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Patty

Slow G.i.- Bowel

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This is a unspoken subject so to speak but I need some help. I have a very slow GI now and I have to take something to help, only trouble is now, its not helping me at all. It is only causing very bad cramps. I really need to find something that works easy and well without the cramps. I live in so much pain everyday (as do many of you,) that I just can't keep up taking something to help one problem and have it cause something else. My general practitioner has already warned me that I could get impacted bowel at anytime, so I am now nervous of this matter. The product I take has a softener in it so could that be the cause of my cramps?


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Hi Patty,

 

This has been a serious, longstanding problem for me as well, and most laxatives do cause more problems for me or don't work at all. At one point I became so desperate that I went to an herbal book (written by MD's), and found remedy thta worked well for me. If you want me to I could send you a private message with the name of it. Within a minute or two the cramping was gone, and sometimes within an hour I could finally head to the bathroom. As long as you aren't allergic to sesame seeds or on a very resticted fat diet, your doctor probably wouldn't have any concerns about you using it, but it's always best to check. There tends to be a long list of forbidden foods for people on MAOI's for example, so depending upon your meds, please do check.

 

I hope this turns out to be something that you can use, and that you do find relief!

 

Hugs to you,

Elehos

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Patty,

I'm so sorry that you are in such pain. Last year when I had IBS I would get those GI cramps and they just brought life to a halt. Sorry that you are having them constantly. Have you reviewed our bowel dysfunction page? Just in case you haven't - here's the link - Bowel Dysfunction

 

I did find a couple of specific articles that might help you in a quick review:

 

Elimination Problems

 

Chronic Intestinal Pseudo-Obstruction.

I know you don't have obstruction at this point, but this article has some good ideas on treating CIP which looks like good ideas for preventing it as well. Here's an exert: Treatment of CIP includes frequent small meals with a low-fat, low-fiber diet, liquid nutritional supplements may be needed; prokinetic agents such as metoclopramide may help to reduce upper GI symptoms. Trials of drugs such as erythromycin, domperidone, cisapride, and tegaserod may be considered if there is no response.

 

Hope this helps. Please let us know how you are doing.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Patty, Have you tried the Epson Salts in warm water? I wouldn't recommend it for prolonged useage, but for weekly or monthly type problems it works great. Read the directions on the back of the container. I know it comes in a big box. But Epson Salts can be used from bathing to bowel problems to house cleaning. I highly recommend it. But, as always it is your decision if you want to try it or not. No, pain no cramping and it comes out in a nice smooth movement. Not watery. Let us know if you try it, so others will hear about how great it works. I also am taking the metoclopramide (Reglan) which is great for the movements in the esopagus and reflux and small bowel muscle control. Probably other things also. Good luck. If you continue to have problems though I would suggest having a chat with your family doctor or if you have a gastro doctor he will help you solve that problem.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Patty,

I am so sorry to hear about your latest problem. I too have that problem. Usually an over-the counter fiber caplets(6 a day...you can send me a private message if you want to know the exact brand name) help, but lately they haven't been. When I had to get a colonoscopy last April I did the prep the day before and was supposed to have the test at 9 a.m. the next day. I hadn't even started having any bowel movements. The doctor gave me some more stuff and I finally was able to go to the bathroom and do the test the next day. I am going to have to go to my GI about my horrible heartburn, I am scared it is an esophageal yeast infection again. I will ask him for other ideas to help with bowel movements. If he tells me anything good I will let you know. I am so sorry you are going through this. It is horrible pain!!!!!!!!!!!

Nan

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Hi Patty,

 

So sorry to hear you are having problems. I had similar problems, maybe not as bad, but the cramping pain would almost make me pass out. I would go from horrible pain and not able to have a bowel movement to diarreha in a matter of minutes. It would drive me crazy but what helped me was even crazier. I now take an over-the-counter gas reduction medicine (if you want, you can send me a private message and I will tell you the specific product name). At least one a day. It has made a big difference for me. I did ask my Gastro MD and he told me he did not see a problem with me taking them. You may want to check with your MD but it really made a difference for me.

 

I hope you find relief soon. You are in my thoughts.

 

Sue

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Hi Andyko,

 

Thank you for mentioning that fiber makes you worse too! For years I followed a very "healthy" diet and grew worse and worse. No one wanted to believe that, but now they are getting the picture that sclero does some odd things to the body. Dairy never caused constipation but vegetable soup did, but at least I'm catching on to what foods to limit and which to eat more.

 

Hugs to you and yours,

Elehos

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I have found that small amounts of the "old fashioned" over-the-counter stuff (please send me a private mesage or e-mail me if you want to know the specific product I use) works great.

 

 

April

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I also use an over the counter product followed by lots of water and it works for me. I've had bowel issues since the beginning and doctors tried lots of stuff that's all very expensive and finally found the OTC that worked best for me. I take it every 3-4 days to clean out and have been doing this since 1995. Please send me a private message if you would like to know the exact product I use.

 

Judy


There are over 1,000 patient and caregiver stories on the main Sclero.org site.

Warm regards,

 

Judy Devlin

ISN Archive Committee Chair

International Scleroderma Network

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Hi Patty, I am sorry to hear your having problems. I have had Constipation problems as long as I can remember and I'm 52 years old. I have slow motility issues, with both bad Acid Reflux and Constipation. My Gasto doctor's have tried a few differant things, if you want to email me, I will give you some info on what I take. Good luck to you, by the way a heating pad is my best friend.

 

Jackie S.

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