Leslie R.

Depression

28 posts in this topic

Hi Karenlee,

 

Thank you hope you back for good too, it is just not the bathing suit, but Summer itself is playing a bad joke on me. During winter season it was not difficult to cover up my discoloration (Vitiligo), on my neck, hands and chest. Although I have to deal with staying warm and flare ups, I did not think about wearing clothes during summer season. Hope to find some type of solution, maybe a clothing line for people with skin discoloration and Scleroderma (raynaud's phenominum) coldness.

 

 

Sincerely,

Leslie R

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Tank top and shorts! That sounds like a plan. Thank you everyone for that idea - it will also reduce sun exposure and we all know what that can do to our sensitive skin. This Board is amazing. I am a newbie. I came on to help someone else and wound up getting some help for myself. I thank you all!


Smurfette

 

Chocolate, It isn't just for breakfast anymore!

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Hi Karen,

 

Thank you for the wonderful words of inspiration, I will use each and everyone advice to help with my healing. I hope that you have some comfort and support during your time of need. Everyone on this forum is very uplifting and blessings you and your family.

 

 

Sincerely,

 

Leslie R

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Hi Leslie

 

Welcome back, we've missed you! I'm a little late chiming in and it seems you have gotten great advice, not much I can think of to add to it. Sometimes, we just need a little extra help to keep our feet on the ground and the good news is that you recognized it. You're right, this disease is just downright cruel on us as a whole. It sure gave me an insight as to why people need anti-depressants.


Sending good wishes your way!

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Hi Leslie!

 

I have problems finding clothes that look good on me too. Since I'm at 90 pds right now most tops hang on me like they do on the hanger. I also have vitiligo around my neck and upper chest, which I usually cover during the winter months but in the summer I want to stay cool. My arms are so thin (they look like tree branches) I keep them covered when I go out.

 

I was thinking wouldn't it be nice if there was a make-over show that dealt with our challenges? I would love a make-over! I even sent one of the talk shows a suggestion about doing make-overs for us! Haven't heard back!

 

 

 

Razz

:)


Live well, Laugh often, Love much

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Hi Razz,

 

I feel your pain I use to weigh 117 pounds when this disease started, having Vitiligo, Scleroderma and Lupus, it is very hard to juggle my life. Winter was much better when I could get clothes to fit my tiny new body, but now I am at 150 pounds and it is Summer it can be difficult. My husband had entered my name on those make over shows. I never heard back from them, but I hope that someone will really consider on doing a show especially for people that have skin discoloration. Don't give up and stay strong.

 

Sincerely,

Leslie R

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Lesley, My Mom does my shopping for me since I'm homebound. It is challangig for to find clothes at times that fit me well because I'm 5'10' and weigh between 90-95 pds now so my arms and legs are very long and skinny. It makes it more challanging because of my feeding tube cathater and now my picc line. Razz, I agree with you, it would be nice to have a make over.

Sadie

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Leslie R,

 

I forgot to mention before I developed SD, I was 5'3" and 150 pds. (Nice and plump). All together I lost 60 pds and even an inch in height. I would like to gain at least 30 pds! I'm sure there's some real nice clothes you can wear. I love all the summer pastels, bright white tops and above the knee shorts. You got a lot of helpful tips from everyone on variations of swim wear. I wear a t-shirt over my bathing suit or with shorts. It doesn't matter what other people think, but I bet your husband thinks you look great no matter what you wear!

 

Sadie,

 

I was even thinking a spa party would be a good idea! Do the whole pedicure, manicure and a massage from a masseuse! Sounds good huh?

 

 

Razz


Live well, Laugh often, Love much

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Hi Razz,

 

Sorry for not getting back to you, I was distracted with the kids. I do feel your pain when I lost the weight at first I was very skinny 117 pounds, everyone was scared, the upside was that I can get clothes to fit me since I was a size 4. Now I am so depress because hardly anything can fit me, and eating out of control. I do not go to the beaches but will love to go to parks for cook outs, and yet I have to be so careful with the heat and covering my skin so people will not see my skin discolorations. The only way I started putting on weight is from the prednisone, without that I don't think I would of gain any weight. Talk to your doctor about your concerns on your weight and how it is affecting you. If you need anyone to talk too I am hear for you, with a bit of support you can get through this illness. I will keep you in my thoughts and please keep fighting to beat this illness.

 

 

Sincerely,

Leslie R

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Leslie,

 

I remember what it was like raising my little kids. I had to keep an eye on them all the time. So don't worry about responding right away, I totally understand. Thanks for lending your support. I always feel better after talking to someone!

 

 

Hugs,

Razz


Live well, Laugh often, Love much

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Hi Leslie,

 

I am so sorry you are having this bout of depression. I remember back in a huge flare up in February, I just felt so depressed. I didn't even want to get out of bed. I just wanted to stare at the wall. No energy, on prednisone and it wasn't working very well and just had no interest in anyhthing. I had never felt so at the bottom as I did then . Yes, I think it is the disease that changes us and does mess with our minds.

So to come out of it takes time and patience in letting ourselves understand we are not going to feel well for awhile and take on small projects not big ones. That has been hard as I am a project lover and always tackled things head on. I guess watching my mother fight this disease for so long and never giving up and when she feels better, she gets right back in there and fights for what she wants to do in life. my parents have taught me alot. They both have autoimmune problems and yet they have had great fulfilling lives. Anyway I didn't mean to ramble.

I hope you find a way to get some meaning back as you feel better. Be good to yourself. Susie54

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Hi Leslie,

I've been on a "sabbatical" for several months now for the exact reasons you brought up in your original post. I thought I had been dealing with being diagnosed with several different auto immunie diseases rather well. I have always been the strong, capable person who managed to deal with and cope with everything well.

 

Guess what? After building up for a while, it all came crashing down around me in January. I have been taking effexor XR for about a year and a half because my neurologist recognized my depression back then. I now have psychiatrist who handles that end of things. In February, I started working with a therapist. Fortunately, we hit it off from our first meeting. It is the best thing I have done for myself.

 

I can only speak for myself, but I have not regretted making these choices. I wish you the best on this road or any other you might choose to help you come to terms with the hand you've been dealt.

 

emmie

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I'm sorry to hear so many have to deal with depression on top of everything else. I had dealt with it in the past at one point, early 20's, but lately I feel just plain old angry & some depression because of how unpredictable & unmanageable my body is... If it is cold, then I can't get warm, if it is muggy & hot, then my fingers all stick together & I swell up & my joints ache from all the pressure. Sometimes I am so tired I could cry, other times I'm fine, sometimes my arms work, sometimes they don't, sometimes I can smile, sometimes my mouth is too weak so my mouth trembles when I smile!

 

Add to that I don't have an official diagnosis (I don't think, although the radiologist today came in & said, "Scleroderma huh?" when preping me for barium swallow).

 

Anyways, I'm glad you came in to say hi & let everyone know what's up, everyone here is so kind & caring, it has been a great support to me. I have felt so alone with this at times but I come here & suddenly I'm surrounded by people who care & understand. Hang in there & stick around when you can! (((((HUGS)))))

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