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kiwimum03

Qucik rheumatologist update

5 posts in this topic

Hi All,

 

just had my rheumatologist appt today. And I have been having trouble with my wrist, we though it was carpal tunnel and I will be having the nerve conduction tests on 27th June.

He said I have Tenosynovitis in my left wrist, it is very bulgy and swollen and it hurts at the base of my thumb and wrist. So far he hasn't offered any treatment for it as he wants to wait to see what my nerve conduction test throws up.

 

 

My ENA has now changed from negative to positive so he is running the test again to see if it throws anything new up, as that test was now 5 months ago.

I still have a positive ANA and high CRP and anemia.

My dry eyes and mouth are still severe but will just keep using the drops and lube.

I see the Neurologist on 2nd July for my headaches and nystagmus as well.

 

I am still on Plaquenil, its been a year now, and has gone quite fast. He said if I get more inflammed areas he may have to look at supressing my immune system more, but does not want me back on Prednisone if there is any way we can help it.

I have a terrible pocket of inflammation in the tendon that runs over the top of my hip that makes me limp, but hopefully this will pass soon.

 

Thanks for your support, I know I don't have a diagnosis yet, but thank you for letting me "hang around"

 

Love to you all,

 

Hugs,

Irene

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Hi Irene,

I'm sorry to hear you are having problems with your wrist and hip area.

I too am having problems with my feet, ankles, achilles tendon area.

I have a collapsed arch, tendonitis in the feet and achilles, bilateral, and am practically bone on bone in my feet. My achilles is so bad that it is now not in the right position on my legs, due to thickening of the area. I have been told there is nothing that they can do for me. I cannot have an injection of cortisone as it is quite possible that my tendon might rupture and lead to drop foot.

 

I am now having stiffness and pain in my lower back , pelvis area, all part of Scleroderma. The only thing that relieved me of the pain is Prednisolone, which my rheumatologist is quite reluctant to put me on it again.

 

Sorry I can't be of much help to you.

 

Take care

Celia

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Hi Celia,

 

thank you for your reply, but I am so sorry to hear that you are in so much pain.

Are you on any other medication?

 

I had cortisone injections on both my wrists in January, but unfortunately they did not help at all, and I am silently pleased he didn't offer to inject me again yesterday, I think I would have run from his office!

It is frustrating when you can't do anything for the pain, other than take NsAIDS, which irritate my GERD, I guess its all a fine balance isn't it.

 

Big hugs to you, I hope you can get some relief soon.

 

Love Irene

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Dear Irene,

 

I'm so sorry to read that you have gotten a diagnosis of Tenosynovitis... that sounds so painful :o

 

With a high CRP, I sure hope that changes soon for you. Is your anemia being addressed? Do they know of the reason for it?

 

You can "hang around" of course...after all, you are already family to us :D

 

Please keep us posted on all that's going on here?

We care about you and want you to feel better!

 

Big Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Celia,

 

I'm sorry that you're having these troubles...

 

Having Fibro myself, along withSclero, it sure can make it rough, that's for sure :(

 

Oh my...I can't imagine how painful a collapsed arch must be! Hopefully something can be done to remedy that for you...I'll sure keep my fingers crossed!

 

Keep us in the loop, ok?

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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