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Kamlesh

Toupet Fundoplication

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My all Sclero friends.

Just to let you know, I went through a surgical procedure  Toupet Fundoplication to relieve my acid reflux problems.. This is a partial wrap. I went through the procedure at UCSF on May 20th and I am recuperating now. It took three hours of laparoscopic surgery by Dr. Compose. This surgery will not eliminate acid reflux completely, but will reduce it drastically and prevent any further damage to my lungs.
At least I don't have problems with swallowing (dysphagia) after the surgery which is a major side effect of any acid reflux surgery in Scleroderma patients.


Kind regards,

 

Kamlesh

 

 

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Kamlesh, I am so happy the surgery went so well for you. Glad to hear that you aren't having any post surgery issues. Rest and let that body heal a bit. Keep us informed on how well you are doing.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi, Kamlesh - glad the surgery went well. I know you have been thinking about it for a long time, so it must be something of a relief just to have it behind you. I hope it does the trick for you. Now take it easy and enjoy your rest. How long do you expect to be away from work?


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Dear Kamlesh,

 

I'm delighted you had the surgery and that it went well. I hope that it lessens your reflux and hopefully brings it to a very manageable level.

 

My husband (who does not have scleroderma) had a full Nissen Fundoplication surgery four years ago, in order to qualify to be listed as a lung transplant patient. They have found that lung transplant patients with reflux have a worse outcome. He had a really great surgeon and he has not had any heartburn since then.

 

It's too bad that the full Nissen often has complications for scleroderma patients, like you mentioned. I hope your partial wrap works well and holds you in good stead.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Shelley, Jefa, Serena, Sheryl, and Pam,

Thank you for kind words. I am recovering nicely. Basicall, doctor did 180 degree Fundoplication and shaped the valve correctly. Also, they fixed Hiatal hernia also.

I am on liquid/soft food diet and planning to take 2 weeks off. It still hurts. I am glad I went through it and so far no regrets. In my case nothing was working and the surgery was only choice.

 

Thanks again!


Kind regards,

 

Kamlesh

 

 

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Kamlesh,

 

I am SO HAPPY that your surgery went well and you have soem days of recouperation under your belt.

 

I look forward to reading about your constant improvement, as a result.

 

Hope you are feeling better and better each and every day! I also appreciate your post, letting us know

that you are doing as well as you are.

 

Take it easy as you continue to recoup.

 

Soft Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Kamlesh

 

I'm really happy for you too. I hope you get lots of rest and recover quickly from your surgery!


Sending good wishes your way!

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Kamlesh,

I know that you are relieved that the surgery is over. I am so glad that you aren't feeling too badly. Take care of yourself and REST!!!!!!!

Nan

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Kamlesh, there is a current thread by Brianala asking about fundoplication surgeries. Would you mind updating us know on the longterm results of your toupet fundoplication?

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello all,

 

I went through the surgery after two surgeons refused to do it. After thorough testing personally supervised by Dr. Campos at UCSF, he performed the surgery and my acid reflux dropped over 90% - Deemister score from 88 to 4 and normally is 14. But, recently my GI doctor did barium X ray to verify the surgery is not working any more. My GI doctor thinks results of partial fundoplication are not permanent.

 

I myself am exploring what is next? I do not know yet, but I got great results for 5 years, I would not hesitate to do it again, if possible. I need to explore further.

 

I will be glad to answer any question.


Kind regards,

 

Kamlesh

 

 

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Hi Kamlesh,

 

Thank you for responding to my request for an update on your fundoplication surgery.  I'm very sorry for you that it's not working any more.

 

I found an article about repeat fundoplication surgeries. I hope that you find some way to get things under control again. And please keep us posted on what you find out about it as you explore your options...again.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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