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georgette

Newbie

14 posts in this topic

G'day everyone, I'm a 55 year old and I live in australia I have just been recently diagnosed with scleroderma, and need to learn more about it, so I figured the best way to do this would be to join a scleroderma group ! I have a few symptoms but the one causing me the most distress is the itching skin ugh!!!!! I itch all over, and because I can't stop scratching my skin is puffy and red, what do you all do to try eleviate this symptom, I've tried all manner of anti histimines and I still itch, would be grateful for any advise hugs georgette

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Hi Georgette,

Welcome to the Forums! I'm glad to see you finally made it! You find a weath of info here along with many friendly people. Here is a link to Itchy Skin on our sclero.org website that might be helpful.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi Georgette, I use a good quality moisturizing lotion everyday and it seems to help my itching. I use one of those fragrance free lotions. Good luck and welcome, Birdman


Hugs for All,

 

Julie (Bird Lady)

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Hi Georgette,

Just thought I would also welcome you, I'm from Melbourne in Australia.

Where abouts are you from?

 

Take care

Celia :rolleyes:

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thanks everyone for your welcome 'celia ,I'm also from melbourne ! eastern suburbs ,kilsyth ...... I'm so grateful for the advice here and for all the other posts that I've been reading I've learned heaps already , so far I guess I'm lucky as the sclera is not effecting my organs as yet only my bones,ligaments,eyes,muscles and skin ,,so I'm going to head back to the board and read some more of the posts to try to get to know everyone as well as learn about scleroderma hugs georgette

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Hi Georgette! I also suffer severely from the intense itching. I use moisturizing lotion several times a day. I also take Hydroxyzine (Atarax) which has helped me more than anything. I hope you get some relief soon.

Hugs,

Michele Chere

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Hi Georgette!

 

 

 

Welcome to the sclero forums! I'm so glad you've joined us. You will find a wealth of information, support and friendship here. Look forward to knowing more about you.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Georgette

 

I just wanted to say welcome too...you'll find lots of help on this site, I did!


Sending good wishes your way!

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Hi, Georgette, and welcome. I see you have received some good advice here along with a very useful link. I have a problem with itching, too - one of the things I have learned from other members is that too frequent showering or bathing can reduce the amount of oil in the skin and make the itching worse. For someone who used to take a shower every morning and a hot bath at night, it is a big change for me, but now I take warm (not hot) showers about twice a week (well, whenever my hair needs washing). The rest of the time I wash up as needed at the sink. It seems to have helped a bit.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Like Jefa, I noticed some difference in itching based on how I bathe. I would always itch more when I took baths rather than showers. I think soaking in the tub draws out more of the skin oils.

 

When badly itchy, ointments containing benzocaine worked better for me than others (cortizone, etc.). As other have mentioned, good moisturizer is also helpful, especially when put on right after bathing (I find that it isn't as helpful when I've already become itchy).

 

Good Luck

 

Craig

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thanks to you all for taking the time to respond to my post re: itching , it was driving me to dispair but have at least got some relief , I stopped having my shower daily (every second day) and just a wipe over on non shower days , after the shower I lather myself with baby oil ,and take anti histimines daily ,I'm still itching but not that desperate itch if you know what I mean , I still want to scratch but I know if I do I will not be able to stop so at this level I can cope , going to see the rhumitoligist to see what he has to offer , this syndrome totally stinks!!!! I also have another syndrome called CRPS/RSD it is a nerve injury that has spread to all the limbs in my body it was this syndrome that kicked started the scleroderma ,it made my immune system go into over drive ,it started to attack my eyes first ,then it started to attack my bones and tendons now just in the last 2 weeks my blood tests say that I have now got full blown scleroderma !! I was so devestated as the CRPS/RSD was enough to live with but now this ...life is a real daily challange these days . but I am coping ! (the CRPS is chronic regional pain syndrome I got this from a blood test the nurse hit the nerve in my arm ) once again thankyou all for your input much appreciated hugs georgette

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Hi Georgette

 

No wonder you're so overwhelmed...you've sure been through the wringer lately by the sound of it. Hopefully, you will get things under control soon and things will settle down a little for you. I don't really know anything about CRPS/RSD but I suspect it can be quite painful since it's dealing with nerves? I hope you can get some relief really soon!

 

I'm curious, what type of scleroderma do you have? It takes more than blood work to diagnose, so I suspect you must have other symptoms too? Mine is Systemic Scleroderma CREST/Limited.

 

This is a good site to ask your questions, you'll find loads of helpful people with great insight to this disease.


Sending good wishes your way!

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Georgette, Welcome to the board! Everyone is so sweet on here!

Like others have said, lotion is good for the skin.

Sadie

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