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Karenlee

PFT test...what to expect?

35 posts in this topic

Hi everyone. I'm resurrecting this thread again (sorry), but I had my appointment with my Pulmonologist today for the review of tests and a consult.

Before I met with the doctor, the nurses were taking my vitals and when she got to trying to take my pulse (where they put your finger in that clip thing) it wasn't registering because my hands were so cold Lol. One of the other nurses (she was talking to the other nurse like I wasn't even sitting there) telling her to have me sit on my hands so they could get a reading. I almost fell off my chair! If I did that they never would have gotten a reading. Well finally we found a finger that could read it so on to the Dr.....After reviewing my PFT, she said it was above par and wouldnt need another one for one year. She did however want me to have another chest CT because of the nodules, my last one was in April, so I have to have one again this month. If the nodules havent grown, then we do another in 9 months from now. Then if that looks ok, 18 months, then that's it, no more after that.

She asked me if I ever had pnuemonia, which I told her no. Then she asked if I had any birds. I do have a pigeon but she's in a cage outside. She asked if I ever clean the cage or came in contact with fecal matter from the bird. Then I remembered that once in a blue moon we let her out and she comes in the house, and sometimes I have to clean up the yuck. She said that may be what caused the nodules. I couldn't beleive it! I had no idea birds could cause lung problems.

Anyway, so far so good. Just wanted to let you all know what was going on.

I feel releived and lucky.

Thanks for listening.

 

Karen

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I'm glad your appointment went well. I have the ame problem with my fingers and trying to get the oxygen reading. When I had my colonoscopy they put the reader on my ear!


I may have Scleroderma, but Scleroderma doesn't have me!

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Karen, I am glad that all went well with your appointment for your PFT. I also have several nodules that are being watched. I was asked years ago if I was around birds or chickens. I lived on a farm most summers until I was 12. There were 50 or more chickens we had contact with daily. I also had pnuemonia on several occasions. Seems like some of the nodules are hardening and going away an I have accumulated a couple more in the past 1 year. I don't know if anything is done for them except watching them and hoping that they go away. No one seems too worried about them so I try not to be either. Did they write down old granulomatous disease on your reports? That is what is written on my report. I never really got a clear explanation. I guess you are good to go for another 100.000.00 miles.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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<<Then she asked if I had any birds. I do have a pigeon but she's in a cage outside.>>

 

Hi Karen ,

 

From what I know, Histoplasmosis and Aspergillis are two fungi contracted from birds that can cause lung problems.

 

Take care, Everyone.

Margaret

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Smac:

Isnt that funny? I mean the raynauds isn't funny but when she couldn't get the reading and the solutions they try to come up with I had a good laugh out of it. :D

 

Sheryl,

 

My replort didn't say granulomatous disease, just 2, 3mm nodules. I asked her about the nodules, and she said there's nothing to do but like you said watch them. She said they are benign and so small that they wouldn't be able to take a sample even if they wanted to. I had no idea that birds could have been the culprit. Do you know why? I never had pneumonia (that I know of) but lots of strep as a kid.

Looks like hubbys gonna be cleaning the cage from now on ;)

 

Thanks everyone.

Karen

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Hi Karen,

 

I'm a bit late reading your post, but I'm very happy to find out things went well for you!!!

 

Sheryl,

 

I've had 2 PFT tests (the 2nd came back better than the first) and they haven't used albutral for either one. Guess it just depends on the doctor. My next test is in January 2009. I'll try to remember to remember to ask about the albutral.

 

:)

Christy


Love makes the world go around!

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Congratulations on getting such good news. It looks like your lungs are doing well and that is a huge worry to get rid of. I hope the x-rays show no additional damage too. Did they say that you wouldn't have to have another one because now your lungs are free and clear of sclero affecting them or is it still possible that you could develop lung involvement down the road?

 

Warm hugs,

 

Peggy

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Karen:

 

I'd always heard that pigeons and their droppings can be dangerous. I remember that because a neighbor kept a coop for hundreds of homing pigeons in his back yard. I don't believe that contributed anything to my illness, as this was a couple years prior to my moving into the neighborhood as an adult. He finally released all of them but the coop stood erect for years, as no one was willing to inhale any of the droppings in an effort to take it down.

 

Linda


Tru

 

It is what it is...........

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I would never have made the connection between Padre (our pigeon) and lung nodules. Thanks for the info everyone. Now, is it direct contact with the droppings, or just having the cage in the yard is enough to get into the lungs?

I'd hate to have to make hubby get rid of him. He's had him for 11 years.

 

Karen

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Depends Karen. If the droppings are allowed to dry before pick up, you risk the airborne dropping dust debris coming at you if you're in the yard or he brings it in on his clothes.


Tru

 

It is what it is...........

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