Jump to content
Sclero Forums
Guest Sadie

Howdy!

Recommended Posts

Guest Sadie

Hi Everyone, Thank you all for your kind words! You guys are the best! Sheryl, you wondered why I needed sugar water along with my tube feedings? The problem is my body isn't hardly absorbing anything because of the condition my whole digestive tract is in and my doctors have all said it is going to get worse. The sugar water is to help keep me more comfortable. Plus, they now have me on Oxygen because of my lungs not being in good shape. Everything we do now is just to keep me more comfortable. PS-I am still on my tube feedings 24/7.

 

Sadie

Share this post


Link to post
Share on other sites

It was great to hear from you! I think about you daily and hope that you are continue to be free of pain. I'm glad you are receiving such good care and more important I'm glad to hear from you! Please continue to take care of yourself and keep us posted on how you are doing.

 

Warm hugs,

 

Peggy

Share this post


Link to post
Share on other sites

Hi Sadie,

 

It's so good to read another of your threads!

 

I'm glad you are being well cared for... the sugar water will help with yyour strength too, I imagine.

 

Relieved you are on oxygen so your body doesn't have to work so hard.

 

Hope all of this is helping you stay more comfortable.

 

Loving Hugs,

 

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Sadie,

I have been thinking of you daily. I was so happy to see this post. It sounds like you are getting great care!

Nan

Share this post


Link to post
Share on other sites

Hey Sadie

 

Glad to hear from you :) . I hope they are still taking good care of you, it sounds like they are. It's so great that you keep checking on us ;) , you are always in our thoughts!


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Hi Sadie,

I loved seeing your picture, it made me feel a little closer since I now knew what you looked like. It inspired me to figure out how to get my picture on there so all could see who I was. I could not figure it out - so I got my computer geek son to help me. As you will see I had to find a picture that included my pooch Fergy. He has been such great company to me while I have been sick. He very rarely leaves my side and when I lie on the couch he lies on my stomach and I steal his warmth. Glad to hear you are comfortable.


Lucy

Diffused Scleroderma

Diagnosed Dec/06

First Sympton Nov/05

Share this post


Link to post
Share on other sites

Lucy:

 

So true about the pets. I'm grateful that I could be home 24/7 with my Truman before his death in February. He gave me so much love, joy, comfort and laughter. My new one Oliver, is a handful. He's a year and half old but is already learning he needs to tread slowly if mommy is up and walking. His previous owner must have sent him to "school" as he knows all the commands. He needs to understand the difference between outside and inside. He'll see a squirrel outside and thinks that magically if he jumps off the couch and races into the kitchen, he'll "get him". Only thing he's gotten so far is a bump on the head from sliding across the kitchen floor and into the wall.

 

Suzie girl, sounds like your finally pain free. Sending my love to you each and every day. I know KarenLee, you and I became buddies so quickly and I'm all the more benefiting from our friendship.

 

Linda


Tru

 

It is what it is...........

Share this post


Link to post
Share on other sites

Hey Sadie,

It was nice that you wrote to us. I am glad to hear that the sugar water is helping to keep you hydrated. I am glad you are getting all the extra treatments you need at this time. I hope the oxygen helps your body to not have to work so hard. Are you still able to sit up in a chair and be pushed around? I hope you are somewhat being moved about a few times daily. Keep us posted when you feel like you are up to it. We wait for you to write us about how you are. Thank you Sadie.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Suzie,

 

I think about you and wonder how you're doing. I'm glad you keep everyone posted because you've become a special person to everyone who knows you. What struck me the most about you when I first read your threads was your kind disposition and it never waivered. You personal messaged me when I was feeling down and for that I am grateful. I hope you're getting the royal treatment because you deserve it!!

 

Your friend,

 

Razz :)


Live well, Laugh often, Love much

Share this post


Link to post
Share on other sites

Sadie,

 

So glad you posted, I was thinking about you a lot lately and wanted to know how you are doing. Glad to hear you're being cared for properly. If you're up for it at any time, we can do our "support trio" with me you and Linda.

Shellys been eating up a storm as usual. She spends a lot more time outside too now that the weather broke. And I have a suspicion that one of our neighbors is feeding her because she's getting awfully chunky Lol

 

Take care and keep us posted. We all love you!!!

Karen

Share this post


Link to post
Share on other sites

Suzie Hello! It was nice chatting with you this morning. Sugar water huh, I have heard of that. Sam


Sam

Share this post


Link to post
Share on other sites
Guest Sadie

Thank you all for your sweet words to me! You guys are so special!

Shelly, that picture was taken during the holidays. I was holding a little Boyds bear that my nephews gave me. Sheryl, Yes,I still am able to

be transfered back and forth to each room in my chair. My parents push me. Sam, it was so good to chat with you this morning!

Suzi :)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×