Jump to content
Sclero Forums
fri83

Please help with finding diagnosis

Recommended Posts

i posted on here a few weeks ago about my symptoms. i went to the dermatologist and he did shave biopsy on my elbow for scaly skin I have there. the lab report says chronic spongiotic dermatis, which now im understanding is basically saying inflammation and skin thicking but not sure from what. im really frustrated because I think some how my symptoms are related and need to be treated. my joints and muscles have been hurting for over a year, and getting worse. i can't walk on my one foot due to swelling of the second toe in the joint that connects to your foot. my hands are constantly swollen and getting worse, can hardly get my rings on now. ive had fatigue for many months, but can't fall asleep. my primary care physician says I have fibromyalgia but never checked for tender points, which I may have 2 or 3, not the 11 needed for diagnosis of fm. can you offer any suggestions on getting a diagnosis or some relief????

Share this post


Link to post
Share on other sites

Hi Fri83 ,

 

I think you need to go to a Rheumatologist.....especially if the primary doctor thinks you have fibro. There are meds to help once the rheumatologist figures out what is going on.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Hi Fri,

 

I'm not a doctor, of course, so take what you like and leave the rest. It's my understanding that spongiotic dermatitis would mean that you have some form of eczema. There are many different types of eczema (and thus causes.) To the best of my knowledge, this would not be indicative of scleroderma.

 

However, that combined with your fatigue and joint issues, really makes me wonder -- have you been to a really good allergist lately? It might be helpful to be fully screened for all sorts of allergies, including food (wheat/gluten and casein/milk are common culprits) and particularly mold allergies. That could identify the source of your problems and/or rule it out, which at very least could perhaps help narrow things down.

 

Don't just go to any ol' allergist. Find a board-certified one, preferably associated with a major medical center. Perhaps you could talk to your primary care doctor, and see if they agree with that idea, given your biopsy results, and they could refer you? Or something...


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

I agree that you need to see a rheumatologist. They can then do a skin biopsy of an affected area which will be able to diagnose if its sclero or not. There is nothing more frustrating than going through the motions of appointments and never getting answers. I did this for over a year going from one doctor to the next, one appointment after another, test after test, and then finally I got in front of a rheumatologist who knew her stuff and within a minute she was able to diagnose just by looking at me what she thought I had. I of course then had all the blood work and the skin biopsy to confirm it but if you put yourself in front of a specialist you will be able to have their specialized medical degree help you.

 

Good luck and warm hugs,

 

Peggy

Share this post


Link to post
Share on other sites

i really appreciate the input. I went to the orthopedic dr today for the joint pain and swelling in my toe. he did xray said no arthritis but the pain is definitely in the joint where it connects to my foot. he put me on predisone for a week and I go back next friday. I think I am going to make an appointment with a rheumatologist monday. again thanks for the advice.

Share this post


Link to post
Share on other sites

Hi fri83

 

Rheumatologist is definitely the way to go. I also have FM and the Rheumatologist that diagnosed me with that said that joint pain is not a symptom of it. Muscle pain and fatigue are symptoms, but you're right, you do need to have 11-12 of the pressure points for diagnosis. Let us know what you find out from the rheumatologist when you get in. Good luck.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

well the predisone did the trick for my toe, at the same time I helped with all my joint pain. now the problem is that I have been off of it for 3 days and now all the pains are back. it was nice to not hurt for a few days!

Share this post


Link to post
Share on other sites

Hi fri83,

Clearly you have inflammation issues if the prednisone made you feel better but now you are experiencing the pain again. You need tosee a specialist to get to the bottom of your inflammation issues. As Shelley said it could be allergies or something else. You need to follow up before you become totally miserable again.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

i do go to an allergist, i get weekly allergy injections. I was not aware that allergies could cause joint inflammation and pain.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×