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Clementine

Aching Joints

16 posts in this topic

Hey!

How do you know if your joint pain is sclero related or just getting older? Both of my knees hurt when I walk. It's not terrible but it is really hard to walk up and down stairs. I'm only 41. :( It's not that it matters really, but wondering if I am always going to feel this way.

Tangelo

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Sweetie, sounds like you are getting older by the day. It seems like most of us in this group have joint pains of some sort. Knees this month and maybe next, then the hips then the shoulders and on and on. I don't think it is age related. I do believe it is scleroderma playing games here and there in our bodies. The pain in our joints seems to do some traveling. I wish I could travel around as much as the pain does. Hah! I hope the pain doesn't last long for you. I want you to be able to do some traveling when you go visit your hubby. Keep us informed on how they are acting or feeling. Maybe someone will jump in with some good home remedies.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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I really don't know how to tell what aches and pains are sclero or just me being over the hill at 42 (and especially out of shape!) My knees bother me too when I try to get up from kneeling. I have learned that I have to pull myself up or I'll be sorry.

 

I know that you are in better shape than I am and I don't think 41 makes you decrepit so it could very well be a sclero thing. I have read that a lot of people's first symptoms was pain in their knees.

 

We'll see what others say....


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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I'd like to add that I don't have skin involvement (sine sclero) so I thought I wasn't supposed to have joint aches from sclero.... :(

 

Yes Sheryl, I am getting older, day by day...ha ha!

These lousy aches won't keep me from having fun with my hubby.

I'm going to make sure we get some positives from this time we have to

spend apart.

 

Tang

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I get lots of aches & pains in my joints and my knees can be very painful & hot & swollen but never really know what causes the pains, my Rheumatologist says its down to the Raynaud's but I'm not convinced by that, I also sked him if it was always going to be like that & he just said"we'll have to see"! But then Tangelo I am 52, so perhaps mine is just age related.

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Tangelo,

 

I am 41 too and I feel like I have the joints of an 80 year old. Stiff as a board. Poor hubby has to push me out of bed sometimes and pick up everything that I drop (which is a lot :P )as I can't bend down. I wonder too sometimes, if it's the disease or me getting older, or a combination of both. I've tried stretching exersizes, but so far I still have trouble even tying my shoes.

 

I hope you feel better soon. Maybe it's just a passing flare?

 

Love,

Karen

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Hi Jen,

 

I sure can relate to the joint pain, but can't answer to the cause. I know that over the years, I've gotten "new" diagnoses, so maybe that could happen withyou as well.

 

As Pam mentioned, be sure to bring it to your dr's attention.

 

Do you take anything for pain? Seven years ago, I had a pleurisy attack and up until then, I took nothing for pain. I never realized the pain I was in until I was prescribed Vioxx, then Celebrex and finally Mobic... I was able to sleep like a baby!

 

I also notice that when there's a change in barometric pressure, it affects my joints.

For the last several months, I hadn't been taking the Mobic because as withanything, it also has side effects. However, I'm going to have to start it backup today :(

 

Hope you can find some relief, Kiddo!

 

Soft Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Tangelo

 

I think it's a combination of aging and sclero. I have a terrible time with stairs too. I went to physical therapy and found out that I have severe arthritis behind the kneecap. The very best thing we all can do is a regime of stretching exercises. It's amazing how effective they are when you do them every day! I know it's so hard, given all the body parts we need to attend to, but those achy joints make me feel old too and I'm only 50! Good luck

Peace,

Karen

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Hi Tangelo:

 

I think it's got to be sclero related as I have it really bad and I'm "only" 48, unless that's arthritis already. I don't think so though as not only do my joints hurt my muscles are terrible. I don't know if in my case if it's sclero or the Polymyositis. The Poly diagnosis just came a month ago so I am anxious to ask my neuro doctor on Monday what this disease is all about and if that's what's causing all this pain or if it's from the sclero. I had hoped the IVIG would help but it hasn't yet.

 

I can relate on the knees. I too have to have aid to get back up if I squat down. Just squatting to get something out of a cabinet is hard, and heaven for bid if I am sitting down on the floor. That's quite a process to roll into a certain position to get back up. We also had to put bars in the tub as it was getting impossible for me to be able to get out of the whirlpool.

 

I blame this disease for all of this and it has been really hard for me. I used to be so active and was so sports minded and agile. Now I'm like an old lady that's frail and not able to do anything without assistance.

 

Sorry to vent on your post, but I know what you're going through.

 

Warm hugs,

 

Peggy

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I have tried to answer this three times today and each time the system crashed. If it does it again, then perhaps I shouldn't be posting. :D

 

In our page on Arthritis, it says "Scleroderma is classified as an arthritic disease, along with rheumatoid arthritis, lupus, dermatomyositis, and more than 100 other medical conditions."

 

and

 

"Autoimmune arthritis is arthritis caused by your own immune system attacking your own body. Types of Autoimmune Arthritis include rheumatoid arthritis, reactive arthritis, systemic lupus erythematosus, scleroderma, ankylosing spondalytis, and psoriatic arthritis."

 

Having joint pain doesn't necessarily mean scleroderma, but it is certainly something that can be considered consistent with the diagnosis.

 

I am not a doctor, but I wouldn't think lack of skin involvement would have anything to do with joint involvement.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Ok, I'm in agreement with all....it's a bit of this (FM) and a bit of that (Scleroderma)...and another bit of that (arthritis)...all rolled into one. I have had trouble with my knees for years too...and I was in my thirties when it started....now I'm as old as the rest of you (48) and I really feel it getting up from the floor as well.

 

Good article find Jefa!!


Sending good wishes your way!

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Good grief!! :blink: You're all a bunch of "spring chickens"!!! I'm 61 and blame almost everything on the weather. :lol:

 

christy


Love makes the world go around!

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Oh come on Christy, you do not look 61! I can only hope to look as good as you at that age. :)

 

And good point with the weather. Although, I do notice I'm stiffer when it's rainy and nasty out. :(

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Jen, I can really relate to you and everyone on here! I'm 36 years old and I remenber having joint pain even before I had Scleroderma. I was Diagnosed with Scleroderma back in 1990.

Sadie

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I think you should have any persistent joint pain checked by an orthopedic surgeon.

 

When I was undergoing treatment for lymphoma, they asked me how much trouble I had walking, what with the avascular necrosis in my hip, that they saw on a scan. I just that I had a little glitch from age (late 40s at the time). A few years later I had a complete hip replacement.

 

Thus I dodn't try to guess at these things.

 

As for scleroderma pain, myalgia (muscle inflammation) is much worse for me than any joint pain. They can be hard to tell apart. At a time when I was in a lot of pain I had a x-ray of a joint, which showed no arthritis - which narrowed it down to myalgia.

 

Craig

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