SaraNC

Update on Lisa (Peanut) from Best Friend

144 posts in this topic

Sara ,

 

Thanks, again, for the update. It's so good to hear Peanut is doing so well.

 

Take care, Everyone.

Margaret

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Hi Peanut

I've been following your progress and am sooooo thrilled at how well you're doing. Keep up the great job. You're an inspiration to all of us.

And so so lucky to have such a great friend to support you, along with all your other friends and family.

Sending you strength and love,

Annie N.

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Hi Sara,

 

It is so great that you and Lisa are the kinds of friends you are to one another.

The added bonus is that we are fortunate that you have kept us in the fold... as to her progress.

 

Thank you so much!

 

...and peanut...you go girl! I am so glad you are improving.

 

Sending you healing and loving hugs, Lisa.

 

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Thanks Sara for keeping us informed of Lisa's progress.

 

Lisa (Peanut), please know that you are in my thoughts daily, you seem to be making great progress. We all miss you here on the forum, keep up the good work and look at all the positives from now on.

 

Sending warm wishes your way

Celia

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Sara,

 

Thank you so much for keeping us posted on Lisa. You are an amazing friend.

 

Peanut~

 

Wishing you all the best for a speedy recovery! Sounds like you are doing great. Keep up the good work.

 

I want to hear you cheering for the Hawks come football season and it's right around the corner....

 

Love ya,


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Just a quick and happy update. Lisa took 6 steps today! On her way to walking. She continues to get stronger everyday. She has started holding a spoon to feed herself with assistance and has started using her hands more to do things like touch her face, show you where she has an itch and pull up the covers. She recognized 50% of numbers shown to her and also recognized some spelled out words. She is talking more and today on the phone said" I love you", "Hi" "Bye Sara", "yum", "yes", "no", "mom". She says a lot more words and is making sentences but I have not heard them yet. She has the trec tube out and is doing well without having the oxygen through the hole in her throat. I need to remember to ask what her oxygen level is. She has a social worker who has come to see her and will be working with the hospital on the plan for her long term recovery. Right now they are saying 7-14 more days in the hospital with lots of therapy and then sending her back to Arizona. The doctor wants her to go home the social worker wants her to go into a rehab facility. We will see what happens but either way Lisa would have therapies during the day.More updates to come.

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Sarah thanks for keeping us going with updates on Lisa. I am so pleased that she is continuing to improve & get stronger. I do miss her cheerfulness & sense of humour in the chat room.

Please give her my best wishes for a continued recovery.

 

Jensue

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Hi Sara ,

 

Once again, thank you for the update on Peanut.

 

Peanut....you're in my thoughts daily and we're all cheering for you!!!

 

Take care, Everyone.

Margaret

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Sara,

Thanks so much for the latest update! Peanut is amazing and she is very fortunate to have you for a friend! Hugs to Peanut!

Nan

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Thanks Sara.

 

Sounds like she's recovering nicely. Glad to hear it :)

 

Karen

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I am so glad to hear that Peanut is doing so well. Her strength and determination will win and she will be back to the way she was before this disease took over her life. Please give her my best and tell her to hang in there. Each day will be better than the last.

 

Warm hugs,

 

Peggy

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Thanks for the update Sara!

 

Tell Peanut we still miss her like mad....but we are thrilled to hear she is making such good progress. We know she's a fighter and I've no doubt she'll overcome this too!


Sending good wishes your way!

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Sara, Thank you so much for keeping us updated on how Liza is doing!

She is in my thoughts!

Sadie

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Sara,

 

You are such a good friend to Peanut! You're actually becoming a friend to us as well with your awesome updates. Tell "P" she's missed and we look forward to the day that she returns to the forums!


I may have Scleroderma, but Scleroderma doesn't have me!

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Lisa and I had our first real chat today! It made me tear up. I was so moved to hear her voice. She is starting to make sentences and say a lot more things. Mostly our conversation consisted of I miss you's and I love you's and Lisa very clearly said, " I miss you my friend." They say her voice will come back as she gains her strength right now it sounds a little like someone with a sore throat or cold. She is up and walking in the rehab gym. She has walked the length of the parallel bars several times. She is getting up into the wheel chair with some help. She is practicing making it to the bathroom. Every day she gains strength, endurance and relearns something new. She knows her address and phone number and can say the lyrics to nursery rhymes, songs and other route memory when prompted. In order for her to come home she needs to be able to walk on to a commercial airplane and sit in the seat. They are working on her endurance so that she can sit for 6 hours or more. They had been saying since last week that they would send her home this week but today the doctor came in and said he wants her to go to a rehab center in Chicago for a couple of weeks. So we will see what will happen. If she goes home she will need 24 hour care and hopefully by the time she goes home she will be feeding herself, going to the bathroom and able to easily get in and out of a car. The pain seems to be gone and Lisa hasn't had a fever in over a week. She has started finally sleeping through the night which is huge. The best news is they are still expecting her to get off of oxygen which would be fantastic. They keep lowering the level and hope to wean her off completely. This has to mean that Lisa's lungs are responding to the transplant and healing themselves. They won't know for another couple month if the disease is in remission or gone completely but boy will that be an exciting day.

More great updates to come. I hope to go out again for another visit once they figure out the next plan of action.

Yeah Lisa! Sara

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