Karenlee

PFT test...what to expect?

35 posts in this topic

Albuteral? I never had that! I can't imagine they would give you such a powerful drug without knowing your entire drug inventory. How strange...anyone else have that during a routine PFT?

Karen

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Thanks Janey and Nina, yes it sure was nice to get some GOOD news for a change. It's been nothing but bad news since March and I'm so releived that my lungs are ok so far, especially since I used to smoke. That combined with the sclero had me worried out of my mind.

 

I absolutely loved the technitian and told her if I ever have to come back for another PFT, she'd give it or I wouldn't do it Lol She said that things looked so good, sadly she wouldnt see me again. That made me smile. :)

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Hey Karenlee

 

That's great news, I'm happy for you too!! :)


Sending good wishes your way!

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Karen, That is wonderful news!! Have a great weekend!!

Suzi

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Congratulations on such great results! What a relief this is for you! I'm glad it went well and I'm really glad that for now your lungs aren't affected. It's a little bit of good news for a change. You deserve to celebrate and relax and enjoy the weekend. I am so very happy for you!!!!!

 

Warm hugs!!!!!!

 

Peggy

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KarenL, albuteral is what is used to help open the airway passage to see if you preform better on the second portion of the PFT. I have never had a PFT that they didn't have you repeat the test to see if you prefermed better after inhaling a small amount of albuteral. Sometimes it makes no difference. People with Asthma and other lung issues it may help their scores go way up. I preform much better after the inhalation therapy is given as I have Asthma.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Karen ,

 

That is good to know your lungs are OK. Congratulations on the easy testing!!!

 

Take care, Everyone.

Margaret

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Karenlee,

 

Glad to hear your tests reults were so great. I do the whole breathing in a mouthpiece thing too and my doctor also has me do a walking test. I walk for 5 minutes to see how far/fast I can walk without issue. So far so good.


I may have Scleroderma, but Scleroderma doesn't have me!

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Hi everyone. I'm resurrecting this thread again (sorry), but I had my appointment with my Pulmonologist today for the review of tests and a consult.

Before I met with the doctor, the nurses were taking my vitals and when she got to trying to take my pulse (where they put your finger in that clip thing) it wasn't registering because my hands were so cold Lol. One of the other nurses (she was talking to the other nurse like I wasn't even sitting there) telling her to have me sit on my hands so they could get a reading. I almost fell off my chair! If I did that they never would have gotten a reading. Well finally we found a finger that could read it so on to the Dr.....After reviewing my PFT, she said it was above par and wouldnt need another one for one year. She did however want me to have another chest CT because of the nodules, my last one was in April, so I have to have one again this month. If the nodules havent grown, then we do another in 9 months from now. Then if that looks ok, 18 months, then that's it, no more after that.

She asked me if I ever had pnuemonia, which I told her no. Then she asked if I had any birds. I do have a pigeon but she's in a cage outside. She asked if I ever clean the cage or came in contact with fecal matter from the bird. Then I remembered that once in a blue moon we let her out and she comes in the house, and sometimes I have to clean up the yuck. She said that may be what caused the nodules. I couldn't beleive it! I had no idea birds could cause lung problems.

Anyway, so far so good. Just wanted to let you all know what was going on.

I feel releived and lucky.

Thanks for listening.

 

Karen

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I'm glad your appointment went well. I have the ame problem with my fingers and trying to get the oxygen reading. When I had my colonoscopy they put the reader on my ear!


I may have Scleroderma, but Scleroderma doesn't have me!

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Karen, I am glad that all went well with your appointment for your PFT. I also have several nodules that are being watched. I was asked years ago if I was around birds or chickens. I lived on a farm most summers until I was 12. There were 50 or more chickens we had contact with daily. I also had pnuemonia on several occasions. Seems like some of the nodules are hardening and going away an I have accumulated a couple more in the past 1 year. I don't know if anything is done for them except watching them and hoping that they go away. No one seems too worried about them so I try not to be either. Did they write down old granulomatous disease on your reports? That is what is written on my report. I never really got a clear explanation. I guess you are good to go for another 100.000.00 miles.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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<<Then she asked if I had any birds. I do have a pigeon but she's in a cage outside.>>

 

Hi Karen ,

 

From what I know, Histoplasmosis and Aspergillis are two fungi contracted from birds that can cause lung problems.

 

Take care, Everyone.

Margaret

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Smac:

Isnt that funny? I mean the raynauds isn't funny but when she couldn't get the reading and the solutions they try to come up with I had a good laugh out of it. :D

 

Sheryl,

 

My replort didn't say granulomatous disease, just 2, 3mm nodules. I asked her about the nodules, and she said there's nothing to do but like you said watch them. She said they are benign and so small that they wouldn't be able to take a sample even if they wanted to. I had no idea that birds could have been the culprit. Do you know why? I never had pneumonia (that I know of) but lots of strep as a kid.

Looks like hubbys gonna be cleaning the cage from now on ;)

 

Thanks everyone.

Karen

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