WestCoast1

A quick hello...I miss you guys!

12 posts in this topic

Hi Forum (sclero family),

 

It has truly been almost 4 months since I was last able to post. I do miss you all, but get a chance once in a while to read you posts. As you know, I started a full time job and have little time much else. I am just now starting to add things little by little back into my life. You all are first on my list!

 

I had my last rheumatologist check up a few weeks ago. Things seem to be stable with little progression. My only complaint was the muscle pain. My doctor prescibed an anti sezure med. that works as a muscle pain reducer. I will have to take it each day, but it is worth it if I can have a day or two free of pain. I am hopeful so far and expect good things.

 

I hope to stop by a little more often if I can. Stay well, and happy!

 

Hugs to all~


*WestCoast*

 

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Hi West~

 

So glad to hear from you! Hope you are liking your new job. Can you share more about that with us?

 

I am interested in your new med. Anything besides prednisone that works on muscle pain and stiffness I am all for.

 

Thanks for checking in.

 

Love and miss ya,


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hello, Erin - so nice to hear from you. Glad you are finally able to come up for air for a bit. I am also interested in hearing the name of your new med. I am so glad that you have reached some stability with your illness and are able to manage the new job well enough to pop in here again. We have missed you.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Erin,

 

It's delightful to hear from you! We have sure missed you and wondered how you are doing.

 

I'm glad things are going well with your new job, and that your health is stable, considering.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Erin,

It's so good to hear from you! I'm glad things are stable with your health and that your doctor is working on you pain issues. How's the job? Hope you're having fun.

 

Thanks for stopping by and hope to hear more from you.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Erin,

Thanks for stopping by for a quick visit! You'll have to let us know more about the job and how you are doing! Come back soon.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Weclome back Erin. It was good to grab a word from you. I am so happy you are enjoying your job and getting to spend much needed time with your family and new schedule. Do try to stop in once in a while and tell us how you are. I was hoping you would jump in on a Sunday night chat sometime. We miss you. Keep in touch.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Barefut, I noticed your comment on Predisone. I have just been put back on Predisone for joint and muscle pain. Do you know the negative side effects of this drug? Thanks and good luck, Birdman


Hugs for All,

 

Julie (Bird Lady)

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Hello Family,

 

Great to hear from all of you!!! The new med that I am trying is called Neurontin...simalar to Lyrica. So far so good. I do feel some serious tiredness if I don't take it early enough in the evening, and I have noticed more heartburn, but I am willing to see if I can wait out the side effects. I have not noticed much relief from mucle pain, but I am starting at a really small dose and working my way up.

 

My job is a desk job. I hope to work my way into more of a design position, so I am really trying to be on time, punctual, and on task. I will admit that it is hard to do on days that I feel bad, but somehow I just do it. I take a nap when I get off work (while the kids are at a sports function) or even for a few minutes before dinner. I clean on weekends, and do a whole lot of crock pot dinners. I rarely get a chance or have ANY energy to excercise, so I have gained some weight in this process. I don't know how to get around that one! Any ideas??

 

I just got a call on Friday from the rheumatologist about my blood tests. I got some results back from the hospital lab, but not all of them were done, so I am just crossing my fingers that all of them are good. I really think that they are, but ( I am sure you all know what I mean) still have that small sense of doubt.

 

I would love to join a chat soon just to catch up! I will do my best. Thanks for your support and friendship.

 

Hugs~

Erin


*WestCoast*

 

********

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Hi Erin,

 

Nice to hear from you. Congratulations on full time job. It is difficult, but I know you can do it.

Take care!


Kind regards,

 

Kamlesh

 

 

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