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IVIG Results Good/ But Low White Blood Count

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The doctor called and said that in my blood work that they did last week showed that my CPK numbers went from in the 400's down to 8 which is now normal. Now my doctor will be going back to the insurance company to see if they will approve more treatments. They only approved 3 months and then wanted proof that it was working. I haven't noticed any difference yet but I understand it could take 5 months before I may see the improvement.


The other thing the blood work showed was a low white blood count. Does anyone know what this could mean?


Thank you!


Warm hugs,



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No one's answered your post yet, so hesitantly, I'll give you my 2 cents worth.

First of all, congrats on the good news.

How low was your WBC? My lab says anything between 3.80 and 11.20 is normal. In my case, we are trying to keep my WBC low (but not too low). My WBC stays around 5 or 6 and my Dr. is happy about that.
Apparently, a low WBC can mean a lot of things and of course, scleroderma throws everything off. I bet your Dr. can tell you exactly what's going on in your case.


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Your CPK results were great!!!! I'm sorry you still haven't felt the effects of the IVIg, but apparently it's there.


I'm certainly no doctor, but here are some things that I've learned through my 5 years of having polymyositis. The drop in your CPK indicates that your muscle inflammation has decreased or even stopped. You should be able to feel yourself getting a little stronger without getting so sore. The trick is to take it really, really slow because if you try to push building your strength back too quickly, you can trigger the inflammation all over again. You can also tell that you've pushed too much by the soreness.


Coming back from muscle inflammation due to PM can sometimes be very subtle. I remember after my first round of IVIg treatments, I went to get into my hubby's SUV and I unconsciously climbed in like a normal person. My hubby goes "Do you see what you just did?" For over a year I had had to lift my leg into the car with my arms then pull myself in using the handles. This time, I just "got in the car" like a normal person. So soon, you should be able to notice that things like getting up from a chair, going up stairs and washing you hair are getting easier and easier. I hope so anyway!!!! If not, please bring it up to your doctor.


I found this at Medline Plus on the WBC: What abnormal results mean.

I've always had low normal to a little below normal. As you can see from the list, low WBC can be caused by collagen vascular diseases - like scleroderma,polymyositis, RA, and lupus.


I hope you get approval for more IVIg. It obviously is helping since your CPK has dropped. I also hope you start seeing the effects soon.


Big Hugs to you Darlin'

Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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It is great to hear the good news from you! You deserve it. And, I hope they approve your next treatment round quickly.


One question - do they also measure/report your aldolase levels? It could be a marker to explain why you aren't feeling better yet... Just a thought.



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