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KELLYB.

Pigment changes?

11 posts in this topic

Hi all! I hope everybody is as well as can be! The warmer weather is enough to at least keep me smiling a little more :)

 

I am wondering about pigment changes. I mean, besides the telangectasia (sp?), has anyone experienced any major changes? I have ALOT of spots on my face & chest, which at first was enough to make me want to stay in the house, or under a veil... but anywho... last summer I started to notice a different kind of change, and it's been getting worse ever since. It's really weird, so please bare with me while I try to kind of explain this - thanks.

So, at the center of my forehead it's kind of like a spot of light color- there are not many telangs. there- then on each side, kind of going down to almost the top of my cheek bones, its like this brown color. And let's talk about my moustache!!!!! I literally look like I took make up 5 shades darker than it's supposed to be and applied it above my lip!! I HATE IT!!! I did notice that when the telangs. started coming, I wasn't tanning on my face as I did before. ( I was a major sun worshipper!! ) So, I wonder if it is from continuing to tan over the last few years, and some places can tan kind of normally (above my lip, and on the sides of my face) and some places just don't tan at all?

Anyways, just wondering if anyone else out there has experienced anything like this? It's strange, because this causes me no pain & it's probably the only thing I don't take a med for, but yet it seems to be one of the things that bothers me the most!! It stinks to not only feel bad on the inside, but also look bad on the outside, you know? Blah blah blah, I'll quit whining now...all of a sudden I feel so vain! Yuck!! Sorry bout that...

 

Thanks for any response, take care,

 

Kelly B.

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Hi Kelly,

 

It's ok to whine. I think I've cornered the market on it lately, but now I'll let others take over for a while Lol

 

I have pretty much exactly what you have described. Including the tangs, I have a white ring around my hair line with a long brown spot, like a line (I look like a character from Star Trek lol) running from the middle of my forehead down about 2 inches. Also have the dark upper lip which is really attractive. I am noticing the bleached areas are now also over each eyebrow. My doctor said the Plaquenil can cause "bleaching" on skin and hair.

My arms, legs and trunk are abnormally tan, to the point that people ask "did you go away on vacation?". I'm noticing some small bleached spots on my legs but not too bad so far.

 

Anyway, I understand how you feel, and yes, we are vain about our looks and to me that's perfectly normal. I use about a bucket load of makeup when I go out and if that's the way it has to be then, so be it.

 

PS: My Dermatologist warned me not to try to "tan away" the tanglestias, wear loads of sunblock. Just thought I'd throw that out there. I think the sun aggravates it.

 

Karen

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Hey Kelly,

 

 

 

Oh goodness yes, I have a lot of pigment changes. My forearms and calves are spotted with mottled looking darker and whiter spots. My rheumatologist wasn't sure if it was due to the disease or plaquenil changes, but he didn't seem to be over concerned about either. I use a self-tanner to try and even it out.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Kelly,

 

As Karen and Pam have said, this is "more the norm, than not" for most of us, to be sure.

Not much of a consolation, I know, but true.

 

If you have a dermatologist, he/she may be able to suggest some things that might help, cosmetically.

 

I know, too... that the tangelasias (sp) can be taken care of :rolleyes: , though I haven't done anything about it.

 

Hugs,

 

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Suzi,

 

When you say they can be taken care of, you mean laser treatment? I asked about that to my doctor and he said the likelyhood was that it would not work, and that even if it did, they would return. Maybe you know of a specific type of laser treatment that does work? If so, I'd love to know about it.

 

My dermatologist (the one that I never went back to) told me to use vitamin K cream on them (I think it's used for bruising so similar effect on the tangs). I used it religiously for 3 months and nothing. So, just loads of base for now Lol

 

Karen

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Hi Karen,

 

Yes...but this was several years ago. There may be a {better} technology that does work...rather than only the lazer option, not to say it "wouldn't work".... I have no first-hand knowledge, in that regard.

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Thanks Suzi,

 

If I hear of anything I'll be sure to pass it on. Wouldn't it be nice to go out fresh faced and natural for once? ;)

 

Karen

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Not so much pigment changes, although I'm usually of the "red" shade, like a mild sunburn.

 

My recent allergic reaction and stay in the hospital has left me with many, many of the red marks on my face which appear to be permanent. Not to worry, enough make up will get me through any occasion. Funny though, a friend visiting yesterday said "your face, what happened! :blink: ", not being an especially vain person, I just giggled and said "hey, I made it, I'm alive". :)


Tru

 

It is what it is...........

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Thanks to everybody who responded! I suspected I wouldn't be the only one who had this, I just had to ask, you know? I did purchase a good self tanner, as I too thought it might help even the tone a little bit, so far it seems to be working fairly well :) I wish I could afford to have some laser treatment done, that would be great!! I think Tangelo (I think it was her) has tried a few times with little results, if any. So, I guess it would probably be a waste of money & high hopes anyways,right?

 

Thanks, everyone take care!!

 

Kelly

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One more thing, and I know I've mentioned this on other threads in the past but it's worth mentioing again. If you want to hide those tangs on your face, use a green colored concealer stick under your makeup. It really does offset the red.

 

Karen

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i have been noticing like white speckled spots, especially on my arms and legs. also I have been noticing alot of small blood vessels showing through my skin. have the red veins on my face. do you think this has to do with scleroderma?

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