fundoplication surgeries. Would you mind updating us know on the longterm results of your toupet fundoplication? :emoticons-group-hug: Warm Hugs, Shelley Ensz Founder and President International Scleroderma Network (ISN) Hotline and Donations: 1-800-564-7099 The most important thing in the world to know about scleroderma is sclero.org. Share this post Link to post Share on other sites
Kamlesh Posted July 15, 2014 Hello all, I went through the surgery after two surgeons refused to do it. After thorough testing personally supervised by Dr. Campos at UCSF, he performed the surgery and my acid reflux dropped over 90% - Deemister score from 88 to 4 and normally is 14. But, recently my GI doctor did barium X ray to verify the surgery is not working any more. My GI doctor thinks results of partial fundoplication are not permanent. I myself am exploring what is next? I do not know yet, but I got great results for 5 years, I would not hesitate to do it again, if possible. I need to explore further. I will be glad to answer any question. Kind regards, Kamlesh Share this post Link to post Share on other sites
Shelley Ensz Posted July 15, 2014 Hi Kamlesh, Thank you for responding to my request for an update on your fundoplication surgery. I'm very sorry for you that it's not working any more. I found an article about repeat fundoplication surgeries. I hope that you find some way to get things under control again. And please keep us posted on what you find out about it as you explore your options...again. :emoticons-group-hug: Warm Hugs, Shelley Ensz Founder and President International Scleroderma Network (ISN) Hotline and Donations: 1-800-564-7099 The most important thing in the world to know about scleroderma is sclero.org. Share this post Link to post Share on other sites
