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Bird Lady

SCOT follow-up visit

6 posts in this topic

I just went to Duke for my six month follow-up for the SCOT study. Most everything was good, PFT was better, echo was good, EKG was good, blood saturation was 100%. The only problem is my CT scan showed some nodules on my left lung so they want to do another CT to take a closer look. They say they think it might be coming from aspiration. I really don't know what this means. Has anyone had any experience with this? Birdman


Hugs for All,

 

Julie (Bird Lady)

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Hi,

 

So glad that for the most part things are looking up.

 

When they talk about "aspiration" that basically means "inhaling something into your lungs". This happens and can be dangerous for any of us with GERD. Sounds like you might have some irritation due to that. I will be interested to see what your follow up CT shows.

 

 

 

Hang in there!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Good Evening Birdman, I have something similar. I had two nodules and I get a CT scan every 6 months now. October of last year I had 5 nodules or a cluster. The doctors are still watching them. Seems like the first two dried up. I didn't schedule a CT for April. I have one scheduled for October. My rheumatologist seems to think mine is old granulomatous disease or possibly from previous TB. I have never had TB as far as I know. Hopefully, mine will dry up as the doctor hopes. I hope yours also dry up or just go away. Once you have these nodules you might have to have CT scans for at least 4 years to watch for progression or changes good or bad. I hope it isn't anything alarming, but it can still put a scare into you. Let us all know how things go. I guess you will have another CT in 3 months then in 6 months if the schedule is the same with most insurances. I'm happy to hear your other tests went well. Keep getting stronger by the day. Keep up the good work.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Birdman ,

 

If someone aspirates food into their lungs, it just 'sits there' as there is no way for the lung to dissolve the food. The body has two responces depending on the size of the food particle......it can slowly dissolve through phagocytosis (the body's histiocytes eat it up) or become granulation tissue (where the body hardens it to prevent further damage). Aspiration pneumonia sometimes occurs because of food in the lungs and the lungs are trying so hard to get rid of it.

 

Take care, Everyone.

Margaret

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Birdman,

Great to hear most things are looking good! :)

 

I have aspirated acid into my lungs which they found during my bronchoscopy. Hopefully it is something simple that will take care of it's self. Keep us posted.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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