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ez62

Speech, difficulty articulating words

5 posts in this topic

I was wondering if those of you who feel your mouth being affected have trouble saying certain words. The other day a former neighbor told me on the phone her son is attending college for architecture. In the past few days I have shared this info with my family and some neighbors and I realize I can no longer pronounce the word "architecture"...at first I was thinking..."whats wrong with me, I can't remember how to say this word?" But then I realized it was my mouth that wasn't letting me say it, not my brain! Thanks for your help,Eileen

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oh, my, Eileen. That must have been hard for you. I stumble all the time, but so far mine has been more mental than physical. My father had a hard time getting used to talking when he got a full set of new teeth but he eventually got used to it. I wonder if reading out loud for practice would be of any use to you?


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Eileen, I'm so sorry to hear that. Yes, I have problems with this too. My face is so tight it makes it hard to pronouce things.

Sadie

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Eileen,

 

Yes, I have noticed this with me too. I slurr some words (probably sounding drunk ). My tongue doesn't want to move like it used to.

 

When I brush my teeth, I drool out the corners of my mouth no matter how tightly I try to close my mouth around my toothbrush.

 

I get face fatigue when I smile or laugh for very long - my cheeks actually hurt and will quiver from fatigue - I'm pretty strange!

 

By the way, I just have to illustrate some face stretching exercises that are very helpful: :o :angry: <_< :rolleyes: :P


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Oh wow, I thought maybe this was just me. I have problems daily with what you are describing. I have gotten to the point that unless I am having a really good day, I won't read out loud when in my book club. Sometimes it just doesn't come out right. My husband has gotten very good at knowing what I am trying to say. It can be quite embarrassing....


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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